Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,374 members•28,714 posts

All posts for December 2024

The Importance of Doing Life

I have Lupus with increasing connective tissue pain as it wears down and osteoarthritis in hands feet hips. Pain is like many of us, never really gone;...

I have Lupus with increasing connective tissue pain as it wears down and osteoar...

MrsMarigold

•18 days ago

10 Replies

Hello

Hope everyone had a good Christmas? . Due to my lupus being severe at the moment , I'm going to the hospital every 2 weeks to see my consultant, currently...

Hope everyone had a good Christmas? . Due to my lupus being severe at the momen...

Liz2304

•19 days ago

6 Replies

sleep study update for those who were interested

dear all lovely members I’ve posted previously about my ongoing headache (which i only get between 3am and waking ). You may remember I had a sleep study done...

dear all lovely members I’ve posted previously about my ongoing headache (which...

Tiggywoos

•20 days ago

22 Replies

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related cancer risk

hi husband very recently diagnosed with mixed connective tissue disease and informed by Rheumatologist has some antibodies which show a hidden cancer-but no...

hi husband very recently diagnosed with mixed connective tissue disease and info...

Jrob14

•21 days ago

35 Replies

Hi. Glad to be here

Hi, I am currently on what looks like a Lupus journey after being diagnosed with microvascular angina in 2022 because of my tiredness and breathlessness which...

Hi, I am currently on what looks like a Lupus journey after being diagnosed with...

Grey_Hound_Owned

•22 days ago

3 Replies

Happy Christmas to all....

Wishing everyone a restful Christmas.....Feet up folks let someone else do the dishes 😊 from SML & Hugo xx

Wishing everyone a restful Christmas.....Feet up folks let someone else do the d...

Spanielmadlady

•24 days ago

21 Replies

skin flare ups SLE

Hi Everyone, I have been on HCQS 300 for 2.5 years now but that has not stopped flare ups including red rashes on my face , mouth ulcers on the roof of mouth...

Hi Everyone, I have been on HCQS 300 for 2.5 years now but that has not stopped...

NY22

•25 days ago

4 Replies

Is this a lupus rash of some sort?

Being investigated currently . But does anyone else get rashes like this ? I can only post one picture, unfortunately. This is the most current. Although...

Being investigated currently . But does anyone else get rashes like this ? I...

Sammie1392

•26 days ago

3 Replies

Marry Christmas, everyone

And here's hoping for a happy, healthy and pain-free - or at least dealable-with! - 2025!

And here's hoping for a happy, healthy and pain-free - or at least dealable-with...

Carcrashgal

•26 days ago

3 Replies

Christmas wishes 🎄

wishing everyone a very happy and merry Christmas and all the very best for 2025 let’s hope it’s a good one for everyone 🥰♥️

wishing everyone a very happy and merry Christmas and all the very best for 2025...

jopo280886

•27 days ago

2 Replies

Persistent cough

Hi, I have SLE and for over 10 years have a cough that just won’t go away. Doctors have tried various treatments without much luck. I wondered if anyone else...

Hi, I have SLE and for over 10 years have a cough that just won’t go away. Doct...

prescilla

•27 days ago

8 Replies

Cutie Christmas

Hello everyoneI hope your all as well as possible for the festive season and you like all these woodland characters!. I just wanted to say a big THANK YOU for...

Hello everyoneI hope your all as well as possible for the festive season and you...

misty14

•27 days ago

45 Replies

does anyone else’s clothes leave impressions on their skin?

so this may be a weird one . Everything I wear almost.. sports bras, pants , stretchy yoga pants, socks, bracelets… they all leave impressions on my skin....

so this may be a weird one . Everything I wear almost.. sports bras, pants , ...

Sammie1392

•30 days ago

35 Replies

Newly diagnosed?? looking for support and advice

GP diagnosed SLE and SS in September 2024 from positive blood tests - after years of constantly complaining, being in pain and not being listened to -...

GP diagnosed SLE and SS in September 2024 from positive blood tests - after year...

Nene2023

•1 month ago

5 Replies

lupus & collapsed veins?

I’m on fortnightly blood tests and last couple months my veins seem to have given up. The nurses just can’t get blood to come out, I sit there with the needle...

I’m on fortnightly blood tests and last couple months my veins seem to have give...

Beau2016

•1 month ago

8 Replies

Hello

I was only recently diagnosed with SLE this October, after battling for 15 months with various symptoms. After several blood tests we finally have my...

I was only recently diagnosed with SLE this October, after battling for 15 month...

Liz2304

•1 month ago

4 Replies

Dermatologist discharge after looking at photos sent current and historical and CT Contrast Dye reaction/Allergies

Hi everyone, just thought I updated all and let you know that Dermatologist have discharged me but said I can make a self referral within 6 months if there is...

Hi everyone, just thought I updated all and let you know that Dermatologist have...

KnitSewPurl

•1 month ago

1 Reply

what was your CRP?

I have another question for everybody. When you got your diagnosis, were you in the middle of a flare? what was your CRP? I’ve been feeling pretty good...

I have another question for everybody. When you got your diagnosis, were you ...

Sammie1392

•1 month ago

4 Replies

Vitamins for Lupus

Hi All, Hope this finds you all well. Wanted to ask which vitamins you take to keep you topped up with energy, and that doesn’t interfere with stimulating...

Hi All, Hope this finds you all well. Wanted to ask which vitamins you take to ...

Gooner786

•1 month ago

6 Replies

joint pain with no visible swelling?

anyone experienced joint pains without visible swelling ? My hands feel stiff and puffy as do my feet sometimes , but no visible signs of swelling. Is it just...

anyone experienced joint pains without visible swelling ? My hands feel stiff an...

Sammie1392

•1 month ago

8 Replies

New research survey from the University of Cambridge

Lupus, rheumatology and other autoimmune diseases patient survey from the University of Cambridge. This survey asks about your medical relationships, disease...

Lupus, rheumatology and other autoimmune diseases patient survey from the Univer...

Debbie_kinsey

Administrator•1 month ago

5 Replies

PIP Review - supporting evidence

Hi everyone I’ve just received my dreaded pip review form. My question is does everyone here send supporting evidence with their form. I currently receive...

Hi everyone I’ve just received my dreaded pip review form. My question is does...

Shann07

•1 month ago

15 Replies

Every lupie needs one....or 7

Saw this and just had to have it x

Spanielmadlady

•1 month ago

11 Replies

Finally got a date....

My boys wanted to say hello and spread abit of Christmas cheer. Anyhooo...... my main news is I've finally got a date for the reconstruction surgery on my...

My boys wanted to say hello and spread abit of Christmas cheer. Anyhooo...... my...

Spanielmadlady

•1 month ago

19 Replies

any insights ?

have t been diagnosed yet, but have consult in January with a rheumatologist. Has anyone else experienced things that look similar? I get these red...

have t been diagnosed yet, but have consult in January with a rheumatologist. Ha...

Sammie1392

•1 month ago

2 Replies

Unusual symptoms help -update

Hi, I am reaching out to see if anyone can give suggestions on some odd symptoms I have had over the last two years. I have been doing the rounds with...

Hi, I am reaching out to see if anyone can give suggestions on some odd symp...

F9927

•1 month ago

39 Replies

The Wren Project

Hi lovely Lupies, I hope that you are as well as you can be and looking forward to the Christmas festivities? Just a quick post to say that today I had my...

Hi lovely Lupies, I hope that you are as well as you can be and looking forward ...

CecilyParsley

•1 month ago

10 Replies

Advice on bloods/questions to ask

Hi you lovely lot - hoping you are all on a good day and feeling better than yesterday. I wanted to ask any suggestions on what to ask re bloods/tests results...

Hi you lovely lot - hoping you are all on a good day and feeling better than yes...

smeackles

•1 month ago

4 Replies

Vegan and allergy free medications

Hi all. Hope this is ok to post here but someone local to me has started a petition to advocate for allergy free and vegan medications. I know loads of us here...

Hi all. Hope this is ok to post here but someone local to me has started a petit...

Treetop33

•1 month ago

6 Replies

should we be seen at regional centre of excellence

hi husband has severe symptoms for 4 months now (fatigue, shortness of breath, rash, joint pain, nausea, weight loss and more) just diagnosed with connective...

hi husband has severe symptoms for 4 months now (fatigue, shortness of breath, ...

Jrob14

•1 month ago

9 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for December 2024

The Importance of Doing Life

Hello

sleep study update for those who were interested

related cancer risk

Hi. Glad to be here

Happy Christmas to all....

skin flare ups SLE

Is this a lupus rash of some sort?

Marry Christmas, everyone

Christmas wishes 🎄

Persistent cough

Cutie Christmas

does anyone else’s clothes leave impressions on their skin?

Newly diagnosed?? looking for support and advice

lupus & collapsed veins?

Hello

Dermatologist discharge after looking at photos sent current and historical and CT Contrast Dye reaction/Allergies

what was your CRP?

Vitamins for Lupus

joint pain with no visible swelling?

New research survey from the University of Cambridge

PIP Review - supporting evidence

Every lupie needs one....or 7

Finally got a date....

any insights ?

Unusual symptoms help -update

The Wren Project

Advice on bloods/questions to ask

Vegan and allergy free medications

should we be seen at regional centre of excellence

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