Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,743 members • 28,102 posts

All posts for September 2017

Been back in hospital

I got a call from rumi about having high white cell count in my bloods told them I've just walked out of Doctor's and I had a uti all good I thought then about...

I got a call from rumi about having high white cell count in my bloods told them...

Ianrussell69

•7 years ago

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T1 diabetes and Lupus

Hi just wondering if anyone with Lupus has also been a t1 diabetic and if so what are your symptoms like and how do you cope? Does the lupus affect your blood...

Hi just wondering if anyone with Lupus has also been a t1 diabetic and if so wha...

Lorrainec2

•7 years ago

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Rest

I may ask a silly question but how important it is to rest and sleep when not feeling well?I constantly feel guilty when I do.

I may ask a silly question but how important it is to rest and sleep when not fe...

Tulipano

•7 years ago

10 Replies

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vasculitis?

I don't have the results for my 2nd lupus anticoagulant test and i'm going a bit mad. been waiting since end of August! i worry test is positive and doc has...

I don't have the results for my 2nd lupus anticoagulant test and i'm going a bit...

Thereisalight

•7 years ago

8 Replies

A bit more detail of symptoms in last few months progressing(more less in order)

Twitching Spasms on body Cold patches on skin Muscle weakness and aches and spasms Hand weakness and shakes Pain in palms of hands Pain soles of feet Cold...

Twitching Spasms on body Cold patches on skin Muscle weakness and aches and spas...

Domi1041

•7 years ago

4 Replies

Scalp pain

Together with eye and ear pain I also get lots of scalp pain. Feels like a nerve pulling pain. Is it normal or I should be worried?

Together with eye and ear pain I also get lots of scalp pain. Feels like a nerve...

Tulipano

•7 years ago

10 Replies

HELP!!!!

Further to a post I made a few weeks ago regarding my daughter's health, we have recently had the results of some blood tests which state that she is severely...

Further to a post I made a few weeks ago regarding my daughter's health, we have...

JoBriggs

•7 years ago

7 Replies

Feeling a bit lost and confused...

Hi everyone, this is my first post here. As the title says I’m feeling a bit confused at the moment, and I’m hoping someone can shed some light on my situation...

Hi everyone, this is my first post here. As the title says I’m feeling a bit con...

Makimon

•7 years ago

20 Replies

Suspected lupus

Hello everyone!i have been diagnosed with hypothyroidism about 3 years ago which was triggered by hashimotos! I have been feeling very unwel and strange for...

Hello everyone!i have been diagnosed with hypothyroidism about 3 years ago which...

Domi1041

•7 years ago

2 Replies

New research to set up a Biobank focusing on autoimmune inflammatory diseases

This has just been posted on the VasculitisUK forum - I thought you would like to hear about it too: https://www.gla.ac.uk/news/headline_550441_en.html

This has just been posted on the VasculitisUK forum - I thought you would like t...

PMRpro

•7 years ago

4 Replies

Sleeping is a nightmare

I've always had a tendency to sleep paralysis - that thing where your body switches off before sleep but your consciousness hangs around in the bedroom,...

I've always had a tendency to sleep paralysis - that thing where your body switc...

whisperit

•7 years ago

30 Replies

Feeling dizzy. Headache and blocked ear.

Could not sleep all night. Terrible headache that I felt like screaming in pain. Woke up feeling dizzy and my right ear is blocked even my right eye is sore. I...

Could not sleep all night. Terrible headache that I felt like screaming in pain....

Tulipano

•7 years ago

1 Reply

Vitamin D deficiency

Hi! I have visited another doctor to consult about my condition. Actually I don't really have a "serious" symptomps. The problem that bothers me the most is...

Hi! I have visited another doctor to consult about my condition. Actually I don'...

Babymilo

•7 years ago

9 Replies

"ONLY" Lupus

When I found out I had Lupus I said..But I'm too old!! I am 62. I started this journey this past August (Terrible Rash..had biopsy and ana panel))...My test...

When I found out I had Lupus I said..But I'm too old!! I am 62. I started this j...

leslieliesel

•7 years ago

3 Replies

Bladder issues

Hi all not been on here for a while fell like I been in a constant flare this year, I now have too self catheritise myself 2/4 times a day due to chronic...

Hi all not been on here for a while fell like I been in a constant flare this ye...

jvspeed

•7 years ago

4 Replies

Pain management

I’m not having a good day today. Pain and stiffness has been overwhelming this afternoon, so I just had to lie down. I’ve called in sick for work tomorrow,...

I’m not having a good day today. Pain and stiffness has been overwhelming this a...

Rubylu

•7 years ago

4 Replies

Feeling light headed and weak

I feel so light headed and weak today. 😭 I could sleep all day

Tulipano

•7 years ago

1 Reply

Aching joints

Hi. I had one of my hands seize up. I couldn't move my fingers. I took naproxen for a couple of days and eventually the stiffness and pain subsided. I also...

Hi. I had one of my hands seize up. I couldn't move my fingers. I took naproxen ...

Mandypandy1969

•7 years ago

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"so that means I have lupus then?!"

Sorry to just jump in but I am shaken up as found out I may have lupus in the worst way. Sorry this is long. Earlier this year I had a blood test which showed...

Sorry to just jump in but I am shaken up as found out I may have lupus in the wo...

Hidden

•7 years ago

7 Replies

Hand joint pain/stiffness - flare or not?

Hello all! I have SLE Lupus and two weeks ago I started experiencing moderate pain/stiffness in my finger joints with blisters on my fingers so it seemed to...

Hello all! I have SLE Lupus and two weeks ago I started experiencing moderate p...

elohcin

•7 years ago

2 Replies

Shifting pain !!🙄

I had 4 facet joint injections last Friday week and so far i can get out of the chair without much pain so great progress !! As always there is a but !! I now...

I had 4 facet joint injections last Friday week and so far i can get out of the ...

weathervane

•7 years ago

6 Replies

Going too often

I just began my Journey about a month ago..I am on Hydox(???) Malaria dr=ug and low does pprednisine for my horrible Rash...Does anyone else feel that they are...

I just began my Journey about a month ago..I am on Hydox(???) Malaria dr=ug and ...

leslieliesel

•7 years ago

8 Replies

Discoid lupus?

Worried. My daughter just had a spot show on her upper neck. She said it was a pimple. Now it looks like a pink spot with a darker pink ring around it. Its...

Worried. My daughter just had a spot show on her upper neck. She said it was a ...

Natura

•7 years ago

15 Replies

A Quiet Day in the Pharmacy

Just a happy moment: The place I collect my meds from is part of the building my GP practice is located in. The practice is, of course, closed on Saturdays...

Just a happy moment: The place I collect my meds from is part of the building m...

Lupiknits

•7 years ago

3 Replies

Aussie1956

61yo. Female. Diagnosed " Juvenile Arthritis" age 5. Health problems during teenager years. Late 20's diagnosed MCTD. 30's brought SLE, Sjogren's Syndrome,...

61yo. Female. Diagnosed " Juvenile Arthritis" age 5. Health problems during tee...

shonabrown1956

•7 years ago

13 Replies

Advice please??

Has anyone ever had mottled legs like this just wandering why they could be this bad they feel so tired, heavy and painful. I do have livedo rectilarius. Many...

Has anyone ever had mottled legs like this just wandering why they could be this...

Karen1983

•7 years ago

10 Replies

Stomach issues

Hello everyone, I feel so tired but on top I feel so nauseas and weak. I also have tremors. My stomach is very sore too. 😭

Hello everyone, I feel so tired but on top I feel so nauseas and weak. I also ha...

Tulipano

•7 years ago

6 Replies

PTSD and lupus

Just read this via Lupus UK Facebook feed: http://www.dailymail.co.uk/health/article-4900794/PTSD-increases-risk-lupus.html Feeling such gut wrenching anger....

Just read this via Lupus UK Facebook feed: http://www.dailymail.co.uk/health/art...

Hidden

•7 years ago

16 Replies

PHOTO

Can anyone tell me if this looks like Lupus rash, its not very big but it itches sometimes. Any feedback would be helpful.

Can anyone tell me if this looks like Lupus rash, its not very big but it itches...

tas69

•7 years ago

7 Replies

Worried about my Hubby

Hi everyone, 1st of all forgive my ignorance on this illness if at any point I sound silly! My Husband has been suffering with severe joint pain & fatigue for...

Hi everyone, 1st of all forgive my ignorance on this illness if at any point I s...

Traceydc

•7 years ago

21 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2017

Been back in hospital

T1 diabetes and Lupus

Rest

vasculitis?

A bit more detail of symptoms in last few months progressing(more less in order)

Scalp pain

HELP!!!!

Feeling a bit lost and confused...

Suspected lupus

New research to set up a Biobank focusing on autoimmune inflammatory diseases

Sleeping is a nightmare

Feeling dizzy. Headache and blocked ear.

Vitamin D deficiency

"ONLY" Lupus

Bladder issues

Pain management

Feeling light headed and weak

Aching joints

"so that means I have lupus then?!"

Hand joint pain/stiffness - flare or not?

Shifting pain !!🙄

Going too often

Discoid lupus?

A Quiet Day in the Pharmacy

Aussie1956

Advice please??

Stomach issues

PTSD and lupus

PHOTO

Worried about my Hubby

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