Posts - My Ovacome | HealthUnlocked

My Ovacome

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All posts for January 2013

Does anyone suffer from breathlessness on exertion five days after Chemo

fluffycloud

•11 years ago

17 Replies

Another question! 12 days post op, mum started getting pain in lower back, appears to be coccyx area. Any thoughts?

She didn't have this pain previously, it just started in the last couple of days. We have a follow up appointment tomorrow, but I wondered if anyone has...

She didn't have this pain previously, it just started in the last couple of days...

britinak

•11 years ago

7 Replies

Ca125 over 500 less than 6 weeks from chemo

I had my check up today, and it wasn't good news. The ca125 has risen to over 500 so it looks like the chemo hasn't worked. I've got a scan on Weds, so the onc...

I had my check up today, and it wasn't good news. The ca125 has risen to over 50...

ChrisH

•11 years ago

10 Replies

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I had to stop my oxyplatin chemo because of related colitis.Three monthly CT scans show the tumour as slightly shrunk but stable.

It is now six months since my last chemo and have now been told that I am not having a three monthly CT scan because it is 'making me tired'. Does any of this...

It is now six months since my last chemo and have now been told that I am not ha...

stagehand

•11 years ago

4 Replies

Good News

Hi I Just feel I need to share my news with you. I have just got back from Maidstone Hospital where I went to receive my results from my scan and all seems...

Hi I Just feel I need to share my news with you. I have just got back from Maids...

doreenharwood

•11 years ago

24 Replies

Trapped Wind

First day back at work today and I was woken up at 4.15 this morning with the most awful gripes and trapped wind. I assume the culprit is the peas I ate last...

First day back at work today and I was woken up at 4.15 this morning with the mo...

doodoolatrice

•11 years ago

11 Replies

Has anyone shaved their head before their hair dropped out?

I'll be starting Taxol on the 31st and thought after the first dose and wig acquired I would shave my head. The reason for this is I think it will make me feel...

I'll be starting Taxol on the 31st and thought after the first dose and wig acqu...

pixinafix

•11 years ago

25 Replies

Truffle Festival at Uzès

This weekend I was treated to the much-anticipated Truffle Festival Birthday Treat. I'd never tasted a truffle. I also tend to think of trips abroad as...

This weekend I was treated to the much-anticipated Truffle Festival Birthday Tre...

Whippit

•11 years ago

42 Replies

Get together for anyone affected by hereditary ovarian or breast cancer on Sunday 3rd February

I would like to invite you to our next Facing Our Risk of Cancer Empowered (FORCE) meeting to be held on Sunday 3rd February 2013 from 3pm - 5pm in Buckhurst...

I would like to invite you to our next Facing Our Risk of Cancer Empowered (FORC...

sharonforce

•11 years ago

3 Replies

Ladies lunch club

Hi Ladies Being diagnosed with Ovarian Cancer and going through 2 lots of chemo has been a life changing experience for me. Going from a full time working...

Hi Ladies Being diagnosed with Ovarian Cancer and going through 2 lots of chemo...

michelle2

•11 years ago

24 Replies

nhs voucher for wig?

Hi everyone, Went for appointment with hairdresser in the hospital with my friend yesterday to try on wigs after starting chemo last week. Had a giggle with...

Hi everyone, Went for appointment with hairdresser in the hospital with my fr...

mummybear59

•11 years ago

47 Replies

News from Ovarian Cancer Action Research - Treatment of Ascites

Dear all, The following press release has just been issued by Ovarian Cancer Action Research. It looks to herald a breakthrough for many women who suffer...

Dear all, The following press release has just been issued by Ovarian Cancer ...

Whippit

•11 years ago

9 Replies

I've ditched that ba$#ard at last! In rhyme, this time...

Yippee, Yippee, I'm all port free!! Finally feeling a bit more "me"! I'm totally spaced and off my face But finally back in a normal place...

Yippee, Yippee, I'm all port free!! Finally feeling a bit more "me"! I...

Hidden

•11 years ago

29 Replies

Onc highly recommend hrt. Stage 2 low grade. What do u think

had bilateral endometrial adenocarcinoma of the ovaries (low grade 1-2) with an early grade (1) endometrial cancer

had bilateral endometrial adenocarcinoma of the ovaries (low grade 1-2) with an ...

Henry2012

•11 years ago

6 Replies

Asking again. Any long term stage 2 low grade survivors out there.

Henry2012

•11 years ago

29 Replies

Bed sores post surgery?

Mum had her surgery last Thursday and was discharged yesterday following a slow recovery as she was intolerant to all painkillers except paracetamol. In the...

Mum had her surgery last Thursday and was discharged yesterday following a slow ...

britinak

•11 years ago

14 Replies

The carboplatin didn't work.

Just had an onc appointment. At my last ctscan in September there was no sign of disease, but the results from the ctscan a fortnight ago are really bad. It's...

Just had an onc appointment. At my last ctscan in September there was no sign of...

pixinafix

•11 years ago

25 Replies

Off to RM Sutton tomorrow

Grrh, just lost the lengthy post I was typing. Still, it means I am no longer inspired to write at such length so you are spared! Lol. DD, DH and I are off...

Grrh, just lost the lengthy post I was typing. Still, it means I am no longer in...

Honey3

•11 years ago

30 Replies

Do you have 3 minutes to complete an online survey?

The AllTrials Campaign, which calls for all clinical trials to be registered, and the results reported in the public domain would like to know more about UK...

The AllTrials Campaign, which calls for all clinical trials to be registered, an...

SoniaOvacome

•11 years ago

13 Replies

Bowel Problems

Hello ladies, Its been eight weeks since my surgery and I have recovered very well and am due to go back to work on Monday. When I had my surgery for a...

Hello ladies, Its been eight weeks since my surgery and I have recovered very we...

doodoolatrice

•11 years ago

4 Replies

It seemed like a good idea at the time

To book a holiday in January. In England. In the Cambridgeshire Fens. What could possibly go wrong? That was our thinking last week when we made the booking...

To book a holiday in January. In England. In the Cambridgeshire Fens. What could...

citrine

•11 years ago

47 Replies

OC group in West Essex/North or East London

Does anyone know of an OC group in any of these areas? Thanks, Elaine x

elainebuchi

•11 years ago

9 Replies

A question, but be gentle with me...

I have been reading about lots of people who have had OC at a more advanced level than I was, who had a hysterectomy but did not have chemo after, most were...

I have been reading about lots of people who have had OC at a more advanced leve...

Lily-Anne

•11 years ago

21 Replies

Am about to start Rotterdam Regimen end of January. 1st diagnosed 2001 6 x carbo/taxol. Recurrence 2009. This is new chemo for me any tips

hil65wil

•11 years ago

10 Replies

Hi :)

Hi there, i posted a few months ago regarding problems i was having with repeated smears with abnormal cells resulting in two colposcopy's. A few of you...

Hi there, i posted a few months ago regarding problems i was having with repeate...

underactive_stevie

•11 years ago

22 Replies

New support Group. East Berkshire

I am starting a new support group : East Berkshire ovarian cancer support group Www.eastberkshire-ovariancancer-supportgroup.co.uk. St Mark's Hospital St...

I am starting a new support group : East Berkshire ovarian cancer support group ...

MidwifeGill

•11 years ago

11 Replies

Hair Dye????!!!! Or Not!!!!

How soon, and is it safe, to dye or highlight your hair when it starts growing after chemo? Do you have to use 'natural' hair colorants as opposed to the...

How soon, and is it safe, to dye or highlight your hair when it starts growing a...

HopeP

•11 years ago

14 Replies

Platinum resistant

Had a upsetting visit to oncologist yesterday, she says my ca 125 is not falling, with the last 3 rounds of chemotherapy still at 257.... ,That I have become...

Had a upsetting visit to oncologist yesterday, she says my ca 125 is not falling...

MidwifeGill

•11 years ago

12 Replies

Round 3

Struggled to get to my gynae/oncology appointment yest due to the white out conditions we experienced here in NE Scotland during rush hour but I made it...

Struggled to get to my gynae/oncology appointment yest due to the white out con...

harley

•11 years ago

9 Replies

Weekly doses of taxol

Has anyone experienced a reasonable remission after a 18 weekly taxol regime. Hugs to all x

Has anyone experienced a reasonable remission after a 18 weekly taxol regime. Hu...

nikki9

•11 years ago

9 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for January 2013

Does anyone suffer from breathlessness on exertion five days after Chemo

Another question! 12 days post op, mum started getting pain in lower back, appears to be coccyx area. Any thoughts?

Ca125 over 500 less than 6 weeks from chemo

I had to stop my oxyplatin chemo because of related colitis.Three monthly CT scans show the tumour as slightly shrunk but stable.

Good News

Trapped Wind

Has anyone shaved their head before their hair dropped out?

Truffle Festival at Uzès

Get together for anyone affected by hereditary ovarian or breast cancer on Sunday 3rd February

Ladies lunch club

nhs voucher for wig?

News from Ovarian Cancer Action Research - Treatment of Ascites

I've ditched that ba$#ard at last! In rhyme, this time...

Onc highly recommend hrt. Stage 2 low grade. What do u think

Asking again. Any long term stage 2 low grade survivors out there.

Bed sores post surgery?

The carboplatin didn't work.

Off to RM Sutton tomorrow

Do you have 3 minutes to complete an online survey?

Bowel Problems

It seemed like a good idea at the time

OC group in West Essex/North or East London

A question, but be gentle with me...

Am about to start Rotterdam Regimen end of January. 1st diagnosed 2001 6 x carbo/taxol. Recurrence 2009. This is new chemo for me any tips

Hi :)

New support Group. East Berkshire

Hair Dye????!!!! Or Not!!!!

Platinum resistant

Round 3

Weekly doses of taxol

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