Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,837 members • 28,177 posts

All posts for September 2017

Red small pin sized spots on side of tongue that burns

The soft palate in my mouth have become yellowish and i notice small red pin sized dots on the sides ( not tip) of my tongue. I have frequent sore throats and...

The soft palate in my mouth have become yellowish and i notice small red pin siz...

AnnieKhat

•7 years ago

2 Replies

Diagnosis dilemma what's in a name?

Well today I had my long awaited appointment with a professor at the University College Hospital London. Despite my ANA being raised and other blood tests...

Well today I had my long awaited appointment with a professor at the University ...

Pepysmum

•7 years ago

17 Replies

Heating

I dont have a diagnosis yet but its suspected that I have lupus (first appointment with the hospital in just over a week).. but my question today.. We finally...

I dont have a diagnosis yet but its suspected that I have lupus (first appointme...

Shaddix29

•7 years ago

4 Replies

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Vertigo

I finally see my Rheumatologist on 27th (I've been counting down the days like a child looking forward to Christmas!). I hope that I will have a diagnosis, so...

I finally see my Rheumatologist on 27th (I've been counting down the days like a...

MoyaP

•7 years ago

11 Replies

wetness

hi. I am just wondering if anyone has woken up to wetness after a night sleep. this is twice it has happened now. embarrassing and worrying. luckily got up in...

hi. I am just wondering if anyone has woken up to wetness after a night sleep. t...

Mandypandy1969

•7 years ago

17 Replies

No concrete diagnosis yet

Hello everyone, I new on here and I am in the process of possibly being diagnosed with lupus. When I was 15 I had a major spinal fusion and shortly after my...

Hello everyone, I new on here and I am in the process of possibly being diagnos...

Dressagequeen

•7 years ago

6 Replies

Rash

I have this rash or itch on my left side. It covers my whole left side and it's around where my bra sits. I dont know what it is. My boyfriend said it might be...

I have this rash or itch on my left side. It covers my whole left side and it's ...

Tipsy_gypsy

•7 years ago

5 Replies

Suicidal thoughts.

Does anyone here feel so overwhelmed by everything that is happening that you may not necessarily want to kill yourself (don't want to hurt the ones you love...

Does anyone here feel so overwhelmed by everything that is happening that you ma...

Kimbobaggins81

•7 years ago

16 Replies

A bad week

So this week has been a real tough week for me, tried not to get myself stress out with the lack of sleep and the pain I have been getting. Most days I have...

So this week has been a real tough week for me, tried not to get myself stress o...

Joanne1427

•7 years ago

5 Replies

Winter health

There is no one food or supplement that has been scientifically proven to improve immunity, there are certain foods and health practices that can give you a...

There is no one food or supplement that has been scientifically proven to improv...

Kevin53

•7 years ago

2 Replies

Didnt have a good night

Hello all Hope u all had a better sleep than i did. Couple of days ago i started feeling pain from my botton down my thighs. It get worse when i seat or if my...

Hello all Hope u all had a better sleep than i did. Couple of days ago i started...

ijeasike

•7 years ago

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My limbs keep falling asleep?!

Hello everyone, hope you are all having a lovely morning (: So, here's the thing... For the past nights, my limbs, especially my left arm and both legs, have...

Hello everyone, hope you are all having a lovely morning (: So, here's the thing...

MerB90

•7 years ago

10 Replies

I'm still me

This quote is something that I've had to read a lot recently, especially over the last few days and I just wanted to share it with everyone. Sometimes it's...

This quote is something that I've had to read a lot recently, especially over th...

Athens94

•7 years ago

5 Replies

Side effects

I've been taking hydroxychloroquine for about 2 months now and I'm starting to feel better with the Lupus but the side effects from the meds are starting to...

I've been taking hydroxychloroquine for about 2 months now and I'm starting to f...

JennaeClifford

•7 years ago

7 Replies

Athens birthday

When I was 15 and listened to the Beatles "when I'm 64", I used to smile. Still smiling and seeing the truth in the lyrics!! My wife has taken me to Athens. A...

When I was 15 and listened to the Beatles "when I'm 64", I used to smile. Still ...

Kevin53

•7 years ago

1 Reply

Infected gland stone

Hi, This is the second time in 5 months my gland has gotten infected because of a stone. Last time antibiotics have helped, but my doctor reluctantly gave me...

Hi, This is the second time in 5 months my gland has gotten infected because of ...

Jess_doyle

•7 years ago

3 Replies

Jaw Pain

My (left) jaw has been hurting for a couple days now. I didn't do anything to it. Just woke up Thursday morning to a dull, ache! I wish it'd stop. Not sure...

My (left) jaw has been hurting for a couple days now. I didn't do anything to i...

Meg03

•7 years ago

6 Replies

Biopsy on mole

I know this has nothing to do with lupus. But im having a biopsy on my back next week to remove a mole for suspected melanoma - Im very close to cancelling the...

I know this has nothing to do with lupus. But im having a biopsy on my back next...

Hidden

•7 years ago

9 Replies

Inactivity

Hi Just wanted to know if anyone finds their symptoms are worse when they are not being physically active? I'm not diagnosed yet but I have a very physical...

Hi Just wanted to know if anyone finds their symptoms are worse when they are n...

LLH76

•7 years ago

10 Replies

Weight gain

Since I was diagnosed with lupus sle and fibromyalgia I have initially lost a lot of weight but now I have gained so much weight and I am not even on steroids....

Since I was diagnosed with lupus sle and fibromyalgia I have initially lost a lo...

Tulipano

•7 years ago

2 Replies

Rheumatology feedback

I think some of us don't feel like we've had the best treatment from our rheumatology teams. Or maybe we think they're great. Either way, I have found a site...

I think some of us don't feel like we've had the best treatment from our rheumat...

RenaRos

•7 years ago

1 Reply

Blood blisters in mouth

Evening all, I really don't know what's happening to me at the moment, I seem to be going down hill. I had a scratchy sore throat yesterday some swelling...

Evening all, I really don't know what's happening to me at the moment, I seem ...

LauraMk30

•7 years ago

15 Replies

Nortriptalean

Help has anybody had odd side effects as I've posted I've had bad jelly legs for two weeks so on Sunday I thought I'll take nortriptalin as it was prescribed...

Help has anybody had odd side effects as I've posted I've had bad jelly legs for...

Ianrussell69

•7 years ago

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Facet joint injections OUCH!!

Back home after getting 4 facet joint injections under x-ray guidance. I had a sacroiliac injection in past but that was nothing compared to these ! I have a...

Back home after getting 4 facet joint injections under x-ray guidance. I had a s...

weathervane

•7 years ago

37 Replies

Disability Rights Report on PIP process

Disability Rights UK have just completed a report on the PIP process, which is free to read/download here (just follow the links):...

Disability Rights UK have just completed a report on the PIP process, which is f...

whisperit

•7 years ago

8 Replies

LOw

Ive had low white count for a couple of years now from Lupus. I am only on plaqunil and the rheumatologist says its from the autoimmune disease. Depressing. To...

Ive had low white count for a couple of years now from Lupus. I am only on plaqu...

jennyall12

•7 years ago

2 Replies

How has your medication regimen (plaq, steroids, etc) evolved over time?

I know many of you are tired and may be fatigued. However, I think it would be very helpful for me and others to get a sense of how the medicines you've taken...

I know many of you are tired and may be fatigued. However, I think it would be v...

NeelPNeelP

•7 years ago

1 Reply

Lupus and cataract surgery

My brother has been suffering from systemic lupus for 12 years. He developed aggressive cataracts this past summer and had both eyes operated on in August (2...

My brother has been suffering from systemic lupus for 12 years. He developed agg...

Jaxjen

•7 years ago

1 Reply

First post

Hello.. I have been battling with lupus for a few years, currently off work with a severe flare 🤢doing some research /reading to see if there is anything new...

Hello.. I have been battling with lupus for a few years, currently off work with...

Anjic

•7 years ago

1 Reply

Can anyone believe this??..I'm sure you can...

I have had my dx of Lupus(maybe discoid) BUT the rash and biopsy pathology look the same with Lupus and Dermamtomyasitis (DM) that nearly 3 WEEKS ago my Rheumy...

I have had my dx of Lupus(maybe discoid) BUT the rash and biopsy pathology look ...

leslieliesel

•7 years ago

1 Reply

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2017

Red small pin sized spots on side of tongue that burns

Diagnosis dilemma what's in a name?

Heating

Vertigo

wetness

No concrete diagnosis yet

Rash

Suicidal thoughts.

A bad week

Winter health

Didnt have a good night

My limbs keep falling asleep?!

I'm still me

Side effects

Athens birthday

Infected gland stone

Jaw Pain

Biopsy on mole

Inactivity

Weight gain

Rheumatology feedback

Blood blisters in mouth

Nortriptalean

Facet joint injections OUCH!!

Disability Rights Report on PIP process

LOw

How has your medication regimen (plaq, steroids, etc) evolved over time?

Lupus and cataract surgery

First post

Can anyone believe this??..I'm sure you can...

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