Ca125 over 500 less than 6 weeks from chemo

I had my check up today, and it wasn't good news. The ca125 has risen to over 500 so it looks like the chemo hasn't worked. I've got a scan on Weds, so the onc can see what's happening. He has started me on the tamoxifen, and has said unless the scan shows anything that needs immediate chemo, wants to give it 4 weeks to see if it stabilises. I suppose its possible he rise is due to something else....yeah right! What's really irritating is I've had no problems, chased my daughter round with snowballs, I'm walking a reasonable distance, managing the cooking etc. the only concerns I've had was the weight gain and in the last few days a slight discomfort when going to the toilet, I've put that down to either the cold or not drinking enough, still think it could be!

Oh well, lets hope the tamoxifen works, as that way I won't need to go into round 3 when I've not got over round 2 properly yet!



10 Replies

  • Dear Chris

    This is a blow. Let's hope the scan Wednesday gives some indication as to what needs to be done.

    I think the main thing is you're feeling well and keeping active. My oncologist always says she takes that as a major indication of what's going on inside. I'm keeping my fingers crossed for you. Please let us know how you're getting on. If the last lot hasn't worked too well they usually have a lot of other ideas up their sleeves.

    Loads of love xxx Annie

  • I know how much worry you must be feeling but CA125 can be raised for several reasons. Have you had any infections lately? A cold or cough, maybe. It could be something like that, I believe. Th sedan will give your medical team a clearer idea and, as Annie says, they will no doubt have some new ideas to try. I hope so. I'll be thinking of you on Wednesday and sending you lots of good wishes. Let us know how you get on

    Love Wendy xx

  • I did have a cold just after Christmas and antibiotics just in case. The cough is still hanging around, but as I have asthma that's normal! Well, you never know, I might be lucky! At this stage the main thing is that the tamoxifen works, if it stops the beast growing that's brilliant!

    Love chris

  • Dear Chris

    So sorry to hear this, it must be so worrying for you. Sometimes it seems like such an uphill battle, but we keep on fighting. Hope the scan will give you good news, will be thinking of you on Wednesday.

    Take care, and keep us posted.

    Love Linda xx

  • Hi Chris so sorry to hear your news what a blow and a shock especially since you have been feeling so well . Has he planned another scan as there are other reasons such as infection that can raise your results . sending hugs and prayers


  • Sorry to hear this Chris. Thiugh i would be EXACTLY the same in your place,I do think doc probably right - wait and see what if any cause before you decide that's it, in for round 3. And tamoxifen is very effective for some people in any case. Hang in there.


    Sue xxx

  • Must have been a blow as you feel so well, Hang in there, hope the scan shows no further treatment needed xx

  • So sorry to hear this. Keep going.

    Kathleen xx

  • Yes, hopefully tamoxifen will work.

    Good luck.


    Eileen xx

  • Hi there Chris ,

    Thinking of you xxx

    Love Jan xxxx

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