Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,894 members28,223 posts

All posts for June 2018

Lupus Friends? Norwich?

Hey, everyone, I'm Amie, I'm 25 and I was diagnosed after having to drop out of ...

Worries,from family

My step dad came home and said he had another appointment with lupus doctor in t...
DinkDink profile image

The therapy of saying "Hello" and telling my story. Wolf as strength not enemy, art as therapy, time for positive change, healing :)

Hi everyone, I am a mental health use who was diagnosed with Lupus (SLE) last mo...
Serser profile image
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HINTS

what seems to work for me 1.solotalol 2. steroids 3. cyclophosamide 4. plaquinel...

Update on ciclosporin eye drops

I had an appointment at the eye clinic yesterday, after taking ciclosporin for t...
creaky profile image

Dd is 20

My daughter is 20.. she is diagnosed with ASD and is in the process of her diagn...
Gailjam profile image

Ciclosporne and rheumatology update *

Hi, So I saw my rheumy nurse who has prescribed me 25mg of ciclosporne day and ...

Zenvita hydroxychloroquine

Today I tried to get my prescription for zenvita hydroxychloroquine and was tol...
Lucymay profile image

Just general question

Hi my name is Kathleen and wanted to link with others with lupus. I was diagnos...
tiactrpy profile image

Videos from the North Wales Lupus Information Day (12/05/2018)

On Saturday May 12th 2018, the North Wales Lupus Group hosted the LUPUS UK AGM a...

Exercising during a flare, what do you recommend?

Hi All, I was very recently diagnosed with subacute cutaneous lupus. Still confi...
Carolinep37 profile image

Weight gain and Lupus

Just wondering if anyone has had significant weight gain with Lupus. I really h...
Dreamva profile image

Help with diagnosis!

My psychological condition would be better if I could get a specific diagnosis. ...
Burns9624 profile image

Frustrated

I am new on here. Only diagnosis is autoimmune condition. By the time I get appt...
Burns9624 profile image

Do I have any options, single parent to 3, working part time and physically feel I can no longer cope with all this on top of illness

It’s very rare that I feel defeated, but today is one of those days. I feel unb...
Lisalou19 profile image

Nurse call 🙄

So I missed my call from the rheumy nurse today , she had rang me why I was at w...

Physio?

Has anyone here seen a physio for mobility issues? Did you need to find one with...
maye1 profile image

If it rains, it pours.

Diagnosed with UCTD in January. Moved into our first proper home in March. Fianc...
eescvc profile image

June's Topic of the Month - Starting a New Treatment (We want to hear your tips and experiences)

Continuing on from our last topic of the month (which you can read at https://ww...

Health

So I've only been diagnosed almost a year now and throughout the entire year I'v...

Shaking hands

Tried doing a little sewing the ither day and got so frustrated gave up. Wheneve...
Bronn profile image

Want to volunteer but worried about being unreliable

I was a busy person, worked, raised a family, volunteered. Now I'm stuck at home...
suemh2 profile image

Avascular Necrosis

Hi. I'm being checked out for AVN (hip). I have a long history of being prescrib...
suemh2 profile image

Rheumatoid Arthritis & Discoid Lupus ...

Hi everyone, hope you are all doing ok? I have had RA for 8 years and have rece...
RachelD1972 profile image

Ciclosporne, work, stress and tired 😭

Hi it’s me again, Sorry for ranting again I’m just going through a difficult fe...
imzi profile image

ESA

PIP Home visit 02/05/2018 Went well. ESA Assessement 09/06/2018,lasted 15 minute...

Depression

I’ve been feeling really low couple of months now, saw my Gp yesterday did a tes...
Tash1987 profile image

Am I crazy

It's so hard then people think your crazy I have both cases of flu this past yr ...

Depression

I’ve been feeling low and sad for a very long time, went to my Gp and I’ve been ...
Tash1987 profile image

Watsu water massage.

Has anyone had a watsu water massage. I have SLE, EDS and chronic pain. I've hea...
happytulip profile image