I have SLE and for years have felt giddy for much of the time but it has got worse as time has gone on. My rheumatologist says that the lupus must have affected my balance system and that there is not much one can do about it.
I'd love to know if anyone feels the same and has found a solution.
I have had pills from the GP (More pills!!), been to physiotherapy for balance exercises and done head and eye exercises but nothing helps. It's worse when the weather is hot and the sun is bright and I find all bright lights difficult to cope with so wear sunglasses a lot.
What a case!