APART FROM FREEXING HANDS & FEET AM ALSO LOSING MUSCLE TONE.

[Maggie81]

I have noticed that my bottom is disappearing (honestly, not joking). It seems that all the muscle has/is just fading. It is quite so to sit for long periods.

Is this normal in lupus/SJS, should I report it to my new Lupus Consultant?

[Monica82]

Hi despite having Lupus I am a fitness Trainer and this is normal to happen if you don’t exercise you will loss the muscles tones. You will need to exercise.

Take care

[Maggie81 in reply to Monica82]

Hi Monica

Why do you think I don't excercise?

[AngelaW]

Hi Maggie

I too have lost lots of muscle tone - mainly in my upper arms but all over really. I would love to exercise but my muscles just scream out in pain, last time I tried I ended up with a flare up!! I've tried swimming too but because of my useless arms just couldn't get anywhere and I was left just too fatigued. Not sure what the answer is or even if there is one