Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,374 members•28,714 posts

All posts for January 2025

Hydroxycloroquine and eye twitching

Hello, has anyone experienced eye twitching whilst taking Hydroxycloroquine? Just wondering whether this is a known side effect and whether I need to seek...

Hello, has anyone experienced eye twitching whilst taking Hydroxycloroquine? Jus...

Fika500

•2 days ago

4 Replies

Hi I have SLE have had it 27 years. I have lost a lot of hair, can anything be done about it?

Hi I have SLE I have had it 27 years. I have lost a lot of hair, is there anything I can do about it. Elise

Hi I have SLE I have had it 27 years. I have lost a lot of hair, is there anythi...

Elise3457

•2 days ago

1 Reply

Hip Arthroscopy done!

Hi all ,Had my hip arthroscopy last week successfully and recovering well from it. What amazing leg range I have now compared to what I did not have before....

Hi all ,Had my hip arthroscopy last week successfully and recovering well from i...

KnitSewPurl

•3 days ago

2 Replies

Want to take advantage of all our features? Just log in!

Herbal Alternatives

I was diagnosed with SLE and APS around 25 years ago ; I take Warfarin to control my blood INR and have little or no trouble with this. The inflammation and...

I was diagnosed with SLE and APS around 25 years ago ; I take Warfarin to contro...

jamesroybuck

•4 days ago

16 Replies

Methotrexate

Hi all has anyone noticed weight gain whilst on methotrexate

Flows

•4 days ago

4 Replies

Spot Hugo......

Here is Hugo sussing out the rare occurrence of more than 6 flakes of snow in coastal Cumbria. Thank you to everyone for your messages of support , recovery...

Here is Hugo sussing out the rare occurrence of more than 6 flakes of snow in co...

Spanielmadlady

•4 days ago

28 Replies

sore fingertips

hi my husband has MCTD first flare started august 24 and still suffering. diagnosed December 24 and started both Hydroxychloquine and Mycophenolate then, been...

hi my husband has MCTD first flare started august 24 and still suffering. diagn...

Jrob14

•4 days ago

3 Replies

Looking for opinions

Good afternoon was diagnosed with pericarditis back in April was having chest pain that I get every 2 months really bad for about 2weeks they say I have...

Good afternoon was diagnosed with pericarditis back in April was having chest pa...

Ilovemydogs2025

•4 days ago

5 Replies

I survived.......

Now I start on the long road to recovery. Xx

Spanielmadlady

•5 days ago

36 Replies

MCTD and Fatigue and sleep

Hi I'm never sure which group to post these in because I have overlap autoimmune so if there is a group more suitable to this lost please let me know. I've...

Hi I'm never sure which group to post these in because I have overlap autoimmune...

Awwy

•5 days ago

16 Replies

Can immunodeficiency cause false negative results on ANA and other antibody tests?

I have had several medical episodes over recent years where the suspected cause has been autoimmunity. Each time I am screened and I have been referred to an...

I have had several medical episodes over recent years where the suspected cause ...

FruityBubbles

•5 days ago

1 Reply

Question about flares...

I am just wondering if there are flares with Lupus? I have had RA since I was 13, but lupus was just discovered recently in 2020. I had this strange experience...

I am just wondering if there are flares with Lupus? I have had RA since I was 13...

Willow7733

•5 days ago

6 Replies

Lupus Jessner's High RF & Graves Disease

I think this is more an info post, rather than questions.. Simply because I've been lurking for years looking for answers and maybe this will help someone....

I think this is more an info post, rather than questions.. Simply because I've b...

Ajontheedge

•5 days ago

2 Replies

rib / back pain

Hello , hope I can post here. I have had a undifferentiated connective tissue disorder for around 12 years . On methotrexate and hydroxachloroquine. No longer...

Hello , hope I can post here. I have had a undifferentiated connective tissue d...

4youreyesonly

•7 days ago

9 Replies

ANA positive and ds-DNA positive but ENA negative

I have tested positive for ANA and ds-DNA several times but always negative for ENA through NHS. I paid for a private blood test that gave me a titre 1:320 and...

I have tested positive for ANA and ds-DNA several times but always negative for ...

ForeverIntrigued

•7 days ago

13 Replies

Lupus and IVF

have lupus, and I ve been on hcq, pred , azathioprine and aspirin since 2016

Knowledgeispower1

•7 days ago

1 Reply

Hair loss

I haven't yet disclosed this , but as well as my SLE , I also have significant hair loss the hair loss has now been diagnosed as alopecia. My partner noticed...

I haven't yet disclosed this , but as well as my SLE , I also have significant h...

Liz2304

•8 days ago

6 Replies

The University of the West Of England (UWE), Bristol, need your help with a research study!

The University of the West of England (UWE), Bristol, is looking for men diagnosed with Systemic Lupus Erythematosus (SLE) for a survey study. They would like...

The University of the West of England (UWE), Bristol, is looking for men diagnos...

nakita_cambow

Moderator•8 days ago

Be the first to reply

The University of the West Of England (UWE), Bristol, need your help with a research study!

The University of the West of England (UWE), Bristol, is looking for individuals of ethnic minority groups diagnosed with Systemic Lupus Erythematosus (SLE)...

The University of the West of England (UWE), Bristol, is looking for individuals...

nakita_cambow

Moderator•8 days ago

Be the first to reply

LUPUS ADVICE APPRECIATED-NOT DIAGNOSED.

Where do I start?!, apologies. It’s a long one. About 8 years ago I started getting problems around the same time: Photo sensitivity with lesions on my...

Where do I start?!, apologies. It’s a long one. About 8 years ago I started ...

AvocadoAddict

•8 days ago

2 Replies

feeling slightly defeated.

so I went to the rheumatologist today. after explaining aches , skin changes , other little symptoms like putting edema , headaches and such .. he does a...

so I went to the rheumatologist today. after explaining aches , skin changes , ...

Sammie1392

•8 days ago

3 Replies

Hairloss - possible products to use

A slightly late Happy New Year everyone. I hope you are well and keeping out of trouble 😄 I've seen and read a fair few posts here related to hair loss, and...

A slightly late Happy New Year everyone. I hope you are well and keeping out of ...

SurferGuy

•8 days ago

7 Replies

How do you know if it's a Lupus flare up?

I have been diagnosed with cutaneous lupus and have continual symptoms of dull headache, painful joints, sore calves, mouth ulcers, deterioration in eyesight,...

I have been diagnosed with cutaneous lupus and have continual symptoms of dull h...

Sunny_bear

•9 days ago

3 Replies

I’m having what feels like vibrations

Hi everyone, I’m just wondering if anyone else gets vibrations in their feet and legs sometimes in the upper body. Is this inflammation? I don’t get it all...

Hi everyone, I’m just wondering if anyone else gets vibrations in their feet and...

CindersSue

•11 days ago

6 Replies

Vaccines

happy new year 🥳 Has anyone traveled abroad to India with lupus and taken typhoid malaria tetanus polio vaccines is it safe ?

happy new year 🥳 Has anyone traveled abroad to India with lupus and taken typ...

Mystik

•11 days ago

5 Replies

Does Methotrexate cause weight gain?

Im just starting Methotrexate and Im hoping it works well for me. Im already overweight and trying hard to loose the pounds. Does anyone have any advice if the...

Im just starting Methotrexate and Im hoping it works well for me. Im already ove...

Shann07

•11 days ago

4 Replies

thrombosis of Palmer digital vein

does anyone else get this?

Sammie1392

•11 days ago

1 Reply

HRT patches?

Has anybody ever had issues with using HRT patches with Lupus???I had no issues for first 2 months then for last 10 days I've need heavily ( haven't had a...

Has anybody ever had issues with using HRT patches with Lupus???I had no issues ...

Freshgirl

•11 days ago

4 Replies

light sensitivity

I am struggling with the strip lighting in the workplace and wondered if anyone has any tips for minimising this? Would wearing tinted glasses help? The...

I am struggling with the strip lighting in the workplace and wondered if anyone ...

Sushilovey

•12 days ago

6 Replies

Routine Tests

As patients in some areas of UK are not been seen regularly in NHS clinics any more, and routine blood and urine tests being left to the patient and the GP to...

As patients in some areas of UK are not been seen regularly in NHS clinics any m...

GLRocc

•12 days ago

23 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2025

Hydroxycloroquine and eye twitching

Hi I have SLE have had it 27 years. I have lost a lot of hair, can anything be done about it?

Hip Arthroscopy done!

Herbal Alternatives

Methotrexate

Spot Hugo......

sore fingertips

Looking for opinions

I survived.......

MCTD and Fatigue and sleep

Can immunodeficiency cause false negative results on ANA and other antibody tests?

Question about flares...

Lupus Jessner's High RF & Graves Disease

rib / back pain

ANA positive and ds-DNA positive but ENA negative

Lupus and IVF

Hair loss

The University of the West Of England (UWE), Bristol, need your help with a research study!

The University of the West Of England (UWE), Bristol, need your help with a research study!

LUPUS ADVICE APPRECIATED-NOT DIAGNOSED.

feeling slightly defeated.

Hairloss - possible products to use

How do you know if it's a Lupus flare up?

I’m having what feels like vibrations

Vaccines

Does Methotrexate cause weight gain?

thrombosis of Palmer digital vein

HRT patches?

light sensitivity

Routine Tests

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive