Just back from seeing GP to discuss letter from rheumatologist
I have most of the lupus symptoms:- photosensitive rash, joint pain, mouth ulcers, palpitations, night sweats, sleeping problems, hair loss, positive lupus anti-coagulant.
However because my ANA is negative and anti-CCP negative she is not convinced it’s Lupus.
I have an appointment next week with renal specialist as my kidneys are losing potassium and she wants their opinion on things also.
Is this the usual pattern of events?
Does it generally take forever to get a diagnosis?
So fed up with all this