Struggled to get to my gynae/oncology appointment yest due to the white out conditions we experienced here in NE Scotland during rush hour but I made it eventually. While I knew what to expect, i.e. round 3 about to kick off, it is very difficult trying to explain to friends and family that this was to be expected, they had no idea that recurring OC or PPC as in my case does happen.
She gave me several choices -
1 - leave off chemo until I really feel unwell - No Way.
2 - I could have Cisplatin/Paclotaxel or Paclotaxel on its own as it does the business too - now why would I opt for more side effects if Paclotaxel "does the business". very confusing,
I eventually told her that I was in her hands, what does she feel would be best?
Awaiting dates to start, I am sure I have read about people getting 3 week Paclotaxel, what experiences can you share. If at the mid cycle scan we discover that it is not working they will start me on Cisplatin as well, again if any of you ladies can share any experience of this i would be very grateful.
Has there ever been any campaign to get more research done into curing this blasted affliction once and for all? is there anything we can do? I have to say I am more annoyed than comforted when I read about survival rates of 5 years,(improving) - is that 5 years living with yearly cycles of chemo or what?
Any other ladies feel as frustrated as me and want to do something?
Anyway - away to take my mind off it and polish my Harley in the hope that summer weather WILL come this year!
Hugs to all