I have ra, lupus, raynauds, sjogrens and underactive thyroid. After several years of trying different treatments, painkillers etc I got funding for an infusion of Rituximab. Although this has made a vast improvement to many symptoms(unfortunately not pain in already damaged joints) As it brings your immune system down I have had every bug,cold, cough & infection<all of which put me to bed for several days.
My question is...... do I get a second dose or not??.....its such a catch 22 situation.
Hi Wendic - I was on it for several years. Had problems getting the stuff into me (always ended up having to stay in hospital overnight) but found it helped me. I would give it a second go..... It could be that you had a phase of getting all the coughs and colds anyway. I have lupus, rp, lung disease, asthma etc and needed a boost. I've been on Microphenolate for several years now with pretty good results. Good luck whatever you decide. D xx
thanks, I will have agood chat with my rheumy nurse. x
I have exactly the same conditions as you Wendic and also Snm24771!! I had my first Rituximab infusion Sept/Oct last year and due to have 2nd does March/April this year. Hopeful 2nd lot will help as first lot didn't seem to make any difference. Haven't really had any bugs over the winter, so been lucky there - although right now my mouth, throat and gums are red raw maybe because I'm reducing steroids again. Jane xx
all I can say is poor you Sammy-lol! will txt you x
Jane, I always thought the sore mouth was to do with my methotrexate as always cleared up when off it? Have been on 5mg pred for about a year now, have tried to go down to 2.5 but feel dreadful almost immediately.
I am due to have my 2nd dose at the same time so we can compare notes!
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