Advice please??

[Karen1983]

Has anyone ever had mottled legs like this just wandering why they could be this bad they feel so tired, heavy and painful. I do have livedo rectilarius.

Many thanks

[happytulip]

My legs look just like that. I've been told its livedo reticularis. It can worsen with a change in the weather. Its worse in the cold with me.

[Hidden in reply to happytulip]

Yes me too.

[Sara_A]

Yes it looks like the livedo reticularis, I have this too. Maybe the pain and heavy feeling is from the sluggish blood flow ( I think that's what I've read somewhere?!)

Have u got aps?

[misty14]

Hi Karen

My legs,arms and hands have it too. It's livedo reticular is as others have said, can be more prominent in a flare!. Your certainly not alone Karen!. Do you take circulation treatment?. X

[Catlady56]

Yes I get this too

[Lupiknits]

Another one here.

[Karen1983]

Thank you all for your replies I was tested for aps antibodies but didn't show up. Do you think that can change? As tests was over a year ago. I will show consultant my pics on next review. I'm not currently taking an circulation medication. Really appreciate your help. Keep well everyone x

[Hidden in reply to Karen1983]

I was tested too and nothing showed up for Hughes but I think it can be a seronegative - certain this is what I was told oh the APS HU community. It lists Livedo reticularis on my diagnosis's - I think I asked about this once and the rheum just said it's common threesome with Sjögren's and hypothyroidism - thicker blood. I tried aspirin but it made my nose bleeds worse.

[Sara_A in reply to Karen1983]

Yes as far as im aware the antibodies can change so it may be a good idea for them to recheck it esp if u are symptomatic

[Hidden in reply to Sara_A]

Thanks. Yes I am certainly very symptomatic of Hughes so will definitely ask at my next consultation in December. All my autoantibodies were negative when tested 2 years ago so got the brush off - although I was on maintenance dose of Prednisolone when tested. Then, six months later off steroids etc - my ANA showed up clear positive and high IgG, inflammation etc so was offered lip biopsy and bingo!

Twitchy