Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for May 2018

An Update from Cyndie

Hello dear ones! Since I last wrote, 6 of the longest months of my life have passed faster than I can comprehend. I haven't posted but I've read and resonated...

Hello dear ones! Since I last wrote, 6 of the longest months of my life have pas...

CynD

•6 years ago

8 Replies

Low platelets and neutrophils

Hello.. my Mum is having 5th line chemo, however this time Carbo only. She has gone through so much, but continues to fight. Full hysterectomy 4 years ago, 2...

Hello.. my Mum is having 5th line chemo, however this time Carbo only. She has g...

mpelaez

•6 years ago

7 Replies

Feet & Legs feeling swollen

Hi ladies, anyone else had legs & feet swollen and achey while on carbo /calyx, I am now on 3rd cycle.... Loren

Hi ladies, anyone else had legs & feet swollen and achey while on carbo /calyx, ...

Lorent

•6 years ago

4 Replies

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Quick update on my special person ❤️❤️

Hi lovelies, Quick update she had her CA125 last month and it had gone from 16 to 60, we weren’t deflated as something didn’t seem right because her CA125...

Hi lovelies, Quick update she had her CA125 last month and it had gone from 16 ...

CallmeMum

•6 years ago

8 Replies

Sue Ryder Nettlebed petition

Sorry ladies - when I posted the link for my petition in my previous post, I miss typed the information. Many thanks to the lady who pointed this out. Here...

Sorry ladies - when I posted the link for my petition in my previous post, I mis...

111173

•6 years ago

1 Reply

Devastating news, anyone have a similar journey?

Hi everyone, hope you are all feeling well. An update from me..... Had the follow up CT scan and the rotten beast is back with avengence!!Been told by...

Hi everyone, hope you are all feeling well. An update from me..... Had the follo...

Angie-69

•6 years ago

35 Replies

new to oc..

Hi, My name is Dani and am new to the community and to ovarian cancer. I'm currently in the 'waiting for a definitive diagnosis' stage but was told I should...

Hi, My name is Dani and am new to the community and to ovarian cancer. I'm curr...

LadyAmalthea

•6 years ago

2 Replies

Good news and bad news again.

I was told by oncologist in Oxford last November that after three rounds of chemo I would eligible for a PARP inhibitor trial. Have had my three rounds and a...

I was told by oncologist in Oxford last November that after three rounds of chem...

Katiebairdie

•6 years ago

2 Replies

Husband trying to be supportive

Hello, my name is Woody. I am disabled with a neuro condition, but try to be as supportive as possible to my wife Suzanne who has OC (BRCA2). Suzanne was...

Hello, my name is Woody. I am disabled with a neuro condition, but try to be as ...

WoodyB

•6 years ago

14 Replies

Husband trying to be supportive

Hello, my name is Woody. I am disabled with a neuro condition, but try to be as supportive as possible to my wife Suzanne who has OC (BRCA2). Suzanne was...

Hello, my name is Woody. I am disabled with a neuro condition, but try to be as ...

WoodyB

•6 years ago

2 Replies

Sue Ryder Nettlebed

Some of you may remember I posted a little while ago about the potential closure of Sue Ryder Nettlebed, which would leave us without a hospice in South...

Some of you may remember I posted a little while ago about the potential closure...

111173

•6 years ago

7 Replies

Osteoporosis as a consequence of ovca

Hi anyone being treated for osteoporosis? I have been prescribed prolia but not happy with side effects . Not happy taking any drugs ...full stop. The whole...

Hi anyone being treated for osteoporosis? I have been prescribed prolia but not ...

Bonnie11

•6 years ago

7 Replies

Visitor

My daughter and youngest grandson Jacob have come to stay with me from Scotland , I say he’s a special child as he was born on my birthday and the same time as...

My daughter and youngest grandson Jacob have come to stay with me from Scotland ...

ellseybellsey

•6 years ago

12 Replies

Stopping at number 5 ( out of 6)

I haven't posted for awhile, I wanted to get to the end of the Rotterdam regime... ( of weekly cisplatin and etoposide tablets) or as far as I could... Well...

I haven't posted for awhile, I wanted to get to the end of the Rotterdam regime....

Janet235

•6 years ago

30 Replies

When do you feel better

Finished first treatment of carboplatin last Thursday, feel very tired today. When do things start to improve. Feeling very down today . 😢

Finished first treatment of carboplatin last Thursday, feel very tired today. Wh...

Manchesterlady

•6 years ago

15 Replies

Round three.

Here we go again. Only finished second line end of Feb this year and my CA125 reads 1,750. Back on the chemo again. They need to scan first to see what’s...

Here we go again. Only finished second line end of Feb this year and my CA125 re...

Suzanne333

•6 years ago

39 Replies

Borderline tumour

I recently had an ovarian cyst and my left ovary removed. I received a phone call today telling me that it was a borderline cancer tumor I've been told its of...

I recently had an ovarian cyst and my left ovary removed. I received a phone cal...

Merly123

•6 years ago

9 Replies

Niraparib 8 months in - and an update from NICE

8 months into Niraparib and it's still working for me .......tumours have not only stabilised but actually reduced in size - when we told the children you...

8 months into Niraparib and it's still working for me .......tumours have not on...

Elizabethe

•6 years ago

12 Replies

Update on fasting mimicking diet

Hello All. Few months back as posted on here I have started on Longo's fasting mimicking diet. I am on my 4th cycle of Carbo Taxol today. First 2 were...

Hello All. Few months back as posted on here I have started on Longo's fasting m...

MartaCiom

•6 years ago

12 Replies

Mothers day with family dinner😀

Hi ladies, Had a lovely mothers day dinner with my family the photo is my grandchildren, Ryan is the tallest he's 17 , Sam is the one on the left he is only...

Hi ladies, Had a lovely mothers day dinner with my family the photo is my grandc...

lorraine71-Australia

•6 years ago

47 Replies

Down in the woods

Tomorrow we are off to stay in an ecopod in a two acre wood. No electricity or wifi, cold mains water, composting toilet, wood burning stove. We thought we'd...

Tomorrow we are off to stay in an ecopod in a two acre wood. No electricity or ...

Rachael47

•6 years ago

12 Replies

Stoma explosion (literally!!!)

Well there we were driving down to collect our caravan for a nice weekend away to celebrate my 60th ( thank god I made it). I suddenly got some stomach pains...

Well there we were driving down to collect our caravan for a nice weekend away t...

Eriksendi

•6 years ago

28 Replies

2nd recurrence of ovarian cancer

I am 50 years old and found out Friday that my ovarian cancer has returned. My oncologist started me on carboplatin and Gemzar the next day. I’m on my 3rd...

I am 50 years old and found out Friday that my ovarian cancer has returned. My ...

buzz2016

•6 years ago

10 Replies

Afternoon tea.

The teachers I work with treated me to afternoon tea yesterday. They’re very good to me at work. A few of us went to a gin bar afterwards. Took my mind off...

The teachers I work with treated me to afternoon tea yesterday. They’re very go...

Suzanne333

•6 years ago

50 Replies

I didn’t ‘get it’

Hi lovelies I’ve not been on here much recently, busy living, working, holidaying and enjoying 14 months into 1st line NED. Ca125 was 12 last week, and...

Hi lovelies I’ve not been on here much recently, busy living, working, holidayin...

MH500

•6 years ago

23 Replies

Constipation

Hi . Any advise on constipation please, I am taking one movicol . And two ducolese . It doesn’t seem to be working . I’m drinking loads of water . Thank you...

Hi . Any advise on constipation please, I am taking one movicol . And two ducole...

Manchesterlady

•6 years ago

25 Replies

10 days post chemo

Well Thursday was fab day, called in at work, back to normal house work, all good stuff. Friday not too bad, shopping for christening outfit bit tired end of...

Well Thursday was fab day, called in at work, back to normal house work, all goo...

Samjane

•6 years ago

12 Replies

Has anyone out there been on Cisplatin with Etoposide??help!

Hello all you wonderful women out there... please can you help.. I have been suggested for my 4th round of chemo Cisplatin / Etoposide. I looked the registra...

Hello all you wonderful women out there... please can you help.. I have been sug...

Hopefulgal1

•6 years ago

11 Replies

SHOULD I have chemo for Stage1C2 Grade 1

I have been given the OPTION of carboplatin chemo for Stage1C Grade 1. I m NED . Before the op when the cyst was found following a fall and a CT scan. CA125...

I have been given the OPTION of carboplatin chemo for Stage1C Grade 1. I m NED ....

Bambi62

•6 years ago

5 Replies

Meet Barnie!!

Barnie is my new rescue boy who has come to us on a trial. I've always had dogs and lost my last one in November just at the end of my frontline treatment -...

Barnie is my new rescue boy who has come to us on a trial. I've always had dogs...

Eriksendi

•6 years ago

41 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for May 2018

An Update from Cyndie

Low platelets and neutrophils

Feet & Legs feeling swollen

Quick update on my special person ❤️❤️

Sue Ryder Nettlebed petition

Devastating news, anyone have a similar journey?

new to oc..

Good news and bad news again.

Husband trying to be supportive

Husband trying to be supportive

Sue Ryder Nettlebed

Osteoporosis as a consequence of ovca

Visitor

Stopping at number 5 ( out of 6)

When do you feel better

Round three.

Borderline tumour

Niraparib 8 months in - and an update from NICE

Update on fasting mimicking diet

Mothers day with family dinner😀

Down in the woods

Stoma explosion (literally!!!)

2nd recurrence of ovarian cancer

Afternoon tea.

I didn’t ‘get it’

Constipation

10 days post chemo

Has anyone out there been on Cisplatin with Etoposide??help!

SHOULD I have chemo for Stage1C2 Grade 1

Meet Barnie!!

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