Hot hands/feet

[Big-frog]

Hi I was just wondering if anyone else has had this with their Lupus?

I have poor circulation and my hands and feet are usually cold, I also get Reynaud's phenomenon but mostly in the winter. When my hands or feet get warm they become swelled, itchy and uncomfortable. I am really struggling at the moment at night with this as my feet and hands get so uncomfortably hot and itchy that I am finding it hard to sleep, I get a rash on one of my fingers when it gets too hot at night and it gets painful and blisters. My bedroom is cool and im not to hot in general it's just my hands and feet.

I have started sleeping with cool gel packs at night but they are hard to keep on my feet and hands as I toss and turn a lot because of my aching at night. Has anyone else had this? If so does anyone have any tips on how to manage this?

Thank you!

[bethhorton]

same i get this swell. Its so uncomfortable

[Poshcards]

maybe put on light cotton socks and insert gel pads in them x

[Big-frog in reply to Poshcards]

Thank you, that's a great idea! I will give it a go

[honeybug]

Hi Big-frog 😊🌿🌸🦋

I’m so sorry you are suffering so much. I have Raynaud’s Phenomenon too. I also suffer with Erythromelalgia (mine is inherited).

The symptoms you describe are the same as mine. Ask your chemist for a product called Aspercreme or one that’s UK version. The product needed is made of Lidocaine.

I rub it all over my feet before bedtime. It calms the nerves.

There is a web site that is for burning hands and feet:

burninghandsandfeet.com

They can explain it to you well because it’s presented by sufferers.

I am using a medication called Paxil (off label meaning for other conditions than original and customary use) and having great success. It prevents the severe symptoms I suffer and also calms down my hands.

I hope this helps you. Feel free to contact me if you have questions. I’m always glad to help if I can.

Take care and best wishes.

Love and prayers

EJ 😊🤗♥️🥰🙏🕊🌿🌸🦋

[MusicalFurbaby]

Hi Big-frog, I used to get hot hands and feet prior to starting on hydroxy. I would also get random hot rashes all over my body, plus blister-type sores on my fingers and toes. Hydroxy has resolved about 90% of these rashes; I no longer get the hot hands and feet, though I still get the sores on my fingers and toes. I’ve had them biopsied and been diagnosed with vasculitis. They’re still painful, so I apply a topical cream called Anusol when they’re really itchy or burning.

I haven’t had the poor circulation you describe, so our issues might be different in nature and origin! All I can say is I need to keep my feet warm, but not too warm or else they sweat, which triggers more sores! But the hydroxy really has made life more bearable in that department. All the best to you