Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,731 members • 28,089 posts

All posts for May 2017

11th Driving Lesson

Woke up today in less pain . So decided to have the driving lesson . Afterwards my shoulder was hurting. At least now I know I'd be able to drive during a...

Woke up today in less pain . So decided to have the driving lesson . Afterwards ...

•7 years ago

Prednisolone diary - May

I've been on prednisolone for almost exactly a year now. In that time, I've developed severe daily episodes of sweating, tachycardia, nausea and shaking. Even...

I've been on prednisolone for almost exactly a year now. In that time, I've deve...

•7 years ago

ESA,JSA,Doctors notes plus DLA to PIP!

Hi everyone,im Andrew,ive had lupus from 16,im now 40.ive been in between ESA and JSA a few times,a nightmare trying to sort it,i have a letter from my...

Hi everyone,im Andrew,ive had lupus from 16,im now 40.ive been in between ESA an...

•7 years ago

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Loss of smell

Does anyone attribute loss of the ability to smell some things? I have to breathe deeply to smell some things. And then some things, I dont smell. I smell all...

Does anyone attribute loss of the ability to smell some things? I have to breath...

•7 years ago

I'm back !!!

Well it's been a very long time since I've been on here. I've had lupus since I was 16. (39 now). Been through lots of ups and down, different meds to see...

Well it's been a very long time since I've been on here. I've had lupus since I ...

•7 years ago

April's Topic of the Month - Coping with Oral and Nasal Ulcers

Our blog article for April about coping with oral and nasal ulcers has now been published. http://www.lupusuk.org.uk/coping-with-oral-and-nasal-ulcers/ Thank...

Our blog article for April about coping with oral and nasal ulcers has now been ...

Partner•7 years ago

Mouth ulcers now...

Have developed ulcers over the last day. Not the first time, but the first time I realized they could be tied into anything else, had been told years ago that...

Have developed ulcers over the last day. Not the first time, but the first time...

•7 years ago

im back

hi all, I've been away, last time i was on here i mentioned that i stopped all meds cold turkey thats only because they kept going back and forth if i had...

hi all, I've been away, last time i was on here i mentioned that i stopped all m...

•7 years ago

Sore tongue

Hello My daughter is nearly 5 years old, since 8 months ago her tongue frequently started getting different symptoms... some times get ulcers, some times get...

Hello My daughter is nearly 5 years old, since 8 months ago her tongue frequentl...

•7 years ago

Med advice, I'm scared.

I've waited four months to see this new rhumetologist and he wants to put me on Lyrica for the pain but I've heard really awful things about it. I'm really...

I've waited four months to see this new rhumetologist and he wants to put me on ...

•7 years ago

Anyone else had this ?

The only thing that has changed for me is that I started hydroxy on Saturday . I feel worse than I did this morning . Looks like no hope for change tomorrow ....

The only thing that has changed for me is that I started hydroxy on Saturday . I...

•7 years ago

Nervous about upcoming trip to London

On May 18th I'm travelling to London for a rather important event. I'm going there and back in a day, by train, on my own. With my 1/3rd disability discount I...

On May 18th I'm travelling to London for a rather important event. I'm going the...

•7 years ago

Still feeling awesome.

Hey all!! :) sorry its been so long with keeping in touch. Just wanted to say I am still doing great, actually even better now that I've chosen this vegetarian...

Hey all!! :) sorry its been so long with keeping in touch. Just wanted to say I ...

•7 years ago

Starting hydroxychloroquine

So i have finally been given the go ahead to start hydroxy (been waiting 6 months) has anyone got any advice for me/ what to expect please Many thanks

So i have finally been given the go ahead to start hydroxy (been waiting 6 month...

•7 years ago

Terrible

Didn't go to work today . In so much pain all over . Haven't been this bad since before I knew had lupus and arthritis . I feel bruised every where . Hoping a...

Didn't go to work today . In so much pain all over . Haven't been this bad since...

•7 years ago

Fed up

Hi been a while . so fed up this week I have found a lump on my boob went to the Docters getting referred as soon as. But during appointment I asked for some...

Hi been a while . so fed up this week I have found a lump on my boob went to the...

•7 years ago

LupusandLeukemia

Saw a post asking if anyone has both Lupus and Leukemia. I do. My twinsister has Lupus. My doctors suspected Lupus when I was younger. I was never formally...

Saw a post asking if anyone has both Lupus and Leukemia. I do. My twinsister has...

rachaelandRebekah

•7 years ago

Could I have Lupus? Any advice greatly appreciated!

Hi all. I'm 35 & was born with Raynaunds. I was told as a child I have hypermobility & too much collegan. When I wass 18 my left hand pinky & ring finger...

Hi all. I'm 35 & was born with Raynaunds. I was told as a child I have hypermobi...

•7 years ago

Help advice please

After a visit to my gp I had bloods taken she explained that they were looking for antibodies , 6 small bottles of blood nearly fainted 😂 . Can someone tell...

After a visit to my gp I had bloods taken she explained that they were looking f...

•7 years ago

Advice on what's happening to my thumb?

I have MCTD, diagnosed in 2011. About three years ago, I started getting pain at the end of my thumb. It felt like I had a splinter. After me poking and...

I have MCTD, diagnosed in 2011. About three years ago, I started getting pain at...

•7 years ago

Knee effusion

Somewhat annoyingly my knee is swelling again. Despite having an aspiration of it 11 days ago,plus a steroid in injection , I had an awful night with it last...

Somewhat annoyingly my knee is swelling again. Despite having an aspiration of i...

•7 years ago

Pip running out

Hi, my pup claim comes to a end august/2017. 🙁I was awarded with great difficulty applying twice then finally I appealed and was awarded for three years. I'm...

Hi, my pup claim comes to a end august/2017. 🙁I was awarded with great difficul...

•7 years ago

Tendons

Anyone developed a ' trigger finger' whilst in early stages of lupus?

Anyone developed a ' trigger finger' whilst in early stages of lupus?

•7 years ago

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