Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for March 2024

Ovarian cancer

Hi brave ladys cancer ovarian spead to bowel 2 years ago just after heart valve replacement surgery removed part bowel 6 chemo recurrence recently chemo 4...

Hi brave ladys cancer ovarian spead to bowel 2 years ago just after heart valve...

PaumicB123

•2 months ago

4 Replies

What's on at Ovacome next week? (week commencing 18 March 2024)

Good afternoon everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Good afternoon everyone This is our weekly post to let you know about the diffe...

OvacomeSupport

Partner•2 months ago

Be the first to reply

Surgery was hugely succesful, thank the Lord! 😇🙏

Going into surgery with stage 4 clear cell cancer a week ago, I was advised they will take out all cancer they can see & will have a better understanding of...

Going into surgery with stage 4 clear cell cancer a week ago, I was advised they...

Kazzh

•2 months ago

31 Replies

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Gastric discomfort with Olaparib

Help needed please. I’m currently taking 300mg of Olaparib per day and am experiencing gastric discomfort and feelings of … .Wanting to burp but nothing...

Help needed please. I’m currently taking 300mg of Olaparib per day and am exper...

Alfiepop

•2 months ago

8 Replies

Let us know about local support/meet-ups in your area

Good afternoon, Following our recent consultation, several of our members responded that they would like to connect with others affected by ovarian cancer in...

Good afternoon, Following our recent consultation, several of our members respo...

OvacomeSupport

Partner•2 months ago

7 Replies

Rocket

Has anyone had problems with adhesions since debulking surgery?

Tabby13

•2 months ago

3 Replies

Patricia59

good morning, I haven’t been here before, is there anyone living close to London Essex who go to Maggie’s for support. I can’t seem to find any groups in...

good morning, I haven’t been here before, is there anyone living close to London...

Balliol15

•2 months ago

1 Reply

Ovary removal

I had bith ovaries and tubes removed almost 6 weeks ago, i keep getting aches and pains in my groin area, has anyone else had the same problem?

I had bith ovaries and tubes removed almost 6 weeks ago, i keep getting aches an...

Doglady13

•2 months ago

7 Replies

Ovaries and tube removal

Hi i have never been in hospital till Feb '24 when i had both my ovaries and tubes removed

Hi i have never been in hospital till Feb '24 when i had both my ovaries and tub...

Doglady13

•2 months ago

4 Replies

Low on Chemo - Clear Cell Specific

Hey Ladies I'm halfway through 1st line treatment and really low. I know the weather isn't helping but the 2nd and 3rd treatments have hit my energy levels...

Hey Ladies I'm halfway through 1st line treatment and really low. I know the we...

Emcee71

•2 months ago

17 Replies

Trial Tedova ose2101

Hello,Hope this message finds you well. Anyone by any chance heard about this trial : A vaccine Tedova ose2101? Or knows more about it. Thank you so much...

Hello,Hope this message finds you well. Anyone by any chance heard about this tr...

Pumpkininja

•2 months ago

4 Replies

recommendations for The Christie ?

hi everyone , I haven’t posted for a while as I have been taking part in a clinical trial which has now finished . Can anyone recommend an oncologist...

hi everyone , I haven’t posted for a while as I have been taking part in a cli...

Lookingahead

•2 months ago

11 Replies

Stage 4 OC — Deposits on liver

Hi ladies! Could do with a bit of advice, as am spiralling a bit. For context, my Mum (54) was diagnosed with HGS stage 3c/4a OC in Jan 2022. BRACA gene...

Hi ladies! Could do with a bit of advice, as am spiralling a bit. For context,...

georgialocksss

•2 months ago

4 Replies

Surgery- failed

I've posted here few weeks ago. I had surgery booked for Tuesday. When he operated surgeon said small tumours had spread around stomach, bowel, intestines so...

I've posted here few weeks ago. I had surgery booked for Tuesday. When he oper...

Leopard2018

•2 months ago

14 Replies

Normal/not normal?

Just a question? I'm back worrying about little niggling aches in my pelvis, and I'm peeing again in the night about 3 times. My Ca-125 is still at 7. I'm also...

Just a question? I'm back worrying about little niggling aches in my pelvis, and...

Newbery3

•2 months ago

16 Replies

What's on at Ovacome next week (week commencing 11 March 2024)?

Good afternoon everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Good afternoon everyone This is our weekly post to let you know about the diffe...

OvacomeSupport

Partner•2 months ago

Be the first to reply

Unilateral salpingo-oophorectomy anxiety?

I have surgery next week and I’m terrified. They say they can ‘probably’ do it laparoscopically, but this really isn’t reassuring. The thought of the scars,...

I have surgery next week and I’m terrified. They say they can ‘probably’ do it l...

Hidden

•2 months ago

9 Replies

Gloriosa trail

Has anybody signed up for this trial? It’s open at the Marsden currently. Any info’ gratefully received xxx

Has anybody signed up for this trial? It’s open at the Marsden currently. Any i...

Emmacrispins

•2 months ago

4 Replies

Stage 4 OC with Liver Metastasis

Any guidance or anyone with Cancer metastasis to Liver? My mother has stage 4 Ovarian Cancer which even after chemo has spread to Liver. Her bilrubin levels...

Any guidance or anyone with Cancer metastasis to Liver? My mother has stage 4 Ov...

akhilsalwan

•2 months ago

4 Replies

Surgery tomorrow 🙏 can't wait to get this tumour out!

3 chemos done, & surgery is tomorrow! Almost half way there in my treatment plan. Met my surgeon yesterday, quite alot to remove. Any tips? 🤞😊

3 chemos done, & surgery is tomorrow! Almost half way there in my treatment plan...

Kazzh

•2 months ago

13 Replies

PleurX semi-permanent chest drain

Hi, I have just had my 2nd chest drain in the space of 3 weeks after my ovarian cancer has spread to the pleura of my right lung. My oncology team are...

Hi, I have just had my 2nd chest drain in the space of 3 weeks after my ovarian ...

AuntyE

•2 months ago

9 Replies

The Movement for Good Awards are back, and we need your help please 🙋Nominate Ovacome to receive £1000 💸

Hi everyone This post is to let you all know that the Movement for Good Awards are back, and we need your help please 🙋 💸 This annual platform for...

Hi everyone This post is to let you all know that the Movement for Good Award...

TheOvacomeTeam

Partner•2 months ago

11 Replies

CA125 result

Hi I have ha a CA125 result of 75. Getting a scan on Thursday but really worried

Hi I have ha a CA125 result of 75. Getting a scan on Thursday but really worried...

johogan

•2 months ago

8 Replies

Weekly Paclitaxol

Has anyone had success with with weekly taxol? I've got two stubborn cancerous pelvis lymph nodes. I'm deemed platinum refractory. Thanks.

Has anyone had success with with weekly taxol? I've got two stubborn cancerous ...

win_56

•2 months ago

9 Replies

Parp inhibitors

Ive been on Lynparza for 2 years now and just had CT scan which is clear, due to increasing ca125 from 12, 24, 60 to 90 it seemed to rise after i had fall and...

Ive been on Lynparza for 2 years now and just had CT scan which is clear, due to...

0151tmac69

•2 months ago

1 Reply

Questions after scan results

I have just been told my cancer has returned this time to my liver mainly. I wasn’t aware my ca 125 levels had increased from 36 end September to 350 recently....

I have just been told my cancer has returned this time to my liver mainly. I was...

Tallulah55

•2 months ago

10 Replies

Now been advised cancer has spread to both lungs 😔

Spoke to my consultant yesterday, it seems my nurse specialist had not given me the correct information. Cancer signs are now on both lungs, in my...

Spoke to my consultant yesterday, it seems my nurse specialist had not given me ...

Kazzh

•2 months ago

6 Replies

Elevated CA125 from 11 to 156.

My CA 125 is normally around 11 and that’s elevated to 156 within six months. My oncologist has done PET scan, CAT scan, MRIs, and has found no tumors. I just...

My CA 125 is normally around 11 and that’s elevated to 156 within six months. M...

marmay88o

•2 months ago

14 Replies

my mom is no more with me

my mom died 13.02.2024 :( i am so empty… she was my best friend my all now i am alone :(

my mom died 13.02.2024 :( i am so empty… she was my best friend my all now i am...

Inguc_is

•2 months ago

56 Replies

Anybody self funding Bevacizumab/Avastin treatment?

This was mentioned by my oncologist as an option for second line treatment. I’ve heard that it’s super expensive, but in searching for info’ it seems that some...

This was mentioned by my oncologist as an option for second line treatment. I’ve...

Emmacrispins

•2 months ago

13 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for March 2024

Ovarian cancer

What's on at Ovacome next week? (week commencing 18 March 2024)

Surgery was hugely succesful, thank the Lord! 😇🙏

Gastric discomfort with Olaparib

Let us know about local support/meet-ups in your area

Rocket

Patricia59

Ovary removal

Ovaries and tube removal

Low on Chemo - Clear Cell Specific

Trial Tedova ose2101

recommendations for The Christie ?

Stage 4 OC — Deposits on liver

Surgery- failed

Normal/not normal?

What's on at Ovacome next week (week commencing 11 March 2024)?

Unilateral salpingo-oophorectomy anxiety?

Gloriosa trail

Stage 4 OC with Liver Metastasis

Surgery tomorrow 🙏 can't wait to get this tumour out!

PleurX semi-permanent chest drain

The Movement for Good Awards are back, and we need your help please 🙋Nominate Ovacome to receive £1000 💸

CA125 result

Weekly Paclitaxol

Parp inhibitors

Questions after scan results

Now been advised cancer has spread to both lungs 😔

Elevated CA125 from 11 to 156.

my mom is no more with me

Anybody self funding Bevacizumab/Avastin treatment?

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