newly diagnosed with scleroderma

[Sylviamoore42]

I’m wondering has anyone else on the forum been diagnosed with schleroderma ???

[Hidden]

Not yet but I have my suspicions as I’m about to post. How are you feeling about this and are you aware that Scleroderma and Raynaud’s have their own community here so you can use both? X

[Sylviamoore42 in reply to Hidden]

My symtons have been progressive since i had bronchitis in 2016.

After my recovery i tried to get back running as i had before illness.

I noticed that my calf muscles were very painful and naturally thought this was because i was recovering.

This went on for months even when i was walking.

Month after month new symtoms developed. Sore feet, toes, ankles, kneez, elbows, wrist,fingers, jaw.

Swollen fingers and stiffness in the morning.

I choke easily, dry mouth, rashes and zwollen stomach are amounst some of the symtoms.

I feel like a woman of 90 and im only 46..

O forgot to mention fatigue.....

So im waiting to see my consultant and in the meantime suffering with this a.

It is driving me insane..

Yes they are testing me for raynauds. They have already tested my lungs and awaiting a heart scan

Thank you for replying

[Lupiknits]

Yes, but they are still a bit ? about this. I'm carrying on with treatment as before.

[Paul_Howard Partner LUPUS UK]

Hi Sylviamoore42 ,

If you'd like to chat to more people with scleroderma, I'd recommend that you also join the Scleroderma & Raynaud's UK (SRUK) community on HealthUnlocked at healthunlocked.com/sruk

[babyinny]

Sylvia I have Fybromyalgia for many years I was originally diagnosed with chronic fatigue syndrome after a process of eliminating all other diseases including MS, due to my ever changing pain and strange muscle sensations my GP advised Fybro and chronic fatigue are the same thing.I have suffered a lot of the symptoms you have over the years . I have been more recently been having a lot of dental issues were I have been suffering chronic burning in my mouth and toungue. I also had a lump removed from my gum. The lump unfortunately returned and after testing it was discovered it was scar tissue with a granuloma inflammation.I have to say my Dental Consultant has been amazing with his investigations .After numerous blood tests to investigate why this was happening I had an abnormal blood test returned suggesting I have crest syndrome.My GP has confirmed that my diagnosis will be confirmed at rheumatology but it is imminent .

I am out of my mind with worry I have been feeling dreadful over this last year and put it down to a terrible relapse of my chronic fatigue due to all the stress.I suffer dreadful muscle spasms in legs and all over really ,chronic muscle stiffening in my back and torso .

I now have to wait 3 months for rheumatology appointment and have been given no medication from my GP other than them wanting to throw anti depressent',s or dhiazapam .I am now wondering if I have always had crest syndrome and never been tested for it .I was glad to here your rheumatologist thinks your symptoms are coming from fybro as this gives me some hope .Although I do know I have other symptoms that are developing are apparently nearly always crest syndrome

[Sylviamoore42]

Thank u for the reply..

I have been started on hydroxychloriquine and amytriptiline.

I have seen abit of a difference in the last few weeks being on this treatment