I've always had a tendency to sleep paralysis - that thing where your body switches off before sleep but your consciousness hangs around in the bedroom, imagining all kinds of creepy things are happening around your paralysed body.
I have no difficulties relaxing but unfortunately, my sleep has increasingly become nothing but a string of sleep paralysis episodes, interspersed by wakefulness while I try to calm down from the nightmare and tell myself it's safe to go back to sleep again! During daylight hours I am frequently mistaken for an extra from The Waking Dead. So I would be very grateful for advice.
It was worst over the last Xmas period, and my rheumy (re-) started me on amitriptyline. I went up to 30mg, but came down to 20mg as 30 was making me so sleepy during the day I could not function. Overall, this had some good effect, but not enough (I have been getting maybe 2 hours of proper sleep a night). When I saw him again 6 weeks ago, he suggested adding gabapentine. I haven't tried it yet, as I have no significant pain and don't really want to throw another med into the mix. When I described my problem to my neurologist, he said I should drop the amitriptyline as it might be contributing to the problem and start a SSRI instead. I have similar reservations about that.
For the last week I reduced my amitriptyline to 10mg, but things have deteriorated. Last night I seemed to spend several hours immobilised in bed with some sort of vampire lying beside me (it was a pillow). For light relief, I was chased around the corridors of a mental hospital by nurses with syringes filled with yellow liquid.
Any thoughts about whether I should persist with the reduced amitriptyline or return to 20mg? Could further reducing my prednisolone (from 4mg) be helpful? Any other ideas?
Thank you! x