Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for February 2013

Lupus and pancreas

Has anyone suffer with both lupus and pancreatitis? For the past few weeks I have been suffering from lower to middle back pain. I initially thought it was a...

Has anyone suffer with both lupus and pancreatitis? For the past few weeks I ha...

Purpletop

•11 years ago

2 Replies

Joint pain - is it me? Please read and give me your views, am still awaiting def lupus diagnosis but I must say you have all know the answer

I get really achey cold feet, they throb and are freezing cold (I take nifedipine for the coldness), at night my elbows lock whilst im asleep but soom wakes me...

I get really achey cold feet, they throb and are freezing cold (I take nifedipin...

beckybooboo

•11 years ago

4 Replies

Post holiday blues

I have just come back from a week in Tenerife and had a great time. I am lucky enough not to have problems with the sun so have been laid out on a sun bed with...

I have just come back from a week in Tenerife and had a great time. I am lucky e...

DaleDiva

•11 years ago

12 Replies

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think i have lupus not fm

what do i do tell the rhemy doc that i do think i have lupus? ive read a lot of this condition and i do fit into it dont no what to do help please

what do i do tell the rhemy doc that i do think i have lupus? ive read a lot of ...

hayley65

•11 years ago

7 Replies

Michael Jackson had discoid lupus!

2 think, I only joked with my dermatologist 12 months ago that I was turning in2 Michael Jackson as I had a few large patches of vitiligo on my legs. Little...

2 think, I only joked with my dermatologist 12 months ago that I was turning in2...

Sher78

•11 years ago

29 Replies

Vasculitis

Of course someone will have this but just wondered what symptoms it gives. I have a tingling/pins and needles in my feet but not as sharp a pain as the usual...

Of course someone will have this but just wondered what symptoms it gives. I hav...

DaleDiva

•11 years ago

3 Replies

What cat?

Hi, all, I'm thinking of getting a cat. I never had a pet and my husband would hate having a hairy animal in the house but be that as it may, I'm still...

Hi, all, I'm thinking of getting a cat. I never had a pet and my husband would ...

Purpletop

•11 years ago

22 Replies

Is there anyone else on Rituximab??

I have ra, lupus, raynauds, sjogrens and underactive thyroid. After several years of trying different treatments, painkillers etc I got funding for an infusion...

I have ra, lupus, raynauds, sjogrens and underactive thyroid. After several year...

Hidden

•11 years ago

5 Replies

What does it feel like to be in SLE remission?

Hi fellow Lupies :-) I was diagnosed with SLE and mixed Cryoglobulinemia Dec 2011. I have had a pred 40mg initially then reduced to 20mg and up and down to...

Hi fellow Lupies :-) I was diagnosed with SLE and mixed Cryoglobulinemia Dec ...

helsnz34

•11 years ago

15 Replies

Numb face/rash

Hi all I've been getting numb sensation for months seems to be getting worse as not only left side of face it's my lips lower jaw going into right side.I've...

Hi all I've been getting numb sensation for months seems to be getting worse as ...

letslaugh63

•11 years ago

3 Replies

Does everyone struggle with trying to get diagnosed?

I am struggling to get a confirmed diagnosis for SLE. My consultant agreed with my dermatologist on the evidence provided ie: 2 positive ANA blood results and...

I am struggling to get a confirmed diagnosis for SLE. My consultant agreed with ...

gingerjanine

•11 years ago

7 Replies

Just been diagnosed with Lymphoma, how should I feel?

Slightly odd question, yes, but I got his diagnosis this week and have begun telling family and friends who have all been very upset, which makes sense but......

Slightly odd question, yes, but I got his diagnosis this week and have begun tel...

Twentythree

•11 years ago

5 Replies

Steroid reduction feeling awful, do I just bear with it ??????

Hi I'm being reduced from 15mg to 10mg and aza has gone up from 125mg to 175mg. I have a massive headache and am really off food. Shall I just bear with...

Hi I'm being reduced from 15mg to 10mg and aza has gone up from 125mg to 17...

Stacy2310

•11 years ago

23 Replies

best analgesia/ anti inflamatories

what pain relief or anti inflamatories do you use, and which works best for you? i have tried cocodamol,coedine phosphate, diclofenac,ibuprofen and naproxen....

what pain relief or anti inflamatories do you use, and which works best for you?...

scoobydoo1

•11 years ago

4 Replies

Does anyone have any experience of steroids causing systemic fungal infections?

I saw dermatology yesterday (I see both rheumy and dermatology as I also have vasculitis) and they say that I have a full blown systemic fungal infection. I...

I saw dermatology yesterday (I see both rheumy and dermatology as I also have va...

Rachy24

•11 years ago

2 Replies

Hair Loss

Ok so since august last year i had extreme loss of hair like bald patches here and there on my head my hair was very long near the top of my bottom. It began...

Ok so since august last year i had extreme loss of hair like bald patches here a...

Danielle2419

•11 years ago

9 Replies

I am SO pleased to have found this site!!!! This is really long....and even if no-one reads it-I will just feel better for writing it down!

I have finally been diagnosed with LUPUS after years of suffering joint pain/fatigue......first incidences around 1999/2000, then from 2008 I was told I had...

I have finally been diagnosed with LUPUS after years of suffering joint pain/fat...

bam1993

•11 years ago

13 Replies

Aspartame

Just wanted to share this with you all, O saw this on a friends wall on facebook and one of ky friends has told me a lot about it after looking into it. I'm...

Just wanted to share this with you all, O saw this on a friends wall on facebook...

megs_tom

•11 years ago

15 Replies

Return to work

I'm returning to work on Monday after 9 months off sick. I've been very lucky so far because the company I work for has been very supportive. However, I...

I'm returning to work on Monday after 9 months off sick. I've been very lucky s...

mainlyconfused

•11 years ago

3 Replies

Results !?

Hello all ! I recieved a copy of the letter for my gp . All bloods came out normal exept slightly positive ANA ( 7 th positive ) low vitamin d and calcium,...

Hello all ! I recieved a copy of the letter for my gp . All bloods came out no...

larissa

•11 years ago

4 Replies

ANA now negative

My recent ANA has come back within normal limits. Does this mean that SLE is well controlled?

My recent ANA has come back within normal limits. Does this mean that SLE is wel...

erky

•11 years ago

13 Replies

Dry Mouth

My mouth is always dry, absolutely moistureless (is that even a word).I get really concious of it and am scared stiff that my breath will smell, Im forever...

My mouth is always dry, absolutely moistureless (is that even a word).I get real...

vonni

•11 years ago

12 Replies

Do different labs use different titer levels for ana blood readings? If anyone knows this is a quest for my next rheumy appt. thank you x

beckybooboo

•11 years ago

1 Reply

Update

Firstly BIG THANK YOU to everybody who gave me input last time I posted!! This is where I'm at now, after my rheumy ref me to an Opthalmologist - After...

Firstly BIG THANK YOU to everybody who gave me input last time I posted!! Thi...

Nanuuk

•11 years ago

17 Replies

sore legs and exhaustion

Hi, For a few months now i have been experiencing pain in my legs especially after walking or climbing a small flight of stairs.I am totally exhausted from...

Hi, For a few months now i have been experiencing pain in my legs especially...

imzi

•11 years ago

9 Replies

cataracts

Went for my 2 yearly eyesight test today. Had all the various eye tests and pleased that there was no change from my last eye test. But, on checking the health...

Went for my 2 yearly eyesight test today. Had all the various eye tests and plea...

caz59

•11 years ago

3 Replies

prolonged Q T and also thickening of mitral valve, causing mitral valve regurgitation & atrial fibrillation, anyone else got this with SLE?

I'm a newbie on here and was diagnosed 10 years ago with SLE, Sjogren's Syndrome, Hughes Syndrome, Fibromyalgia & recently diagnosed with the above heart...

I'm a newbie on here and was diagnosed 10 years ago with SLE, Sjogren's Syndrome...

happysally72

•11 years ago

1 Reply

Is hydroxychoroquine and plaquenil the same thing? Please excuse spelling, Thank you

beckybooboo

•11 years ago

8 Replies

Please help, been unwell since June 2012 with joint pain, seen rheumatologist 4 times now and my ana bloods are equivocal for lupus?

my hair is falling out in clumps, severe joint pain and fatigue, red rash on neck/chest, am on hydroxychloroquine but affect my stomach/bowel, was on steroids...

my hair is falling out in clumps, severe joint pain and fatigue, red rash on nec...

beckybooboo

•11 years ago

4 Replies

STill being sick :(

Been throwing up every day now since January, I usualy swollow it disgusting I know :P. I told my rheumatolgist but She didn't seem to understand that its in...

Been throwing up every day now since January, I usualy swollow it disgusting I k...

Hidden

•11 years ago

10 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2013

Lupus and pancreas

Joint pain - is it me? Please read and give me your views, am still awaiting def lupus diagnosis but I must say you have all know the answer

Post holiday blues

think i have lupus not fm

Michael Jackson had discoid lupus!

Vasculitis

What cat?

Is there anyone else on Rituximab??

What does it feel like to be in SLE remission?

Numb face/rash

Does everyone struggle with trying to get diagnosed?

Just been diagnosed with Lymphoma, how should I feel?

Steroid reduction feeling awful, do I just bear with it ??????

best analgesia/ anti inflamatories

Does anyone have any experience of steroids causing systemic fungal infections?

Hair Loss

I am SO pleased to have found this site!!!! This is really long....and even if no-one reads it-I will just feel better for writing it down!

Aspartame

Return to work

Results !?

ANA now negative

Dry Mouth

Do different labs use different titer levels for ana blood readings? If anyone knows this is a quest for my next rheumy appt. thank you x

Update

sore legs and exhaustion

cataracts

prolonged Q T and also thickening of mitral valve, causing mitral valve regurgitation & atrial fibrillation, anyone else got this with SLE?

Is hydroxychoroquine and plaquenil the same thing? Please excuse spelling, Thank you

Please help, been unwell since June 2012 with joint pain, seen rheumatologist 4 times now and my ana bloods are equivocal for lupus?

STill being sick :(

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