Suspected lupus : Hello everyone!i have been... - LUPUS UK

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Suspected lupus

Domi1041 profile image
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Hello everyone!i have been diagnosed with hypothyroidism about 3 years ago which was triggered by hashimotos! I have been feeling very unwel and strange for last few months and symptoms getting progressively worse and more being added to the list daily!!!an few examples are ...electric shocks over body,feels like I've had injections in arms,aches ,pains especially in hands and feet ,extremely fatigued...memory and concentration poor, numbness,tingling,dry hands and feet,ect ect! I've had various blood test and the most recent I tested weak positive for nuclear anti body's and smooth muscle tissue antibodys and also hep2 status abnormal with a comment (cytoplasmic) but strangely my compliment 3 is high and compliment 4 borderline low!?!everytbing I've been looking up is pointing towards lupus and or autoimmune hepatitis!any ideas can anyone help??also what does NK ST1 mean on blood results status??also getting tinnitus more and more frequently!

Thank you

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Domi1041
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Domi1041 profile image
Domi1041

I am 27 in the Royal Navy and am being downgraded at work which won't change anything g for me just means I won't be sent away !i have to wait until December for Neurologist appointment and feel some days I should t be here!will I be medically discharged if I have lupus as well as hashimotos and hypothyroidism??i want to leave anyway but wondered if medical discharge would be an option !

MissFG profile image
MissFG

Hi I have Hashimotos Lupus and myositis. Tbh I think I had Lupus before Hashimotos but was diagnosed with hypothyroidism first. And I now have myositis also.

I think it's a case of which came first the chicken or the egg? Who knows we just have to be glad when we finally get a diagnosis, which takes time and receive treatment in the hope we can get all our autoimmune diseases under control and managed.

So many of our symptoms overlap and are similar it's a process of tests and eliminations to get to a diagnosis. However treatment should and is required even before that based on various tests and symptoms.

Can you go off sick I know since my diagnosis in January 2016 I've been unable to work and it now looks like I'll be on long term sick until all 3 are managed effectively.

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