Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,210 members•28,555 posts

All posts for September 2015

lung ribcage issues with lupus

Hi everyone. I was wandering if anyone has this problem and how they deal with it on daily basis. Since the onset of my lupus many years ago I have...

Hi everyone. I was wandering if anyone has this problem and how they deal with i...

field

•9 years ago

28 Replies

scalp itch

Scalp itch sometimes like things crawling about checked no sores or lice.what is it?

Scalp itch sometimes like things crawling about checked no sores or lice.what is...

cheong-julia

•9 years ago

10 Replies

Lupus v sjorgrens

Hi everyone i have had no end of problems over the years with my bowels, bladder, unexplained seizures etc. I am at the end of my tether with it all, finally i...

Hi everyone i have had no end of problems over the years with my bowels, bladder...

julie1234

•9 years ago

8 Replies

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unbearable itching

Does anyone else with Lupus have unbearable itching nightly? My GP refuses to believe it is due to Lupus just my immune system playing up. I am beside myself...

Does anyone else with Lupus have unbearable itching nightly? My GP refuses to b...

Iona467

•9 years ago

67 Replies

Reduced steroid

I have been on 10mg steroid for a few months now. On the first of September I started to reduce this by 1mg every 4 weeks. So I am currently on 9mg. Would...

I have been on 10mg steroid for a few months now. On the first of September ...

adrienneioannou

•9 years ago

6 Replies

Northern Ireland Lupus Group

Our Group is holding its next meeting on Thursday 1st October at 8pm in Whiteabbey Methodist Church Hall, Shore Road, Whiteabbey. A talk will be given on...

Our Group is holding its next meeting on Thursday 1st October at 8pm in Whiteabb...

Bronagh2015

•9 years ago

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Flu jab

Are you having a flu jab? ( sle sufferer)

Hidden

•9 years ago

8 Replies

Hyperhidrosis, feet pain,hand pain, lupus sle

I have been diagnosed with lupus sle, and for the past 3 months was dealing with a swollen leg, which has been UN treated by the clinic, gp and a&e. Recently...

I have been diagnosed with lupus sle, and for the past 3 months was dealing wit...

karlitoz

•9 years ago

1 Reply

Cancelled again

Can't sleep,after going to hospital last week to be told appointment cancelled for the third time, feeling a bit better today ,when out the blue another letter...

Can't sleep,after going to hospital last week to be told appointment cancelled f...

chaimee

•9 years ago

4 Replies

Question regards diagnosis

Hi feeling a bit puzzled & upset. i have a new dr,who ive been seeing for past six months.... after recent blood tests,for a different illness,he now says i do...

Hi feeling a bit puzzled & upset. i have a new dr,who ive been seeing for past s...

Cynthia30

•9 years ago

4 Replies

Methotrexate

I really feel more positive now to start my methotrexate injections,be great if they work,I can't cope with the sickness with the tabs,the blurred vision...

I really feel more positive now to start my methotrexate injections,be great if ...

Jeffscott69

•9 years ago

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Central retinal vein occlusion

SLE is a kown cause of CRVO. Has anyone else been diagnosed with this and had eylea injections?

SLE is a kown cause of CRVO. Has anyone else been diagnosed with this and had ey...

Hidden

•9 years ago

2 Replies

Utter despair!

I'm sorry this is a very long first post! For the last 4 years I have been ill – my initial symptoms were feeling very tired and cold (mainly my feet and...

I'm sorry this is a very long first post! For the last 4 years I have been ill ...

calrie67

•9 years ago

13 Replies

Methotrexate

Thankyou all for your replies,much appreciated,I take folic acid 6 days a week,I'm going to ask for anti sickness tablets,on way to work,feel so ill,scared to...

Thankyou all for your replies,much appreciated,I take folic acid 6 days a week,I...

Jeffscott69

•9 years ago

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Cool spot

Hello there, something I've noticed over the last week is, every now and then I get a cool sensation on the top of my left thigh, it will be 6 weeks soon that...

Hello there, something I've noticed over the last week is, every now and then I ...

Razoo

•9 years ago

2 Replies

Methotrexate

I have been taken methotrexate for 6wks,15g every mon,nausea is awful,it like a pregnancy nausea,when I was expecting my sons,I'm so sick,came home from work...

I have been taken methotrexate for 6wks,15g every mon,nausea is awful,it like a ...

Jeffscott69

•9 years ago

10 Replies

Frustrated! Possible early menopause

Hi all, I'm writing this in the hope of some advice & out of frustration. I'm living with Lupus (SLE) & other health conditions (APS, Rayneuds, Neuralgia,...

Hi all, I'm writing this in the hope of some advice & out of frustration. I'm li...

magSLE

•9 years ago

12 Replies

Coughing up blood.

This is my first time of posting.I was admitted to hospital as I started coughing up a lot of blood.which was very frightening.I had chest X-ray,Ct scan on my...

This is my first time of posting.I was admitted to hospital as I started coughin...

mousey1

•9 years ago

5 Replies

Slightly confused

I can't get this typing together, i haven't been diagnosed with lupus but i have all of the symptoms. Im new to this post. A head nurse read over my labs....

I can't get this typing together, i haven't been diagnosed with lupus but i hav...

samplus

•9 years ago

4 Replies

Good Lupus Rheumy in Melbourne Australia?

I need to find a good rheumy in Melbourne who understands SLE. Does anyone have any recommendations?

I need to find a good rheumy in Melbourne who understands SLE. Does anyone have ...

Hidden

•9 years ago

5 Replies

Eyes

Hi I'm on hydroxychloroquine and have just noticed a blood spot on my eye. Should I be worried or just one of those things?

Hi I'm on hydroxychloroquine and have just noticed a blood spot on my eye. Shou...

chandlermandy

•9 years ago

3 Replies

Steriods

I need to help my bf to stop taking steriods which he s been doing for a very long time .i need help since he doesnt want to hv proffessionsl help

I need to help my bf to stop taking steriods which he s been doing for a very lo...

dimech

•9 years ago

3 Replies

Sore Throat

Hi all, I posted my first post on friday as I had just been diagnosed & was a bit in shock. Since then I have had a horrendous sore throat & high temp all...

Hi all, I posted my first post on friday as I had just been diagnosed & was a bi...

pollymum40

•9 years ago

3 Replies

Prednisone and cold symptoms

Hello all, I'm writing because I feel rotten and guilty about taking another day off from work. My boss says stay home until I'm well, but I'm so tired of...

Hello all, I'm writing because I feel rotten and guilty about taking another day...

Cindylynn

•9 years ago

5 Replies

A weekend of vomiting

last weekend I started vomiting from Friday afternoon and had to be admitted to hospital so I could have my medication intravenously and fluids. I was also...

last weekend I started vomiting from Friday afternoon and had to be admitted to ...

Maureenpearl

•9 years ago

10 Replies

Bruit

Hi I'm new to this site, I have been diagnosed with lupus and I don't really have a lot of information about it. I believe I'm in the middle of a flare at the...

Hi I'm new to this site, I have been diagnosed with lupus and I don't really hav...

Harold123

•9 years ago

14 Replies

I think i've been misdiagnosed. Advice needed please

Can anyone help or related. I've been diagnosed with M.E, Fibromyalgia and CFS. That might sound bad enough but looking through my medical history and...

Can anyone help or related. I've been diagnosed with M.E, Fibromyalgia and CFS. ...

Jacqueline_J

•9 years ago

6 Replies

Calling all gardeners on forum: help?

Just hoping for tips from any of you who manage to enjoy gardening despite lupus....am finding it very hard....I miss gardening a lot...so, if you're still...

Just hoping for tips from any of you who manage to enjoy gardening despite lupus...

EOLHPC

•9 years ago

35 Replies

Cancelled again

Went to hospital for my check up yesterday after two being put back by 2 months,told my appointment was cancelled,should have had a letter,which I hadn't...

Went to hospital for my check up yesterday after two being put back by 2 months,...

chaimee

•9 years ago

7 Replies

Daughter - Facial Rash Update

Hi all, further to my recent posts, we saw the paediatric dermatologist today. Doctor has done some blood tests and we go back a week on Tuesday to see her and...

Hi all, further to my recent posts, we saw the paediatric dermatologist today. D...

Daisy_flower83

•9 years ago

14 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2015

lung ribcage issues with lupus

scalp itch

Lupus v sjorgrens

unbearable itching

Reduced steroid

Northern Ireland Lupus Group

Flu jab

Hyperhidrosis, feet pain,hand pain, lupus sle

Cancelled again

Question regards diagnosis

Methotrexate

Central retinal vein occlusion

Utter despair!

Methotrexate

Cool spot

Methotrexate

Frustrated! Possible early menopause

Coughing up blood.

Slightly confused

Good Lupus Rheumy in Melbourne Australia?

Eyes

Steriods

Sore Throat

Prednisone and cold symptoms

A weekend of vomiting

Bruit

I think i've been misdiagnosed. Advice needed please

Calling all gardeners on forum: help?

Cancelled again

Daughter - Facial Rash Update

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