Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for September 2017

Worst pain ever 😭😭😭

Hey, I'm in bed, been crying for hours, I ate a small meal at my parents, maybe got a little to over confident & now I am paying the price. I've NEVER EVER...

Hey, I'm in bed, been crying for hours, I ate a small meal at my parents, mayb...

LauraMk30

•7 years ago

27 Replies

Sun sensitivity - in Australia

Just after people's tips for avoiding UV exposure - I've recently started having a fair bit of issues with it (just coming on spring now). Yesterday, I had...

Just after people's tips for avoiding UV exposure - I've recently started having...

bengali

•7 years ago

6 Replies

🙂driving

I passed my driving test with only 5 minors 🙂

LouLamb

•7 years ago

64 Replies

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Lupus & Lung Problems

I'm new to the forum. Have been in the process of reducing my meds, now taken for last 10 years -they are methotrexate, prednisolone and hydroxychloroquine,...

I'm new to the forum. Have been in the process of reducing my meds, now taken fo...

Florence91

•7 years ago

2 Replies

Sciatica with Lupus

I have really bad sciatica at the moment which has gone on for 4 weeks. I have had it in the past but never for so long or as bad. GP has increased my AMT,...

I have really bad sciatica at the moment which has gone on for 4 weeks. I have ...

kmuirhead

•7 years ago

9 Replies

Feeling so down

I am having lots of tests as I am newly diagnosed. I Am so scared and confused. Today I have called my lupus nurse and asked her if it was possible to see my...

I am having lots of tests as I am newly diagnosed. I Am so scared and confused....

Tulipano

•7 years ago

15 Replies

Dysentery anyone?? 😳

Sorry if this is a bit too much info but interested to see if anyone else has had similar and can give some advice. Wednesday night I went up to bed with my...

Sorry if this is a bit too much info but interested to see if anyone else has ha...

Mifford

•7 years ago

17 Replies

Shrinking lung syndrome

Is there anyone out there with experience of this? Was told on Weds after lots of test over a long time that this is where my lupus has got to! Have had SLE...

Is there anyone out there with experience of this? Was told on Weds after lots o...

Florence91

•7 years ago

12 Replies

Cold Feet

I have SLE lupus and my feet stay cold have been doing so for about a month now and if I sit to long my knees hurt any suggestions

I have SLE lupus and my feet stay cold have been doing so for about a month now ...

Nita40

•7 years ago

2 Replies

Azathioprine! Hints and tips!

Hi everyone! I'm about to be put on azathioprine after being diagnosed with lupus (7+ years). I have resisted so far but failed to keep my flares and symptoms...

Hi everyone! I'm about to be put on azathioprine after being diagnosed with lupu...

Kelihunt41

•7 years ago

4 Replies

?wrong diagnosis

For the past 10 years I was told I had SLE Lupus. Then end of last year after a blood test I was now told I had Rheumatoid arthritis . anybody else with this...

For the past 10 years I was told I had SLE Lupus. Then end of last year after a ...

kiwe

•7 years ago

7 Replies

Persistent dry cough - clear chest X-ray

Hello everyone I've had a persistent dry cough since the start of July approx. I went to my GP around 20th July and she said my chest was clear. Probably...

Hello everyone I've had a persistent dry cough since the start of July approx. ...

Wendy39

•7 years ago

34 Replies

New to the forum and wonder if I can pick your brains...

Hi there! I'm not going to go into a whole history of ailments as I'm sure you've all heard it all before. However, there are a couple of things that I'd...

Hi there! I'm not going to go into a whole history of ailments as I'm sure you'v...

Lula76

•7 years ago

46 Replies

Ouch My Lips 👄

Good morning my lovelies, I haven't posted a picture yet of my lip blister & the poor condition. It's quite embarrassing, but I wanted to show you just how...

Good morning my lovelies, I haven't posted a picture yet of my lip blister & t...

LauraMk30

•7 years ago

8 Replies

Waiting for ANA results

I'm 46 and have been having spells of unwellness throughout my life. At 18 I was in hospital for weeks with HSP & ongoing kidney issues which got better in...

I'm 46 and have been having spells of unwellness throughout my life. At 18 I was...

MariaK71

•7 years ago

3 Replies

Feet on fire

Hi has anybody else ever experienced sore feet that are swollen and feel like they are burning? My feet are so sore and my skin is peeling terribly.

Hi has anybody else ever experienced sore feet that are swollen and feel like th...

Nickyt79

•7 years ago

3 Replies

Lupus patient

Hi I'm new to this site I live in Halifax and just wondering if anyone in Halifax has been diagnosed with lupus and also needs to talk about things seen as...

Hi I'm new to this site I live in Halifax and just wondering if anyone in Halifa...

alisoncrowther

•7 years ago

17 Replies

Mtcd

Thank you for letting me join this group Iam 36 year old female I was diagnosed with Mtcd in Nov 2016 after a long battle with fatigue , joint pain and anemia...

Thank you for letting me join this group Iam 36 year old female I was diagnosed...

Prima2008

•7 years ago

16 Replies

Hydroxychloraquin

Hi all, I have been on hydroxy for two days. Yesterday and today I have been frozen. Hot water bottle in bed last night and in the day today. I have had a...

Hi all, I have been on hydroxy for two days. Yesterday and today I have been fro...

Mandypandy1969

•7 years ago

22 Replies

Upper resp infection

I was sick a few weeks with post nasal drip / tired and then Boom got really sick last Friday - chills etc. It was horrible. I got some antibiotics and a round...

I was sick a few weeks with post nasal drip / tired and then Boom got really sic...

jennyall12

•7 years ago

3 Replies

Back and shoulder pain.

Has anyone ever gone through what am going through at the moment? Was diagnosed of SLE in July this year. Been on hydroxylcholoroquinne and prednisone. My...

Has anyone ever gone through what am going through at the moment? Was diagnosed...

Adah

•7 years ago

2 Replies

Heartburn and chest pain that just won't go away

Hi all me again .Let me again thank you all for all the support on this forum since I joined the past couple of months . As the title says I have been having...

Hi all me again .Let me again thank you all for all the support on this forum si...

Ryanmac84

•7 years ago

9 Replies

vertigo

hiya. I had an inner ear infection which causes vertigo when I was in my early 20's. I was off work a long time. I am wondering if past illnesses can be an...

hiya. I had an inner ear infection which causes vertigo when I was in my early 2...

Mandypandy1969

•7 years ago

7 Replies

Lupus v Thyroid cancer

Hi there, I am a 50 year old male recently diagnosed with nephrotic lupus SLE. I have nephrotic syndrome which is only settling down from February. I still...

Hi there, I am a 50 year old male recently diagnosed with nephrotic lupus SLE. I...

Sylviamoore42

•7 years ago

6 Replies

Saying goodbye

There is no community for sarcoidosis or CTD , and as I now have confirmation I do not have Lupus, I am saying goodby to you all. Thank you for your help, your...

There is no community for sarcoidosis or CTD , and as I now have confirmation I ...

Pepysmum

•7 years ago

12 Replies

Belimumab?

HI all, i have been on rituximab for the past 2 years for lupus nephritis, but im still leaking protein. I have seen my rheumatologist today and she is going...

HI all, i have been on rituximab for the past 2 years for lupus nephritis, but i...

Rach459

•7 years ago

7 Replies

Information about newly diagnosed tests

Saw my consultant today. I am newly diagnosed and my esr was highly raised and my ana was negative. She does think I have lupus because of my symptoms and esr...

Saw my consultant today. I am newly diagnosed and my esr was highly raised and m...

Tulipano

•7 years ago

4 Replies

29th driving lesson

Picked up from work . Was a relief as I was so tried I don't think I could have walked to the bus stop home . I just did driving no manoeuvres today which was...

Picked up from work . Was a relief as I was so tried I don't think I could have ...

LouLamb

•7 years ago

17 Replies

Oral Ulcers

Hey, I've been in bed for a few days, I literally have no energy & feel wiped out. I spoke to my GP today about my reoccurring blood blisters in my mouth &...

Hey, I've been in bed for a few days, I literally have no energy & feel wiped ...

LauraMk30

•7 years ago

13 Replies

Appeal process again

I got my letter on Thursday saying that PIP turned down my mandatory reconsideration . The comments they wrote made me so angry . When I get home later I'll...

I got my letter on Thursday saying that PIP turned down my mandatory reconsidera...

LouLamb

•7 years ago

23 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2017

Worst pain ever 😭😭😭

Sun sensitivity - in Australia

🙂driving

Lupus & Lung Problems

Sciatica with Lupus

Feeling so down

Dysentery anyone?? 😳

Shrinking lung syndrome

Cold Feet

Azathioprine! Hints and tips!

?wrong diagnosis

Persistent dry cough - clear chest X-ray

New to the forum and wonder if I can pick your brains...

Ouch My Lips 👄

Waiting for ANA results

Feet on fire

Lupus patient

Mtcd

Hydroxychloraquin

Upper resp infection

Back and shoulder pain.

Heartburn and chest pain that just won't go away

vertigo

Lupus v Thyroid cancer

Saying goodbye

Belimumab?

Information about newly diagnosed tests

29th driving lesson

Oral Ulcers

Appeal process again

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