sore legs and exhaustion: Hi, For a few months... - LUPUS UK

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sore legs and exhaustion

imzi profile image
imzi
9 Replies

Hi,

For a few months now i have been experiencing pain in my legs especially after walking or climbing a small flight of stairs.I am totally exhausted from walking small distances and sometimes even breathless! I know its not my weight triggering the pain. I just wanted some peace of mind and know if anyone else experience sore legs and exhaustion after walking? i have low vit D so it could be linked to that, but im wanting to know if its another part of the lupus?

thanks :)

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imzi
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LottaTee profile image
LottaTee

I have the same thing. It's to do with oxygen levels dropping when you exert yourself. I am being sen by a consultant at the chest clinic in guys. I did a lung function test and ECG echo and pulmonary test last year. Will repeat the lung function next week. That's 6 months in between. To see if the function has deteriorated. ask your Rheumy or gp to refer u to a chest specialist.

imzi profile image
imzi in reply toLottaTee

thank you for your help, i was at the rheumy this week and my chest was clear (thank goodness) however im to go back for another test.

LottaTee profile image
LottaTee in reply toimzi

That's good news. Did they check your blood oxygen level while going up and down stairs or just walking around? If not mention it at your next appointment. All the best.

L x

I had very low vit D few years back it seemed to effect everything exhaustion pain etc rheumy put me on 50,000 supplement per week for eight weeks really improved things for me now i supplement 5000 every other day think that priority good luck.

imzi profile image
imzi in reply to

I have started back on my vit D, no difference yet, but hoping in a few weeks i will see a change! thank you!

Whoops sorry meant to say I also had all lung tests so it is advisable to arrange tests with your rheumy.

uzi41 profile image
uzi41

I was also told with vit d i would feel better..but no change feel worse i think...and i am up and down stairs all day, doesnt help that i hav asthma too.... Take care.. Uzi

imzi profile image
imzi in reply touzi41

ive just started back on my vit D cant see a difference...yet. thank you! x

Emmalouise_0209_82 profile image
Emmalouise_0209_82

Hi, my breathing can be very bad without warring! I can't walk up steep hills or walk with out stopping at least every 5 minutes!! I can't catch my breath and that's when it really scares me!! My chest pain struggle to get my breathing under control takes a long time to bring my breathing back to so kind of normal!

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