Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for May 2017

Finally out of hospital

Hi all Firstly, thank you for all your kind words and thoughts. I haven't been on for a while and just being discharged from hospital after 4 weeks. Prognosis...

Hi all Firstly, thank you for all your kind words and thoughts. I haven't been o...

LSurtees

•7 years ago

4 Replies

From DLA awarded indefinitely to 8 points in total on new PIP assement

I didn't appear in pain or fatigued. How do you look tired ? I looked well ain't that the case with LUPUS. Apparently I communicated adequately.... but the...

I didn't appear in pain or fatigued. How do you look tired ? I looked well ain't...

Butterflies-23

•7 years ago

10 Replies

Faithnhm

Hello everyone, has anyone had low potassium level with lupus?

faithnhm333

•7 years ago

6 Replies

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Fear of lupus diagnosis

Im new with lupus UK -i would love some encouraging words- i had a positive ANA about 3 years ago after seeing my regular doc for painful swollen finger...

Im new with lupus UK -i would love some encouraging words- i had a positive ANA ...

Lannsutt

•7 years ago

8 Replies

GP recommendations in Trafford /Stockport areas of Manchester anyone?

Hi. I'm expecting to move to Manchester later this year and I'm getting a bit nervous about finding a knowledgable, helpful GP who listens etc. Not sure...

Hi. I'm expecting to move to Manchester later this year and I'm getting a bit ne...

Poppyfields65

•7 years ago

2 Replies

So far diagnosed as UCTD

Everything points at Lupus but I am lacking the ANA numbers. I was put on the antimalarial drugs and I seem to feel better. Atleast no flares. But, I am having...

Everything points at Lupus but I am lacking the ANA numbers. I was put on the an...

LucyK5821

•7 years ago

4 Replies

Diagnosis

Can anyone advise how to get diagnosed? Lupus has been mentioned to me over and over by various experts but never officially diagnosed. As time has gone by...

Can anyone advise how to get diagnosed? Lupus has been mentioned to me over and ...

Tinkerjack1912

•7 years ago

6 Replies

Sneezing, runny nose only in warm sun?

I've had this symptom for a number of years. Never really asked my doctor about it. Now my daughter (19 years old) gets it too. I've tried many different...

I've had this symptom for a number of years. Never really asked my doctor about ...

Lara4228

•7 years ago

3 Replies

Prednisolone, coated v's non-coated

Hi everyone, just recently been diagnosed with Lupus and have been on Prednisolone for a few months, my pharmacist insisted I get a prescription for coated,...

Hi everyone, just recently been diagnosed with Lupus and have been on Prednisolo...

Leesy

•7 years ago

11 Replies

London lupus centre

Can anyone recommend specific doctors at the London Lupus centre and if you have your blood results from the GP can they reach a diagnosis in the first visit...

Can anyone recommend specific doctors at the London Lupus centre and if you have...

jimbo1605

•7 years ago

12 Replies

ldh test result

im new.my sister ws tested ldh and results where 230--460 the other one ws >300.i dnt wats that

im new.my sister ws tested ldh and results where 230--460 the other one ws >300....

mchindowa

•7 years ago

3 Replies

Symptoms

Hi I'm new to the site I was under the hospital for 12 months with Lupus symptoms But blood tests kept coming back negative and in February this year they...

Hi I'm new to the site I was under the hospital for 12 months with Lupus symptom...

Margo1949

•7 years ago

3 Replies

I have a name for the bones that hurt most!

I get strange looks when saying my "bum bones" are the most painful. Car rides and virtually every chair makes me wince, as well as lying on my back. Ischeal...

I get strange looks when saying my "bum bones" are the most painful. Car rides a...

Lupiknits

•7 years ago

16 Replies

New to this forum

Hi I've been diagnosed with complex autoimmune disease over a year ago, undifferentiated though. Been so poorly. I recently woke up covered in terrible itchy...

Hi I've been diagnosed with complex autoimmune disease over a year ago, undiffer...

Wolf1

•7 years ago

19 Replies

Waiting for my first appointment with Rheumatologist

Good morning. I'm new here and don't as yet have a diagnosis. I first went to my gp in March with multiple joint pain. I've had blood tests but tested...

Good morning. I'm new here and don't as yet have a diagnosis. I first went to m...

Atomheart

•7 years ago

2 Replies

Lupus anemia annoying

Why does lupus cause anemia?

jensen_lynne

•7 years ago

9 Replies

Tooth surgery

Got my pre op letter for the 1st June . I got my appointment on the 22nd June to have the surgery . Hopefully after June no more painful tooth ache !!

Got my pre op letter for the 1st June . I got my appointment on the 22nd June to...

LouLamb

•7 years ago

4 Replies

Had tears with laughter today at rumi appointment

Went for follow up appointment today went through all the up and downs as you do ,asked for methatrexate injection instead of tabs due to fealing crappy after...

Went for follow up appointment today went through all the up and downs as you do...

Ianrussell69

•7 years ago

3 Replies

Lupus

Hello I wonder if I could get some advice ? My mother has has SLE for the past 40 years, she has suffered a lot and still is. Lots of different treatment has...

Hello I wonder if I could get some advice ? My mother has has SLE for the past 4...

Jackiesteve

•7 years ago

8 Replies

Useful rheumatology appointment today

My rheumatologist was especially attentive today and came up with a useful plan. This goes a long way to feeling like someone's got the safety net in case I...

My rheumatologist was especially attentive today and came up with a useful plan....

Rubylu

•7 years ago

6 Replies

Useful rheumatology appointment today

My rheumatologist was especially attentive today and came up with a useful plan. This goes a long way to feeling like someone's got the safety net in case I...

My rheumatologist was especially attentive today and came up with a useful plan....

Rubylu

•7 years ago

2 Replies

World Auto Immune Arthritis day ... Race starts 20th May Lupus UK have a "team" please get involved on social media

http://www.worldautoimmunearthritisday.org/ #WAAD17 will be putting the "AUTO" in "AUTO"immune/"AUTO"inflammatory Arthritis in this MAJOR online social media...

http://www.worldautoimmunearthritisday.org/ #WAAD17 will be putting the "AUTO" ...

fabwheelie

•7 years ago

5 Replies

I got to London and Back. Yippee!

Yesterday was important because my son had been nominated for a rather splendid award in his profession and wanted mum to be there. Over the weekend I had a...

Yesterday was important because my son had been nominated for a rather splendid ...

Lupiknits

•7 years ago

14 Replies

Lupus UK post yesterday on Face Book - Researches say lupus sufferers should get their heart valves checked.

Just incase any of you missed this Lupus UK post on Face Book yesterday....

Wendy39

•7 years ago

8 Replies

Bad Feeling with Hydroxychloroquin

Hi there Haven't been on for a while. I am on a range of tablets, one of them being Hydroxychloroquinand have been on this since I was diagnosed with...

Hi there Haven't been on for a while. I am on a range of tablets, one of them ...

Bakbre

•7 years ago

5 Replies

HELP !

My wife went from normal to near bed bound, headaches severe pain, breathlessness at the slightest movement and cant work. We have been through respiratory,...

My wife went from normal to near bed bound, headaches severe pain, breathlessnes...

jimbo1605

•7 years ago

13 Replies

Old chickenpox scars itchy

I am new to this site. I have had lupus, sjogrens, fibro my alia for 20 + years. I was very interested in the comment about itchy old chickenpox or measles...

I am new to this site. I have had lupus, sjogrens, fibro my alia for 20 + years....

Bb24

•7 years ago

3 Replies

SLEEP!!!!

Hey all. Well rough week. Feel like I could sleep for a week! So tired and got no energy. Going to pop those pills and hopefully feel better. Happy health all...

Hey all. Well rough week. Feel like I could sleep for a week! So tired and got ...

Clairebear

•7 years ago

2 Replies

suggestions please

hi i m suffering from lupus from last three years .morning sickness,pain in feet and hands. and always in a stress condition. i m also forgetting each and...

hi i m suffering from lupus from last three years .morning sickness,pain in fe...

Zarick

•7 years ago

4 Replies

Almost there!!!

Hello my wonderful friends, I am almost on cloud 9 ( arse is killing me 😂😂😂 - Just come back from seeing Dr T and he's thinks it could be CTD so he's given...

Hello my wonderful friends, I am almost on cloud 9 ( arse is killing me 😂😂😂 -...

Charliebear68

•7 years ago

13 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2017

Finally out of hospital

From DLA awarded indefinitely to 8 points in total on new PIP assement

Faithnhm

Fear of lupus diagnosis

GP recommendations in Trafford /Stockport areas of Manchester anyone?

So far diagnosed as UCTD

Diagnosis

Sneezing, runny nose only in warm sun?

Prednisolone, coated v's non-coated

London lupus centre

ldh test result

Symptoms

I have a name for the bones that hurt most!

New to this forum

Waiting for my first appointment with Rheumatologist

Lupus anemia annoying

Tooth surgery

Had tears with laughter today at rumi appointment

Lupus

Useful rheumatology appointment today

Useful rheumatology appointment today

World Auto Immune Arthritis day ... Race starts 20th May Lupus UK have a "team" please get involved on social media

I got to London and Back. Yippee!

Lupus UK post yesterday on Face Book - Researches say lupus sufferers should get their heart valves checked.

Bad Feeling with Hydroxychloroquin

HELP !

Old chickenpox scars itchy

SLEEP!!!!

suggestions please

Almost there!!!

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