Firstly BIG THANK YOU to everybody who gave me input last time I posted!!
This is where I'm at now, after my rheumy ref me to an Opthalmologist - After dilating my pupils & using an imaging machine to look at my retinas I saw a consultant who explained the images & also showed me what a normal image is compared to mine he concluded that I have a toxic build up of hydroxychloroquin thats affecting my retinas& its irreversible!! Thankfully I am still within the legal limit to drive, I have an appointment to have a field test coming up & he wants me to have a procedure that involves electrodes on my eyeballs that give another image (?!} I rang my rheumy the following morning & she had had his email & instructed me to stop hydroxy IMMEDIATELY...
SO, Here I sit, ravaged with joint pains & swelling, muscle pains, nerve pains, hair coming out in clumps, if I eat I vomit- if I dont I feel sick. I cant sleep for the pain & when I can the pain wakes me again. I want to cry outwardly like what going on inside but Im too exhausted. Who knew 6 weeks without meds would make me feel this bad?!
I'm due to see my rheumy again to discuss what to take instead (PREDS are out of the question after last time) but not til the end of MARCH!
Sorry, I'm whining now. Hope all of you are keeping well.xx