Vertigo

[MoyaP]

I finally see my Rheumatologist on 27th (I've been counting down the days like a child looking forward to Christmas!). I hope that I will have a diagnosis, so that I can move on with my life. I have had issues with vertigo in the past and was diagnosed with BPPV. Has anyone else had any problems of this nature? I wondered if it could be linked to possible Lupus.

Thank you

[Ryanmac84]

Is this your first time with a rheumatologist ?I am attending a first appointment with one myself on the 25th. .What things will you be asking etc if you don't mind me asking

[MoyaP in reply to Ryanmac84]

Hi there. No, this is my third appointment. My first appointment was a bit of a non-starters as the Rheumatologist didn't have my bloods from when I was in hospital. The second appointment she said that there was a possibility that I may have Lupus due to my symptoms, e.g. hair loss, fatigue, joint pain etc. and it is in my family. I was told that I needed lots of bloods taken and getting a diagnosis could take a long time. I have now had loads of bloods and am awaiting the outcome.

[willybear]

Hi. I too am suffering from balance problems especially if I am walking down a hill or when the ground is wet I feel like I am going to tumble over. My GP doesn't know what is causing it (says it is nothing to do with Lupus) so I have been referred to Neurology which has a very long waiting list. I am really struggling with it as I have lost my confidence to go out on my own. I hope you will get a most positive outcome. Good luck!

[MoyaP in reply to willybear]

I understand how long it can take to see a neurologist. I was quite lucky as I saw one whist I was in hospital and he tested me for MS. It was this that then led him to refer me to a Rheumatologist who mentioned Lupus. I hope that you get answers soon and that you also get your confidence back.

[willybear in reply to MoyaP]

Thank you and you too. Take care.

[misty14]

Good luck Moyà for your all important appointment!. Let us know how it goes. Hope you get your diagnosis!. X

[MoyaP in reply to misty14]

Thank you misty. I'm trying not to pin all my hopes on this meeting but the not knowing why I feel the way I do is one of the hardest things I have had to deal with. I know that non of us would wish a chronic illness on ourselves but understanding why our bodies are behaving the way they are, at least gives us something to work with.

[misty14 in reply to MoyaP]

Hi Moyà

I know exactly how you feel. You reach stage of needing a positive test to gain recognition, enable treatment and to feel better especially if you've been struggling a long time!. Best of luck, I hope it works out well for you. Your right not to pin your hopes up too much as the disappointment can be huge!. Fingers crossed. X

[Dalilatm]

Hi,

I've had lupus for almost 20 years and I've not suffered from vertigo. However, every lupus is different as the immunological system can attack any part of our body and we all usually react differently to it. It's very important to have a reumy with lupus experience when diagnosed, or for getting a diagnosis.

Also, remember that it can be like a "package". E.g: lupus plus vasculitis, Sjögren's, and pericarditis. Etc. So, it's your doctor who can get a proper diagnosis.

Best of luck!

[MoyaP in reply to Dalilatm]

Thank you for taking time to reply.

[Mystik]

Yeah I have vertigo on and off keep doing the exercises n meds nothing else works for me