Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,743 members • 28,102 posts

All posts for September 2017

very confused..

As you all know im going to see dr kaul at the london bridge lupus centre the end of this month. Well i have requested a letter and old bloods from my nhs...

As you all know im going to see dr kaul at the london bridge lupus centre the en...

•7 years ago

Does anyone with Lupus ever feel well all day?

I have, like a lot you, Lupus Sjrogrens, fibromyalgia, osteoarthritis, osteoporosis and nerve damage. I never feel well for a full day. Is this normal? x

I have, like a lot you, Lupus Sjrogrens, fibromyalgia, osteoarthritis, osteoporo...

•7 years ago

Holiday in October

My forms was handed in yesterday at work for the holiday . My holidays already been booked I received my passport on Thursday . My Aunty brought me a suitcase...

My forms was handed in yesterday at work for the holiday . My holidays already b...

•7 years ago

Want to take advantage of all our features? Just log in!

or

Why isn't my rash coming out to play? HELP!

I love this forum, it seems very popular and helpful. Next week will be my 3rd attempt at getting a skin biopsy. After the 1st the dermo requested that I came...

I love this forum, it seems very popular and helpful. Next week will be my 3rd a...

•7 years ago

Can you develop an allergic reaction to meds after taking them for a while?

My go told me yesterday that the "bites" i have so many of aren't, they're an allergy to something. She's given me an antihistamine. Asked me if I'd been near...

My go told me yesterday that the "bites" i have so many of aren't, they're an al...

•7 years ago

Positive ANA result 8+

Hi I am new here I feel alone with my symptoms and want to talk to people with similar issues. I have had raynauds for 5 years but I have never had it...

Hi I am new here I feel alone with my symptoms and want to talk to people with s...

•7 years ago

Lupus

Hi, I got diagnosed in September 2016 (I didn't even know they were testing me for it) and have a count of 83(?). Just had my follow up and consultant thinks...

Hi, I got diagnosed in September 2016 (I didn't even know they were testing me f...

•7 years ago

Iron Infusions???

My GI Dr called today to tell me I will be having iron infusions. I've noticed some of you are having infusions, would this be iron infusions??? I know...

My GI Dr called today to tell me I will be having iron infusions. I've noticed ...

•7 years ago

In the process of being diagnosed with lupas

I have had some very weird things happening to me and I really don't know anyone with lupas, so if you have lupas tell me if you have these symptoms as well. I...

I have had some very weird things happening to me and I really don't know anyone...

•7 years ago

Constant pain and swelling in arms...

Hi all, I am currently waiting for a rheumatology appointment as they want to look into autoimmune disorder. Apart from lots of other symptoms I have constant...

Hi all, I am currently waiting for a rheumatology appointment as they want to lo...

•7 years ago

New to this

USA- Just diagnosed w/ Lupus @age 76 Appt.next week Boston Beth Israel-Deaconess hospital lupus clinic. But hear the best clinics are Sheba Med, Israel &...

USA- Just diagnosed w/ Lupus @age 76 Appt.next week Boston Beth Israel-Deaconess...

•7 years ago

COPD

I have numerous inhalets for my condition which dont seem to help me in hot weather any suggestions please

I have numerous inhalets for my condition which dont seem to help me in hot weat...

•7 years ago

Trial of Nifedipine for Raynaud's

Results: 1. Bright red face and shins 2. Tendancy to topple over 3. Cold hands and feet ( but red nose) Thoughts: not worth it just for a warm nose. Winter...

Results: 1. Bright red face and shins 2. Tendancy to topple over 3. Cold hands a...

•7 years ago

2nd Brain MRI this morning

I had my 2nd brain MRI this morning. So glad it's over. MRIs are bad enough but with the head they put this "cage" for want of a better word over your head...

I had my 2nd brain MRI this morning. So glad it's over. MRIs are bad enough bu...

•7 years ago

Not even a professional weakling

This time last year, I was a member of no less than THREE (count 'em!) professional registers. Today, I got my automated email advising me that my membership...

This time last year, I was a member of no less than THREE (count 'em!) professio...

•7 years ago

August's Topic of the Month - Studying with Lupus

Our blog article for August about studying with lupus has now been published. http://www.lupusuk.org.uk/studying-with-lupus/ Thank you so much to everybody who...

Our blog article for August about studying with lupus has now been published. ht...

Partner•7 years ago

Be the first to reply

Lymphoma?

I've just seen Rheumy yesterday and it's the first time he's ever mentioned in 5yrs that I'm at increased risk of lymphoma. I'm useless when they just randomly...

I've just seen Rheumy yesterday and it's the first time he's ever mentioned in 5...

•7 years ago

1
...
7
8