lupus & methotrexate injections

[Pea_m]

Hi I was diagnosed with lupus around 2 years ago I’ve been on plaquenil 200mg morning and night since and prednisone when I have flares but I’ve been in pain since October so my rhumatologist has decided to start me on methotrexate injections so I’m now on plaquenil 200mg in morning and night 20mg prednisone and 15mg methotrexate injections… is anyone on the same combination? I started the injections today and literally within half hour I felt extremely tired and this evening I’ve got all pains in my arms and legs I feel like I have the flu, has anyone experienced this ? Thanks so much for reading and if anyone could help.

[Emz04]

Hi I'm on the same with paracetamol and codeine in the mix too but they increased my injections to 20mg and I was after a few weeks side effects reduced and felt I had a little more energy and les stiffness and join swelling and pain I also notice my hair falling out less and growing on my legs again and able to reduce my steriods down to 10mg a day and also help with the nausea and gi issues I was having but it too a few weeks almost 3 months to see improvement. Altho the day my injection are due my old injection site becomes red and itchy. Not redness or rash post injection and 3 days post injection I take folic acid and I'm on vitamin d3 and magnesium and esomperozole also started on aspirin and statin due to cholesterol

[Pea_m in reply to Emz04]

Hello, thank you for your reply. How long have you been on the injections ? After your first one did you have bad pains ? I literally felt awful last night terrible pains in my arms and legs and tiredness…. I have been told to take folic acid too, two days after my injections. Thank you for your reply. And good luck it’s a tough illness xx

[Emz04 in reply to Pea_m]

I have been on them for 6 months now and yes felt bad the first month especially the eving of the injection and 2 days post and had hot flashes with it and felt like I had the flu but then it got better

[Emz04 in reply to Pea_m]

Good luck with your journey too this illness is tough but when we get good days or weeks it worth it x