Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,729 members • 28,088 posts

All posts for May 2017

Heat or sun causing more pain

Not sure if it's the lupus or arthirits but I did hear sun An heat is good for arthirits but the past few days since we have had the nice weather my legs knees...

Not sure if it's the lupus or arthirits but I did hear sun An heat is good for a...

Hidden

•7 years ago

12 Replies

New Supermoon Last night - Is this just me

This is so strange but I have noticed my symptoms and pain/flares get SO much worse around a new or Full moon, last night was a supermoon and I am in a laid up...

This is so strange but I have noticed my symptoms and pain/flares get SO much wo...

riannabri

•7 years ago

9 Replies

PIP assessment :/

So... told them about a change of circumstances a month ago, just been told a re assessment is required, really scared and worried 😕 It's even been on the...

So... told them about a change of circumstances a month ago, just been told a re...

Anyac81

•7 years ago

3 Replies

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14th Driving Lesson

Driving lesson was alright today . Some good parts some bad parts . I spoke to him about the test . His going away for 10 days at the start of August . He said...

Driving lesson was alright today . Some good parts some bad parts . I spoke to h...

LouLamb

•7 years ago

11 Replies

Sorting it all out

Hello....sorry to moan but...... I am feeling more than normally fed up today. Every time I think I might be winning Something pops up to tell me I'm not. I...

Hello....sorry to moan but...... I am feeling more than normally fed up today. E...

bones-bones

•7 years ago

6 Replies

Visit to GP and her views on pain

I'll say it again. Changing GP practice is looking like one of the best decisions I've made. I had a follow up today after a GP prescribed an extra butrans...

I'll say it again. Changing GP practice is looking like one of the best decision...

Lupiknits

•7 years ago

7 Replies

And so my saga continues.......

I saw my GP yesterday to discuss my new diagnosis and treatment plan, following my appointment with Dr K at the London Bridge Lupus Centre. She never...

I saw my GP yesterday to discuss my new diagnosis and treatment plan, following ...

Wendy39

•7 years ago

32 Replies

Nose Bleeds

Hey all I have been up all night and had three nose bleeds that have taken a while to stop. I am on Tinzaparin injections to thin my blood and reduce my blood...

Hey all I have been up all night and had three nose bleeds that have taken a wh...

LSurtees

•7 years ago

4 Replies

Faithnhm

This may sound strange, but sometimes I have a wet feeling in my back, has anyone else experience this?

This may sound strange, but sometimes I have a wet feeling in my back, has anyo...

faithnhm333

•7 years ago

4 Replies

Methotrexate

Been on methotrexate for aboutique two years now I was on 20 mg by injection but over the last month I have been having crampsome in my stomach so I have come...

Been on methotrexate for aboutique two years now I was on 20 mg by injection but...

diane46

•7 years ago

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Meds for chronic fatigue

I've been in bed for about 3 yrs now. I can barely get up to brush my teeth I'm so exhausted! I have lupus, fibromyalgia, chronic pain, severe DDD (bone on...

I've been in bed for about 3 yrs now. I can barely get up to brush my teeth I'm ...

Cynthiabydesign405

•7 years ago

8 Replies

Sunshine

Had a result at work found out your allowed to wear shorts !!! Love wearing shorts before I got raynaurds I use to wear shorts all year round . Sadly I...

Had a result at work found out your allowed to wear shorts !!! Love wearing shor...

LouLamb

•7 years ago

18 Replies

Burning scalp

Is a hot red burning scalp a symptom of lupus...... It's been a few days now and very painful.... No itching , just red burning and hot to touch.... Some hair...

Is a hot red burning scalp a symptom of lupus...... It's been a few days now and...

MagsaTrini

•7 years ago

19 Replies

Does anyone get this?

Hi, does anyone get swollen ankles and feet with a rash? The rash can go up my leg just under my knee, in my thighs and in my arms.

Hi, does anyone get swollen ankles and feet with a rash? The rash can go up my l...

Tinkerjack1912

•7 years ago

13 Replies

World Lupus day report of survey of Lupus patients experience of living with Lupus

Thanks Lupus UK for being involved in producing this "Lupus knows no boundaries report" Here are some links to the report ......

Thanks Lupus UK for being involved in producing this "Lupus knows no boundaries ...

fabwheelie

•7 years ago

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Migraine woe

Hi all, Finished my trial of prednisolone 4 days ago and am now having major migraine issues. I had 3 yesterday - all with aura - and now have a banging...

Hi all, Finished my trial of prednisolone 4 days ago and am now having major mi...

Nurseladybird

•7 years ago

5 Replies

Child hair loss

When I went to put sun cream on my daughter's neck (she's 10 next month), I lifted her plait up I noticed a bald patch. It's completely smooth, no bad skin or...

When I went to put sun cream on my daughter's neck (she's 10 next month), I lift...

Nikki246

•7 years ago

6 Replies

New Symptoms

Hi this is to all my friends out there with Lupus. Please can I ask if any of you suffer with sharp chest pains shooting across your chest that prevent you...

Hi this is to all my friends out there with Lupus. Please can I ask if any of yo...

ShadowSky

•7 years ago

13 Replies

Regular tests?

Hi! I'm really new here and was just hoping for some advice! I recently went to my GP with a rash I've had on my hands on/off for about 2 years now (maybe...

Hi! I'm really new here and was just hoping for some advice! I recently went to...

mangotea

•7 years ago

8 Replies

Sjogrens specialists Sussex

Hi guys, for those of you who suffer with Sjogrens and are based in Sussex, who do you see and what are your views about your specialist? My current...

Hi guys, for those of you who suffer with Sjogrens and are based in Sussex, who ...

Purpletop

•7 years ago

10 Replies

Weakness

Hi everyone I was diagnosed with sle about five years ago. Everything has been going as well as it can until a month ago when my legs started to feel week and...

Hi everyone I was diagnosed with sle about five years ago. Everything has been g...

gillian-51

•7 years ago

12 Replies

To anyone suffering from Lupus or still waiting to be diagnosed. My truth about Aspartame.

This is my first post on this site. I am not a medical professional but simply a patient that has been suffering over the last 3 years from an array of...

This is my first post on this site. I am not a medical professional but simply a...

Hidden

•7 years ago

17 Replies

Back from my gp

Hi everybody, thank for all your supports. I'm back from my gp and he advice me to consult my gp instead because of my allergy to so many anti inflammatory and...

Hi everybody, thank for all your supports. I'm back from my gp and he advice me ...

pascalelupus

•7 years ago

2 Replies

A few words of advice/encouragement please. Possible Lupus/MCTD/vasculitis.

Hello everyone. I would appreciate some input regarding my questionable (still between rheumatologist/dermatologist) diagnosis of Lupus/ MCTD/Vasculitis....

Hello everyone. I would appreciate some input regarding my questionable (still ...

Minnskimoo

•7 years ago

17 Replies

Reviewing for Pharmacy Licensure exam

Hi, i am currently having my review for my upcoming licensure exam. I have been diagnosed with SLE when i was still 18, and i survived my degree with mild...

Hi, i am currently having my review for my upcoming licensure exam. I have been ...

Kay_elyn

•7 years ago

8 Replies

Mental health and the Immune system

I don't know if any of you saw this on the TV last night, but apparently, scientists have proven what we autoimmunees have been saying for years. Depression,...

I don't know if any of you saw this on the TV last night, but apparently, scient...

Georgie-girl

•7 years ago

8 Replies

undiagnosed Lupus

hi can anyone tell me if they have trouble maintaining their zinc levels even with taking zinc supplements and if so is this one of the problems of Lupus ?...

hi can anyone tell me if they have trouble maintaining their zinc levels even wi...

pammy1

•7 years ago

4 Replies

Help..please.

I am wandering around my house at a snails pace today. Don't know what to do and would love some advice if anyone has time. Am in so much pain that I don't...

I am wandering around my house at a snails pace today. Don't know what to do and...

puffyface

•7 years ago

16 Replies

Acute back pain

Hi everybody, Hope u all ok. Here in Mauritius winter is already there. I'm suffering from acute upper back pain, can't see it but my daughter and husband told...

Hi everybody, Hope u all ok. Here in Mauritius winter is already there. I'm suff...

pascalelupus

•7 years ago

10 Replies

Mother of a child that died from Lupus

I am just entering this site. My daughter died on October 16, 2016 from complications associated from Lupus. I am trying to live day by day with this horrible...

I am just entering this site. My daughter died on October 16, 2016 from complic...

Amy_Mahler

•7 years ago

13 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2017

Heat or sun causing more pain

New Supermoon Last night - Is this just me

PIP assessment :/

14th Driving Lesson

Sorting it all out

Visit to GP and her views on pain

And so my saga continues.......

Nose Bleeds

Faithnhm

Methotrexate

Meds for chronic fatigue

Sunshine

Burning scalp

Does anyone get this?

World Lupus day report of survey of Lupus patients experience of living with Lupus

Migraine woe

Child hair loss

New Symptoms

Regular tests?

Sjogrens specialists Sussex

Weakness

To anyone suffering from Lupus or still waiting to be diagnosed. My truth about Aspartame.

Back from my gp

A few words of advice/encouragement please. Possible Lupus/MCTD/vasculitis.

Reviewing for Pharmacy Licensure exam

Mental health and the Immune system

undiagnosed Lupus

Help..please.

Acute back pain

Mother of a child that died from Lupus

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