I rarely go sick, I always try my hardest not to let my Lupus take control of my life so would hope that when I do need to just hit the couch there would be understanding.
Unfortunately, this does not seem to be the case. Even after 11 years, strokes, respiratory arrests, transverse myelitis so I now can only walk with a stick in the house my family does not understand. The adults that is - the kids just take it all in their stride.
Last night I had to go sick from work. I am a shift worker and take 999 calls for the ambulance so big responsibility and major league understaffed so I have to be really bad to go off. This said, I am a mum of young children so even though I want to just collapse I have to still try to get the kitchen done, etc. So there I am forcing my way through dishwasher when hubby just pops his head in and asks if I am taking tonight off as well. Seriously unimpressed I point out I have not just decided to take a holiday. His response - well that's why I don't think you should start going to the gym and then wonders why he gets his head bitten off.
After all these years my husband has refused to read any of the literature I have given him, he would rather not even discuss the subject. It is a priority that we educate ourselves about our disease because it is our best weapon. This becomes seriously hampered if our loved ones fail to become educated as well. By doing this we have an additional battle to fight and causes issues that should not be there. Bringing up a family together is hard in this economy without feeling there is no communication level for something like Lupus.