Going too often

[leslieliesel]

I just began my Journey about a month ago..I am on Hydox(???) Malaria dr=ug and low does pprednisine for my horrible Rash...Does anyone else feel that they are emptying their bladder way to often?? I feel like I drink less than I void...thanks you

[LittleBrownBear]

Hi leslieliesel

I was put on the hydroxychlorquine (400mg a day) and also the prednisolone (starting at 20mg a day, now on 5 mg every 2 days) back in June. I was exactly the same, peeing like a race horse and at its worst, every 20 minutes, if not worse. This did calm down after a few weeks, although at the time I was so worried and obviously it also made driving to work and being at work even more difficult. I had some advice that it's the steroids making your body eject everything but I don't know if this is the truth! So try not to worry and it will pass x by the way, I feel only now that I am starting to feel the benefit of the medication, it takes time, hang on in there!

[leslieliesel in reply to LittleBrownBear]

Thank You LittleBrownBear....it does help to know that I am not alone, and it will ease up!! xx

[LittleBrownBear in reply to leslieliesel]

No problem. Sorry I wasn't as eloquent as you lol x x

[leslieliesel]

HAHAHAHAHAH I wanted to say pee also!!!

[Anjic]

Hi leslieliesel

I am on the Hydroxychloroquine (or the h bomb pill as I call it) and recently had to have a short course of prednisolone as I had a flare.. I have pee'd for england morning noon and night.. I drive an hour too and from work which made life interesting! No chatting in the corridor for me once I landed at my desk.. straight into the ladies, I visit people in their homes and this has now ensured I know every cafe / pub and public loo on my patch.. (those that I do use and those that I avoid)

The night time expeditions to the bathroom are hard as we need all the sleep/ rest we can get.. but I'm up 2/3 times every night, most annoying!

it is hard to manage all that this condition can throw at you on a daily basis but I'm still going to work when I can, I'm finding my quirky sense of humour helps..

I am back at work full time this week - popping to the loo as I need to, finally feeling like my old self and saying a thank you that I'm over this flare..

I'm reducing the steroids now and hopefully the production of pee will decrease but don't you give in, and don't give up.. it always gets better eventually (well so far for me it has) I hope it will for you too..

as an alternative job I had thought I could do a study in local loo's in Dorset, kind of like a guide to where's a good pee spot and where's not.. its amazing where your thoughts can take you while sitting on the throne..

I wish you well and hope you feel better soon x🌻

[leslieliesel]

HaHaHa..You Do have a great sense of Humor ...and thank you for letting me know that peeing is part of the deal!!......I had great news today..I "only" have Lupus!! I was being tested for Dermatomyotositis(Spelling??) Overlap w/Lupus.... any how, after a months wait, all of my test results are NEGATIVE!!...So now to focus on Lupus...funny how not having both conditions, feels like having "just" Lupus, is doable ....

[Anjic in reply to leslieliesel]

You have to sing this in the key of just one cornetto (old ice cream add)

Just one condition.. give it to me.. delicious medication from the pharmacy..

the pills and doctors words ..give me a potion from rheum-a-tol-ogy

Bless you .. you have had a tough time

It's always hard dealing with all the what ifs ...but you know what you got to deal with now.. and I'm sure you will face it square on and learn to live with its limitations and find positives every day.. always here if you need to let off steam 🌻

[leslieliesel]

Thank You... xo