Posts - My Ovacome | HealthUnlocked

My Ovacome

18,141 members • 20,291 posts

All posts for August 2024

Lymphoedema neck

Hi My wife is on her third line following a reoccurrence which has progressed to the lymph nodes in her neck. There has been a gradual swelling around her...

Hi My wife is on her third line following a reoccurrence which has progressed t...

•2 months ago

Research proposal - your comments needed

Hello All We have been contacted by a researcher who is proposing to study how the genetic changes in genes BRIP1, PALB2, RAD51C and RAD51D cause ovarian...

Hello All We have been contacted by a researcher who is proposing to study how ...

Partner•2 months ago

Tales from the coalface

Just a little one to cheer you up. From my first op, post-surgery. District Nurse turned up 6 hours before expected and I had to answer the door in only a...

Just a little one to cheer you up. From my first op, post-surgery. District Nur...

•2 months ago

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Any updates on Peewe or Lyndy?

I notice that all Peewe's posts now say they're from 'Hidden'. When I search for her in 'Members' she no longer comes up. Don't know whether she got her MRI or...

I notice that all Peewe's posts now say they're from 'Hidden'. When I search for...

•2 months ago

What's on at Ovacome next week? (week beginning Monday 12 August 2024)

Hello everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Hello everyone, This is our weekly post to let you know about the different s...

Partner•2 months ago

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Should I ask for a CA125 test or just wait until my next ultrasound in 2 months to see if the mass is still the same size?

I had my MRI at the end of June after an ultrasound and CT scan couldn't tell for sure if there was a mass or not. The MRI shows it to be a 3.2 cm...

I had my MRI at the end of June after an ultrasound and CT scan couldn't tell fo...

starrynight5626

•2 months ago

complex cyst - stable

Hi anyone have experience of a complex cyst multioccular being stable, just had a repeat scan and it is stable as in it hasn't grown since the last time. It...

Hi anyone have experience of a complex cyst multioccular being stable, just ha...

•2 months ago

Right at the start

I’m right at the start of this….went to GP with bloating and constipation 4 weeks ago - he requested blood and FIT tests and referred to gastro as he could...

I’m right at the start of this….went to GP with bloating and constipation 4 week...

•2 months ago

Best Support Tips?

My lovely mum has recently been diagnosed with ovarian cancer. We’re awaiting staging etc so as you can imagine there’s a lot of worry and uncertainty going on...

My lovely mum has recently been diagnosed with ovarian cancer. We’re awaiting st...

•2 months ago

side effects

hiya had my 1st treatment and I’m starting to get the side effects can anyone suggest for pain in my feet and aches in legs also mouth is becoming abit sore ....

hiya had my 1st treatment and I’m starting to get the side effects can anyone su...

•2 months ago

Severe nerve pain after hysterectomy

Hello everyone, My mother was recently diagnosed with 3a2 HGSOC. I am still in shock and trying to find more information on this specific sub-stage, as it’s...

Hello everyone, My mother was recently diagnosed with 3a2 HGSOC. I am still in ...

•2 months ago

Your experiences of trametinib needed (online survey)

The National Cancer Medicines Advisory Group (NCMAG) Programme have approached Ovacome as they are currently considering trametinib for patients with recurrent...

The National Cancer Medicines Advisory Group (NCMAG) Programme have approached O...

Partner•2 months ago

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Radiation and CA125 increase

I had surgery last November to remove a large tumor along with my ovaries (already had a hysterectomy). In June, a CT scan showed the lymph nodes in my pelvis...

I had surgery last November to remove a large tumor along with my ovaries (alrea...

•2 months ago

Elahere in the UK

Does anyone know much about Elahere? Is it on trial yet in the UK? It seems so many in the USA are having good results.

Does anyone know much about Elahere? Is it on trial yet in the UK? It seems so m...

•2 months ago

Reducing kidney function on niraparib

Hello fellow travellers I have been on niraparib for 17 months and my GFR has been dropping. It wasn’t very good before. Ca125 also slowly rising but uptil...

Hello fellow travellers I have been on niraparib for 17 months and my GFR has ...

•2 months ago

Pseudomonas infection post laparotomy

Dear ladies, Has any of you had this problem post surgery? I’ve been having issues with my wound since they removed the staples 10 days post op. I’ve also had...

Dear ladies, Has any of you had this problem post surgery? I’ve been having iss...

•2 months ago

Gemcitabine

Hi fellow warriors I haven't posted for a while but am on here daily getting my fix of courage & love. I'm currently being treated for my third recurrence....

Hi fellow warriors I haven't posted for a while but am on here daily getting my ...

•2 months ago

What's on at Ovacome next week? (week beginning Monday 5 August 2024)

Hello everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Hello everyone, This is our weekly post to let you know about the different s...

Partner•2 months ago

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