Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for September 2015

Ruth

Hi there Diagnosed with lupus 3 months ago . Seeing rheumy next month . Started with raised rash all over my legs and diagnosis followed that with blood tests...

Hi there Diagnosed with lupus 3 months ago . Seeing rheumy next month . Started...

Newwine

•9 years ago

6 Replies

new to lupus

Hi there I will try to keep this short I have been suffering for some years with painful swelling in my joints, extreme sun sensitivity, rashes, stiffness,...

Hi there I will try to keep this short I have been suffering for some years with...

pollymum40

•9 years ago

13 Replies

Update on my daughters rheumy appoitment

Well that was a roller coaster we arrived and his first words to her was why are you here well that did it my normally very controlled articulate daughter...

Well that was a roller coaster we arrived and his first words to her was why are...

Rush2112

•9 years ago

6 Replies

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Autoimmune Disease or not?

Hello, I’ve just joined this forum as am looking for some much needed advice and support. I have been given a provisional diagnosis of autoimmune disease by...

Hello, I’ve just joined this forum as am looking for some much needed advice an...

KGipp

•9 years ago

21 Replies

ANA ELISA Test

Hello everybody, I recently got an ANA test done and the test was negative, but the highlighted part in the picture I posted doesn't make sense to me. I tried...

Hello everybody, I recently got an ANA test done and the test was negative, but...

MCrumpette615

•9 years ago

5 Replies

Waiting times?

Hi all, I have just found out that apparently pain consultant has left dept.so all appointments cancelled. Just great Not! They wrote to my gp ,obviously...

Hi all, I have just found out that apparently pain consultant has left dept.so a...

littleeffie

•9 years ago

3 Replies

Highly Sensitive

If everyone could watch this movie tomorrow night, maybe some or all will identify the link between highly sensitive people, and automimmune disease. Was...

If everyone could watch this movie tomorrow night, maybe some or all will identi...

Natura

•9 years ago

17 Replies

Dismissed by two doctors, could this be Lupus?

Hi :) Where to start... I am a 40 year old mom of two who has felt stupidly tired on and off over the last few years. My kids aren't young so it's not...

Hi :) Where to start... I am a 40 year old mom of two who has felt stupidly ti...

Tricia1974

•9 years ago

3 Replies

Thoughts please on my list of symptoms

I am new here and so far undiagnosed. I am just feeling my way in this surreal medical world. This is going to be a long post so if someone can bear with me...

I am new here and so far undiagnosed. I am just feeling my way in this surreal m...

Hidden

•9 years ago

14 Replies

Feel so rotten

Hi I am after any hints/tips etc. Have been on methotrexate for about 6 weeks now, seem to be tolerating it Ok. Feeling a bot nauseous and tired for a few...

Hi I am after any hints/tips etc. Have been on methotrexate for about 6 weeks ...

tjperfick

•9 years ago

4 Replies

Aquagenic Pruritus

I think I have this! I've noticed after a shower I've suffered intense itching/burning/crawling sensation in my skin after a shower. I be used soap-free...

I think I have this! I've noticed after a shower I've suffered intense itching/b...

ADXLC

•9 years ago

17 Replies

Wet sensation on my knee

Hi all I no this may sound strange but for the last few days I have felt like my knee is wet all the time every time I check it is bone dry have even changed...

Hi all I no this may sound strange but for the last few days I have felt like m...

jerseyrose

•9 years ago

15 Replies

Exercise....how to do it without having to spend the next two days in bed...thoughts?

Before I got sick I used to swim, golf, ski and play backyard hockey. Now if I just "lillydip" in the water for more than 20 minutes, I can't move and...

Before I got sick I used to swim, golf, ski and play backyard hockey. Now if ...

Hockeymom12

•9 years ago

4 Replies

Claiming PIPTo replace DLA

Hello fellow lupus sufferers. I have been on Disability Living Allowance awarded for life in 2006, and unfortunately for me I have to apply for PIP because of...

Hello fellow lupus sufferers. I have been on Disability Living Allowance awarded...

SusanGriff

•9 years ago

6 Replies

Oh dear!

Had larangeal(?) ulcers a few weeks ago. No known cause. Saw gp who listened to my chest and said my left side was a little bit crackly and I was a bit...

Had larangeal(?) ulcers a few weeks ago. No known cause. Saw gp who listened to ...

Hidden

•9 years ago

9 Replies

Fasting

Hello everyone I would love to hear your fasting experiences as I've recently read an interesting article in The Times. It was by a lady with an auto- immune...

Hello everyone I would love to hear your fasting experiences as I've recently re...

misty14

•9 years ago

14 Replies

Bloating with lupus

Does lupus cause bloating?

Lupus00

•9 years ago

12 Replies

Research looking at experiences of partners of those with chronic pain

Hi all, My name is Laura Smith and I am a trainee clinical psychologist. I’m conducting some research as part of my thesis and was hoping you could help. I’m...

Hi all, My name is Laura Smith and I am a trainee clinical psychologist. I’m co...

smith_smithl4

•9 years ago

3 Replies

Clip in Hair Extensions

I have - or HAD - really full, thick hair. It looks thick now because most people don't really comprehend what mixed race hair is like, and assume because it's...

I have - or HAD - really full, thick hair. It looks thick now because most peopl...

Silvergilt

•9 years ago

18 Replies

More apnoea stuff

Right, well I just had my appointment; and I struggled to stay awake during it so that in and of itself certainly was an indicator. True to form, he said 'You...

Right, well I just had my appointment; and I struggled to stay awake during it s...

Silvergilt

•9 years ago

9 Replies

Azathioprine tabs

Hello guys. Just an update. I started off on the 25mg azathioprine. Had blood tests ones a week for 6 weeks and there was no change. They then put the dose up...

Hello guys. Just an update. I started off on the 25mg azathioprine. Had blood te...

blondie22

•9 years ago

18 Replies

Chronic Hoarseness

I've had three bouts of hoarseness in the last two months. I saw my rheumatologist yesterday and he says he doesn't know if it's related or not to the lupus. I...

I've had three bouts of hoarseness in the last two months. I saw my rheumatologi...

nanleighh

•9 years ago

14 Replies

reducing immunosuppressants...

Hi all, I got the great news today that as I am in remission I can start reducing my dose of MMF after 2 years of taking it. I wondered if anyone else has...

Hi all, I got the great news today that as I am in remission I can start reducin...

Heights69

•9 years ago

3 Replies

Hello everyone

Hi everyone I am new to this forum as it was only recommended to me today. As horrible as it sounds, it is nice to know that I am not the only person who is...

Hi everyone I am new to this forum as it was only recommended to me today. As h...

Jess8989

•9 years ago

3 Replies

So this happened today......

Had appointment with rhumey today put me on a couple of new meds for stomach and bone agitation and upped all the previous for a 4 week period till I see the...

Had appointment with rhumey today put me on a couple of new meds for stomach and...

Squeeshy

•9 years ago

3 Replies

Pip tribunal

Has anyone ever been to a tribunal for pip award and been successful?.I have a date in October and really worried about it.,as I wasn't awarded my appeal,I...

Has anyone ever been to a tribunal for pip award and been successful?.I have a d...

Jeffscott69

•9 years ago

5 Replies

Please could I have some advice?

Hi, I was tested borderline positive for Lupus 8 years ago but I was also diagnosed with APS at the same time following DVT and multiple PE's. My haematologist...

Hi, I was tested borderline positive for Lupus 8 years ago but I was also diagno...

sartee

•9 years ago

6 Replies

Hard stools

I am aged 57 years male with diabetics from past 10 to 15 years of course under control.But from past two years I am having initial problem for easing out...

I am aged 57 years male with diabetics from past 10 to 15 years of course under ...

christy1956

•9 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2015

Ruth

new to lupus

Update on my daughters rheumy appoitment

Autoimmune Disease or not?

ANA ELISA Test

Waiting times?

Highly Sensitive

Dismissed by two doctors, could this be Lupus?

Thoughts please on my list of symptoms

Feel so rotten

Aquagenic Pruritus

Wet sensation on my knee

Exercise....how to do it without having to spend the next two days in bed...thoughts?

Claiming PIPTo replace DLA

Oh dear!

Fasting

Bloating with lupus

Research looking at experiences of partners of those with chronic pain

Clip in Hair Extensions

More apnoea stuff

Azathioprine tabs

Chronic Hoarseness

reducing immunosuppressants...

Hello everyone

So this happened today......

Pip tribunal

Please could I have some advice?

Hard stools

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