Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,589 members•28,876 posts

All posts for February 2025

My Lupus Diagnosis and Current Health Struggles

Hey all!!!!! I was diagnosed with lupus in November 2023 in Sri Lanka after consulting three rheumatology specialists. They confirmed the diagnosis, and I was...

Hey all!!!!! I was diagnosed with lupus in November 2023 in Sri Lanka after cons...

Abarna

•21 days ago

20 Replies

Anyone take Ramipril blood pressure med?

Just been prescribed Ramipril for high blood pressure. I hate starting yet another medication to add to a very long list. Does this med cause weight gain -...

Just been prescribed Ramipril for high blood pressure. I hate starting yet anoth...

Shann07

•21 days ago

8 Replies

Hydroxychloroquine Reaction

I was diagnosed with SLE/RA about 17yrs ago. It settled down after a bit of trial and error with meds and had been very stable for many years with just 200mg...

I was diagnosed with SLE/RA about 17yrs ago. It settled down after a bit of tria...

Traveller125

•21 days ago

6 Replies

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Methotrexate

Hi all, I've been getting very itchy sore patches on my injection sites, does anyone else get this and if so how do you treat it?Thank you 😊 x

Hi all, I've been getting very itchy sore patches on my injection sites, does an...

Aurali

•22 days ago

4 Replies

Is this SIBO.

I’ve just posted this on SRUK forum but I know there are many UCTD people like me on this one so apologies for duplication if you’re on both like me!: Hello...

I’ve just posted this on SRUK forum but I know there are many UCTD people like m...

Halfwayuphill

•23 days ago

2 Replies

Lupus and cirrhosis of the liver

HiDoes anyone on here have any advice regarding cirrhosis of the liver... To cut a long story short 7 years ago this week I was rushed to hospital with my...

HiDoes anyone on here have any advice regarding cirrhosis of the liver... To cu...

MOOG144

•24 days ago

3 Replies

Headache advice

Hey guys! I’m just wondering if anyone has any tips for this headache that I can’t shift. Taking all the usual meds but it’s been constant for the last week...

Hey guys! I’m just wondering if anyone has any tips for this headache that I ...

Yaz91

•24 days ago

8 Replies

Red painful patch on my legs

Good morning all, I have had Lupus (SLE) for many years, on hydroxychloroquine, the last 6 months I am getting a painful red patch on the lower part of the...

Good morning all, I have had Lupus (SLE) for many years, on hydroxychloroquine, ...

Jenfy34

•24 days ago

1 Reply

worth mentioning?

I’ve added another post on my current dilemma.. I’m currently treated for connective tissue disease they’re not sure if it’s lupus or rheumatoid. I just wanted...

I’ve added another post on my current dilemma.. I’m currently treated for connec...

Tonkie

•24 days ago

87 Replies

Help. Tendonitis everywhere.

Hi everyone. About 18 months ago I had failed rotator cuff surgery. It failed so had reverse shoulder surgery. 6 months out from it and not sure this will...

Hi everyone. About 18 months ago I had failed rotator cuff surgery. It failed s...

MrsMarigold

•25 days ago

18 Replies

Tips on how to treat and prevent malar rash

Hi, I am currently dealing with my fifth malar flare since September. They're quick and intense, it seems I'm reacting to artificial UV white light because...

Hi, I am currently dealing with my fifth malar flare since September. They're qu...

Ziggidy

•25 days ago

2 Replies

2nd hospital bed in 6 wks...update I'm home 😊

Happy Monday my friends. So my recovery from surgery was ticking along nicely..... I was gaining more mobility and finally getting out for some fresh air on a...

Happy Monday my friends. So my recovery from surgery was ticking along nicely......

Spanielmadlady

•25 days ago

41 Replies

Painful shoulder joint

Hi, I am a 73 yrs old male. I was reasonable fit until I started with symptoms 6 months ago and I finally got my diagnosis of Lupus in February 2025. My...

Hi, I am a 73 yrs old male. I was reasonable fit until I started with symptoms ...

bofishandchips

•26 days ago

12 Replies

ANA homogenous & cytoplasmic pattern - what’s next?

Hi, newbie here, age 48 post-menopausal female. I’ve got severe chilblains on my toes at the moment, very swollen and brown discolouration, had Raynauds for...

Hi, newbie here, age 48 post-menopausal female. I’ve got severe chilblains on m...

ShonaGreen

•26 days ago

17 Replies

Alternative to hydroxychloroquine?

Hi my beautiful people, Just a quick one. I have been struggling to get used to taking hydroxychloroquine whereby I have to take a break for a few days, then...

Hi my beautiful people, Just a quick one. I have been struggling to get used to...

Ben19731

•26 days ago

1 Reply

Fish oil omega 3 supplements

Hi everyone, I Just wondering, does anyone take fish oil omega 3 supplements? I have read that it is very good for inflammation and has many other......

Hi everyone, I Just wondering, does anyone take fish oil omega 3 supplements? ...

field

•26 days ago

2 Replies

Advice/Help/Sympathy/Empathy/Solidarity needed..

This will be a long post, I’m sorry. I’m struggling with all of this. I’m on Methotrexate 20mg injections and Hydroxychloroquine. The injections were great at...

This will be a long post, I’m sorry. I’m struggling with all of this. I’m on Me...

Tonkie

•27 days ago

6 Replies

Lupus and Medication

Hi I am new to Health chats, I have Lupus was diagnosed at least 6 years ago and have been taking Hydroxychloroquine since. I have been experiencing joint...

Hi I am new to Health chats, I have Lupus was diagnosed at least 6 years ago a...

Sensory123

•27 days ago

26 Replies

Suspecting something lupus related…??

I’ve already posted all of my symptoms on here but I’ll post them again for context. I had my thyroid work up a few days ago and my T4 and TSH were normal, no...

I’ve already posted all of my symptoms on here but I’ll post them again for cont...

poppywildflower03

•29 days ago

9 Replies

Today in the mail online

Roy Keane's daughter 'thought life was over' amid incurable illness...

Spanielmadlady

•29 days ago

9 Replies

lupus & methotrexate injections

Hi I was diagnosed with lupus around 2 years ago I’ve been on plaquenil 200mg morning and night since and prednisone when I have flares but I’ve been in pain...

Hi I was diagnosed with lupus around 2 years ago I’ve been on plaquenil 200mg mo...

Pea_m

•29 days ago

13 Replies

lupus & methotrexate injections

Hi I was diagnosed with lupus around 2 years ago I’ve been on plaquenil 200mg morning and night since and prednisone when I have flares but I’ve been in pain...

Hi I was diagnosed with lupus around 2 years ago I’ve been on plaquenil 200mg mo...

Pea_m

•29 days ago

4 Replies

Hot flashes and red rash on cheeks

Has anyone experienced sudden hot flashes even when it is cold which coincides with a red facial rash? I get a red rash on my cheeks and sometimes over my...

Has anyone experienced sudden hot flashes even when it is cold which coincides w...

RA_123

•29 days ago

7 Replies

Prednisolone taken off repeats; “it’s an acute drug”, despite dose greater than 7.5mg for over 10 years

I noticed my GP surgery have taken my prednisolone off my repeat medication list “because I’m supposed to be reducing it and it’s an acute drug “. I feel...

I noticed my GP surgery have taken my prednisolone off my repeat medication list...

Cathyan

•1 month ago

15 Replies

Lupus induced from epilepsy meds.

Does anybody else have lupus symptoms from being on seizure meds for years?? I’m experiencing almost every symptom from Carbamazepine. I’m seeing a...

Does anybody else have lupus symptoms from being on seizure meds for years?? I’m...

Sheena000

•1 month ago

2 Replies

Is anyone else taking epilepsy medication because they had a seizure due to lupus?

I had a series of seizures when I first had lupus, it got into my brain and caused all types of havoc. I’m nearly 3 years down the line and am finally off...

I had a series of seizures when I first had lupus, it got into my brain and caus...

Bigbang2022

•1 month ago

5 Replies

Malar Rash in evening and night

does anyone know why my Malar rash starts to burn and become painful after approx 7pm at night. I get little or no pain from it during the day

does anyone know why my Malar rash starts to burn and become painful after appro...

Kerryann82

•1 month ago

6 Replies

lupus meds

anybody got experience of Belimumab (Benlysta) I’m just starting on this

Sun19shine

•1 month ago

10 Replies

needing some advice

hi don’t no if I have lupus? getting bloods done Tuesday ,, had a rash on my face few times last year painful joints neck stiffness shoulders and arm knees...

hi don’t no if I have lupus? getting bloods done Tuesday ,, had a rash on my fa...

Evegray

•1 month ago

17 Replies

Recently diagnosed, hoping for some good news!

Hi First of all, sorry about the length of my post. Where do I start? I am looking for some kind of good news or positives - it all feels really doom and...

Hi First of all, sorry about the length of my post. Where do I start? I am loo...

HettieBoo

•1 month ago

12 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2025

My Lupus Diagnosis and Current Health Struggles

Anyone take Ramipril blood pressure med?

Hydroxychloroquine Reaction

Methotrexate

Is this SIBO.

Lupus and cirrhosis of the liver

Headache advice

Red painful patch on my legs

worth mentioning?

Help. Tendonitis everywhere.

Tips on how to treat and prevent malar rash

2nd hospital bed in 6 wks...update I'm home 😊

Painful shoulder joint

ANA homogenous & cytoplasmic pattern - what’s next?

Alternative to hydroxychloroquine?

Fish oil omega 3 supplements

Advice/Help/Sympathy/Empathy/Solidarity needed..

Lupus and Medication

Suspecting something lupus related…??

Today in the mail online

lupus & methotrexate injections

lupus & methotrexate injections

Hot flashes and red rash on cheeks

Prednisolone taken off repeats; “it’s an acute drug”, despite dose greater than 7.5mg for over 10 years

Lupus induced from epilepsy meds.

Is anyone else taking epilepsy medication because they had a seizure due to lupus?

Malar Rash in evening and night

lupus meds

needing some advice

Recently diagnosed, hoping for some good news!

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