sun and heat is unbearable.

[Shadeseeker]

I live in the South and to say the least it’s hot. I dread the Summer, I try to stay in the air conditioning and only go out when I have no choice. I also carry a parasol and a hand fan every where I go. My friends snicker and ask me if I’m a Southern Bell, with may parasol and fan, I say no just a wilting Lilly.

The heat makes me weak and dizzy, almost sick but the Sun is even worse I can’t bear it, my eyes are so sensitive to it. I seek shade always and worry at the idea of ever being in a situation where I couldn’t get cool. I don’t visit family or friends because they don’t keep their home cool enough. I haven’t been diagnose with any condition, my doctor don’t have a clue, the has tested for what he thinks it might be but only thing we can pinpoint is I’m diabetic which makes it worse, I’ve alway been hot natured. I wish I could find a solution but until I do, I guess I’m a cool house cat at 68 degrees or less.

[Foss]

I know how you feel. I view the summer as the downward slope to lovely autumn and winter. My friends and family think I’m crazy.

Foss

[Chanpreet_Walia LUPUS UK]

Hi Shadeseeker,

Welcome to the LUPUS UK HealthUnlocked Community. We offer a free information pack which you can download at lupusuk.org.uk/request-info...

Light sensitivity in people with lupus is common. Many people with lupus experience a flare of their symptoms when exposed to sunlight. The most common symptom is for rashes to appear on the skin. Sensitivity to light can also cause lupus patients to develop a migraine, experience nausea or joint pains; joints can become tender to the touch and swollen. We published an article on our blog about coping with light sensitivity which you may like to read here: lupusuk.org.uk/coping-with-...

To find out how you can be tested for lupus, read our blog article ‘getting a diagnosis of lupus’ at lupusuk.org.uk/getting-diag...

SunSibility offer a range of UV protective products and clothing which you may wish to have a look at here: sunsibility.co.uk/

Please keep us updated, wishing you all the best.