weird blister type rash?: so I was wondering if... - LUPUS UK

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weird blister type rash?

Lulamay7 profile image
17 Replies

so I was wondering if any of you lovely people have seen anything like this before and tell me how to get rid of it. It started as a single raised blister that's spread in have patches on hands arms legs so far.

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Lulamay7 profile image
Lulamay7
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17 Replies
KayHimm profile image
KayHimm

Are you on medications? I would call your GP. Is the rash anywhere else or only on hands? If it starts to spread, you maybe should go to urgent care.

Feel better.

Kay

littleeed profile image
littleeed in reply to KayHimm

Morning. I have this on my foot at the moment. I have had this on and off since being diagnosed with SLE 14 years ago. In fact that was one of the first signs before the discoid rash developed all over my face and body. I am having a flare up at the moment and am on short course of steroids until I get to see my rheumatologist face to face since 2019. Should have been on the 5th July but just as we were setting off for the hospital I had a call to say that unfortunately the afternoon clinic was cancelled. !!!☹️. I am keeping everything crossed for the appointment in September 🤞🤞. The steroids are starting to work on the foot, a bit more slowly on the face rash and eyes. Get it checked out though as everyone one is different. Take care. 😊

Turquoise-1 profile image
Turquoise-1

Good morning Lulamay7,I’ve had the exact same ‘rash’ on my face & nose; it’s alarming isn’t it?

Consultant Rheumatologist I saw said it was to do with Lupus - I showed him photos & continue to add photos as a log/journal.

Having only been diagnosed with SLE Lupus 20/06/22 & recently starting Hydroxychloroquine, I still experience all sorts of skin problems & scalp problems - am waiting Dermatology appointment.

I don’t find anything helps at all to prevent the rashes, but Dermol 500 lotion helps with skin dryness & no harsh rubbing/exfoliating of face.

All the best to you 🙃

Lulamay7 profile image
Lulamay7

Thank you for the replies. I managed to get a telephone gp appt and he's prescribed betnovate, I've got the tiniest tube lol. Woke up this morning to a load more. I'll get some dermol500. I was wondering if it might be an allergic reaction to something, possibly sunshine?

Barnclown profile image
Barnclown in reply to Lulamay7

Betnovate helped my version of this lots 🍀🤞✌️💞 Coco

SecondLife profile image
SecondLife

I get those as well, mine are limited to my hands and the base of my neck on to my chest, I have taken photos with me to hospital appointments etc. but no one has told me what it is, I have told to use hydrocortisone cream and this seems to work. There was some discussions that it is a type of eczema

Pickzie profile image
Pickzie

Is the rash on sun exposed skin? If so could be lupus UV reaction. I use fucibet cream (antibiotics and steroid) and high strength fexafenadine tablets (antihistamine). Both need a GP prescription. Could also be nhs.uk/conditions/bullous-p...

Hope it settles quickly for you

Lulamay7 profile image
Lulamay7 in reply to Pickzie

I was wondering about a sun allergy.

llewelyn2405 profile image
llewelyn2405

Hi there. I have SLE and I get these blister type spots too, generally on my wrists. I am told by the Rheumatologist that it is lupus related. They generally appear with stress but will go away on their own, for me anyway. Hope I have helped.

Joesbra profile image
Joesbra

I get really itchy with blisters round my labia sometimes. Or else blisters in my chest neck chin and sometimes back. Awaiting my diagnosis. Anyone else get this?

Carcrashgal profile image
Carcrashgal

My lupus was diagnosed around 15 years ago by a dermatologist via a Big Itch which covered my body. It explained all the rest of the otherwise inexplicable symptoms we all know and . . .. The itch flares up every now and then, now mostly on my face, neck and chest - until a week ago. I got bitten b y some sort of insect on both calves and used my trusty Aspivenin venom extractor - and for the first time in 30 years or more, not only did it not work, it appeared to make matters way worse. Not only did I get those blister things, but it felt like it had spread the poison all over my calves . . . As a result, my entire lower legs have been on fire - and this despite Fexofenadine (largest dose). I started with Eurax, which did absolutely nothing, then moved on to Betnovate, which gives me around 30 minutes' relief. I'm alternating the last of my Freezy gel (as I can't seem to find any anywhere) with iced flannels . . . So any other advice just as gratefully received. (As my GP doesn't believe I have lupus, he'd not be much use, even if I could get an appointment!!) So do I pop the blisters or leave them? Put plasters on - or leave them? Would Fucibet work better? (I have a tiny bit left from the last flare . . .) Thanks, all. I know we all keep saying it, but your advice, support and stories are the biggest resource and comfort in my life!

Paprika60 profile image
Paprika60

I have urticarial vasculitis and lupus and I used to get a lot of blistering hives (some as big as 1 centimetres ) all over my body but they mostly disappeared once Hydroxy (initially 400mg and now down to 200mg) got into my system. Sometimes they came up filled with blood which made me feel worse. I still get ones like yours when I have heat rash caused by contact urticaria (tight clothing item such as bra strap). I use aloe vera gel to calm them and wait for them to disappear (takes days). If they pop, I make sure to keep them cleaned and dried. Important not to get stressed out. Hope you feel better soon.

Tykle profile image
Tykle

Hi Lulamay, I get a blister rash with the sun and have done for many years, although I'm usually pretty good at avoiding it. This is a bit on my wrist where my sleeve rode up whilst driving. It took me a few minutes to realise and this was the result! I fond the blisters start small and then join together. I have had many things to put on it but nothing yet has made it clear up more quickly.. If I knew there would be other areas affected (in the sun) I'd have prednisolone to stop it developing further but otherwise I let it clear up on its own. It is usually gone in a couple of weeks. I don't know if yours is due to the same cause but when mine was looked into, it was attributed to lupus.

sun blister rash
Smudge4465 profile image
Smudge4465

I’ve had a bad flare in the past with large blisters all over. I have lupus SLE. Strong Steroids were the only solution. The strength administered will be given after assessment by doctors. 50/50 cream is hydrating, cooling and soothing. If the rash develops further on body seek medical attention quickly to stop it in its tracks. I take daily steroids and weekly dose methotrexate to keep it at bay. Allergic to hydroxy. Hope this helps and yr feeling better soon.

Lulamay7 profile image
Lulamay7

Thanks for the advice, got some steroid cream and taking antihistamine tablets also. Didn't have any new blisters this morning which is nice, am staying indoors till it goes away! Will let rheumy know when I see her next have lots of pics. Assuming of course I remember by then, lol

Note my diagnosis is Stills Disease which for me manifests as RD with skin issues too. I have Lichen Sclerosis and am prescribed steroid ointment that works.I have a torso rash of tiny blisters that bleed when scratched, are very sore and extremely itchy. I wonder if it’s lichen planus. I have a constant sore throat that I attribute to Stills as it was the herald of the illness 40 years ago but have read that untreated throat infections can cause skin ‘rashes’. As my GP is disinterested I’m treating my torso rash with the steroid ointment and it’s helping. It’s spreading however and worrying.

Hope you get some answers.

Betty909090 profile image
Betty909090

Could this be some kind of wart rather than a blister?

Some images of warts can look like that.🧐

I’m looking at those raised pinkish white spots on that finger!

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