I’ve added another post on my current dilemma.. I’m currently treated for connective tissue disease they’re not sure if it’s lupus or rheumatoid. I just wanted advice about this weird rash?
I’ve been off my meds since October and struggling to get back on them. I’ve had recurrent chest and sinus infections and in the last week had an infection in my boob!!! And my ear lobes (been pierced 30 years why!) anyway 7 courses of antibiotics and no closer to getting back on my meds.
I’ve had all of my issues come back tenfold and this lovely new rash I’ve not had before. I have patches on my arms and legs (not usually affected). They have a ring around them. Google told me it was ringworm! But I did find some similar looking rashes on people with lupus. Has anyone had anything similar? I’ve found the days when this flares, I feel like I’ve been hit by a bus. Very sick and tired. I want to be selective with my rheumatologist on the 5th - we have so much to cover. So if this is not significant I’d rather use the time talking about something that will get me better. Thanks, Toni
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Tonkie
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Morning TonkieSorry to hear that you are having so many issues.
I have a similar rash on both of my breasts. The doctor has told me its a fungal infection. I'm on my third different steroid cream. So far nothing working.
When I was diagnosed with Lupus in 2020 I had 3 piercings in each ear. I'm now unable to wear any earrings gold or silver as my ear lobes become very sore and swollen.
I came off of my hydroxychloroquine approximately 15 weeks ago under the advice of the lupus nurse due to my body rejecting it. Currently being monitored by the hospital every 4 weeks.
Aww I’m sorry to hear you’re struggling also. The ear lobe thing is weird? I’ve had to take my earrings out too. I have many piercings in my ears so I’m hoping I can keep some.
I have lots of steroid creams for other issues maybe I should try it on these patches? I do have one with an antibiotic in it. I just look diseased now with the eczema and psoriasis and this weird new rash.
The latest cream I've been given is trimovate.I'm also taking benadryl liquid as I'm dairy and gluten intolerant and it's the only one that doesn't contain these.
Hi. I have lupus and ra... Used to suffer quite a lot with those rashes and occasionally do now. I take fenofexadine when it happens now but when it's been very bad I've been given steroids. Definitely worth mentioning although I found some consultants were very interested in them and some weren't. Go figure!
Hi! Yeah this is a new one for me I suffer badly with hands/neck/ears and scalp with eczema and psoriasis. Since coming off the meds my feet are now affected. Then this new weird blotchy rash on my arms and legs. It looks different to my other rashes.
I am on quadruple the dose of fexofenadine, double dose of cetirizine and Loratadine. I get angioedema on my face so immunology advised to load up on the antihistamines. But not sure if they have same affect cause I’m taking them daily? I have some scope to increase cetirizine and loratadine.. I’m also supposed to be on steroids for the next few months (low dose) but I’ve been taking sporadically as I hate how I feel on them. I’ve noticed if I stop them everything is worse.
I’ll mention it to my rheumatologist and see if she’s interested. All of the skin has peeled off my right hand and looks very sore, it’s blistered all over hands and feet. I hope she’s interested in those places cause it’s so painful 😔 I’ve read other people have had biopsies done on their rashes but I have never been offered this on the NHS? Have you come across it?
Gosh I am so sorry you are going through all of this. It sounds so intense! I was offered a biopsy at one point but only by chnace and getting it done was complicated as my rashes were very sporadic. I was told though that they could have potentially detected lupus by biopsy so worth finding out.
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Facial rash or not?
First recognisable flare
Reoccurring chest rash
is this a lupus rash? 
