Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,924 members • 28,250 posts

All posts for June 2018

Anti dsdna

Can you test positive and then negative on anti dsdna dna?

cathylou

•6 years ago

4 Replies

sun and heat is unbearable.

I live in the South and to say the least it’s hot. I dread the Summer, I try to stay in the air conditioning and only go out when I have no choice. I also...

I live in the South and to say the least it’s hot. I dread the Summer, I try to ...

Shadeseeker

•6 years ago

2 Replies

Hypersensitive veins

Hi, This is a bit of a weird question and most likely isn’t Lupus related but who knows. My whole life I’ve found blood tests extremely painful. I don’t...

Hi, This is a bit of a weird question and most likely isn’t Lupus related but w...

Jacbar

•6 years ago

4 Replies

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Letting it go

I was meant to attend my rheumy nurse appointment today . I got there to only be told it was cancelled . As expected I was very peed off about it. I am letting...

I was meant to attend my rheumy nurse appointment today . I got there to only be...

LouLamb

•6 years ago

3 Replies

No diagnosis yet

Just back from seeing GP to discuss letter from rheumatologist I have most of the lupus symptoms:- photosensitive rash, joint pain, mouth ulcers,...

Just back from seeing GP to discuss letter from rheumatologist I have most of ...

Raesik

•6 years ago

11 Replies

LUPUS EUROPE Word Cloud Competition

LUPUS EUROPE invite you to participate in their Summer 2018 word cloud competition! Design a word cloud about what "Kick Lupus" means to you and submit it by...

LUPUS EUROPE invite you to participate in their Summer 2018 word cloud competiti...

Paul_Howard

Partner•6 years ago

4 Replies

Why can't I see the replies to my latest post? HU says its from "hidden" but its from Happytulip!!

I can't see the replies to my latest post. HU is saying its hidden and has a padlock next to it. I'm no techno bod so if anyone can help I'd be very grateful!...

I can't see the replies to my latest post. HU is saying its hidden and has a pad...

happytulip

•6 years ago

7 Replies

Topic of the Month April/May - Coping with Side Effects

Hi everyone, Please accept my apologies for the lateness of this article - it has been a very busy time lately in the LUPUS UK offices. We've just published...

Hi everyone, Please accept my apologies for the lateness of this article - it ha...

Paul_Howard

Partner•6 years ago

4 Replies

What is the importance of increasing a dosage of Mycept from 1000mg to 1500mg daily?

Hi can anyone answer me this? I would like to ask why did I increase a dosage of mycept from 1000mg daily to 1500mg . My doctor advised me to take it 500mg 3x...

Hi can anyone answer me this? I would like to ask why did I increase a dosage of...

shaira

•6 years ago

5 Replies

Rituximab or Mycophenolate

Hi All, Do any of you have experience of Rituximab? I've found out today that my lupus/cerebral vasculitis is active again and they're looking to put me on...

Hi All, Do any of you have experience of Rituximab? I've found out today that m...

Lorska1

•6 years ago

8 Replies

7 mths in and still unknown answers

Recently got diagnosed and on meds but now I seem to have this horrible UTI that won't go away even while taking meds. I've seen plenty of my RA,...

Recently got diagnosed and on meds but now I seem to have this horrible UTI that...

merlyng12

•6 years ago

4 Replies

Finally

Hi everyone I haven't been in for awhile been dealing with trying to get a diagnosis. They main diagnosis was white matter disease. Now 3 doctors are saying...

Hi everyone I haven't been in for awhile been dealing with trying to get a diag...

I814u24u

•6 years ago

Be the first to reply

Stress is our worst enemy!

So a stressful situation had arisen at work, I won’t bore you with the details but I was finding it hard to deal with. I’ve been finding work quite hard and...

So a stressful situation had arisen at work, I won’t bore you with the details b...

lisa___s

•6 years ago

5 Replies

newly diagnosed with scleroderma

I’m wondering has anyone else on the forum been diagnosed with schleroderma ???

Sylviamoore42

•6 years ago

6 Replies

Glad to know

Hi everyone it was nice to see more people in Lincolnshire who are living with lupus For the last 6 years I've felt quite alone as family and friends find it...

Hi everyone it was nice to see more people in Lincolnshire who are living with l...

Jaspad68

•6 years ago

1 Reply

One for the ladies

Hi all I'm going on holiday and want to delay my period I have taken the hormone tablet years ago to prevent my period before lupus dx However 7 years into...

Hi all I'm going on holiday and want to delay my period I have taken the hormo...

poodlegal

•6 years ago

4 Replies

Problem undetected

I am feeling pain in my left lower belly from almost few months but it comes n go than one day i had motion n vomit i thought it is dyreha went to doctor he...

I am feeling pain in my left lower belly from almost few months but it comes n g...

Vajji

•6 years ago

1 Reply

Newly diagnosed SLE

Hi everyone. Just diagnosed and looking for answers and support. Be well everyone. Love and Light.

Hi everyone. Just diagnosed and looking for answers and support. Be well everyon...

Hidden

•6 years ago

6 Replies

Frustrated!

So mad at myself. 2-3 years of intermittent issues, neuro dismissive once it was confirmed not Ms. Bad issues arose April, gp did bloods, folate and one other...

So mad at myself. 2-3 years of intermittent issues, neuro dismissive once it was...

cathylou

•6 years ago

8 Replies

Double Treatment

Currently have Lupus and Luekimia diagnoses, my mother’s side of Family carry’s the gene. So I’ve been through so many treatments and medication I’m tired..

Currently have Lupus and Luekimia diagnoses, my mother’s side of Family carry’s ...

Kaysilva68

•6 years ago

4 Replies

Lincolnshire support groups

Hi everyone I was wondering if there are any support groups in the North of Lincolnshire that I could attend. I live between Louth & Market Rasen in the...

Hi everyone I was wondering if there are any support groups in the North of Lin...

Bakbre

•6 years ago

6 Replies

Today was the day for a long awaited appointment with a rheumatologist/dermatologist but it has been cancelled :-(

Oh well today after all is not the day for me to make progress. Have to wait until 4th July now! In a strange way I feel a little relieved as I don’t have to...

Oh well today after all is not the day for me to make progress. Have to wait un...

Lisalou19

•6 years ago

3 Replies

Identify the markings/ sores /rash

Hi,I am currently under testing for Lupus and have been since having my stroke a year ago at 44 years old. I have had intermittent symptoms of discoid lupus...

Hi,I am currently under testing for Lupus and have been since having my stroke a...

Kwarshel06

•6 years ago

2 Replies

Newbie

I was just diagnosed 2 weeks ago with lupus. Can you just have mild lupus with limited symptoms forever? It seems like everyone that has lupus gets worst over...

I was just diagnosed 2 weeks ago with lupus. Can you just have mild lupus with l...

Parker42

•6 years ago

10 Replies

Lupus & new diagnosis of Diabetes: uncontrolled blood glucose came on suddenly. Anyone else diabetic?

Hi folks, after years of blood tests where my blood glucose level was in the low 5s, I seem to have suddenly (over a few weeks) started with full blown...

Hi folks, after years of blood tests where my blood glucose level was in the low...

Sarah_H

•6 years ago

9 Replies

The poor people who suffer from this dredfull illness

Hello my name is Beverley and I have suffered with lupus for a long time when people look at you they think there is nothing wrong with them on the outside...

Hello my name is Beverley and I have suffered with lupus for a long time when pe...

Sussex12

•6 years ago

4 Replies

Rheumy appointment sidetracked

Aw well seen my rheumy today! Well everything got sidetracked today. I suffer with PTSD and panick attacks, as if there isn't enough going on with my body....

Aw well seen my rheumy today! Well everything got sidetracked today. I suffer w...

Bronn

•6 years ago

15 Replies

Anyone new from Pembrokeshire? Come along to our lovely support group. Saturday 16th June.

If there are any new members here from Pembrokeshire, please get in touch for full details of our next meeting. Our next meeting is at Crundale Village...

If there are any new members here from Pembrokeshire, please get in touch for ...

Wendy39

•6 years ago

8 Replies

Can you have a one-off lupus flare?

Hi. Last summer i had an autoimmune flare, with all the markers of SLE (raised CRP/ESR, sore and swollen joints, aching muscles, rashes, exhaustion, high ANA,...

Hi. Last summer i had an autoimmune flare, with all the markers of SLE (raised ...

KA100

•6 years ago

7 Replies

Uncertainty. One for the blokes.

Hi all. I had my first appointment today with a Consultant rheumy. After discussing a bit of history, a quick examination of lymph nodes ("I can't see them"...

Hi all. I had my first appointment today with a Consultant rheumy. After discuss...

JimCWalker

•6 years ago

5 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2018

Anti dsdna

sun and heat is unbearable.

Hypersensitive veins

Letting it go

No diagnosis yet

LUPUS EUROPE Word Cloud Competition

Why can't I see the replies to my latest post? HU says its from "hidden" but its from Happytulip!!

Topic of the Month April/May - Coping with Side Effects

What is the importance of increasing a dosage of Mycept from 1000mg to 1500mg daily?

Rituximab or Mycophenolate

7 mths in and still unknown answers

Finally

Stress is our worst enemy!

newly diagnosed with scleroderma

Glad to know

One for the ladies

Problem undetected

Newly diagnosed SLE

Frustrated!

Double Treatment

Lincolnshire support groups

Today was the day for a long awaited appointment with a rheumatologist/dermatologist but it has been cancelled :-(

Identify the markings/ sores /rash

Newbie

Lupus & new diagnosis of Diabetes: uncontrolled blood glucose came on suddenly. Anyone else diabetic?

The poor people who suffer from this dredfull illness

Rheumy appointment sidetracked

Anyone new from Pembrokeshire? Come along to our lovely support group. Saturday 16th June.

Can you have a one-off lupus flare?

Uncertainty. One for the blokes.

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Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

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