Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,146 members • 28,486 posts

All posts for February 2021

Veins

Lately they find it very difficult to take blood, today the nurse tried 4/5 times but she couldn’t do it I have to go back tomorrow. I’ve been very tired ,...

Lately they find it very difficult to take blood, today the nurse tried 4/5 time...

Melaxx

•4 years ago

7 Replies

Methotrexate side effect?

Hi. Does anyone have any experience of getting really breathless with methotrexate?

Hi. Does anyone have any experience of getting really breathless with methotrexa...

Joni2011

•4 years ago

4 Replies

Feel gutted

Hi all, Feel so down today, sorry. Just watched the Scottish First Minister’s daily briefing where she said that Group 6 won’t be vaccinated until May at the...

Hi all, Feel so down today, sorry. Just watched the Scottish First Minister’s ...

Froggie70

•4 years ago

29 Replies

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Vaccine advice

My daughter is due to get the Men ACWY vaccine tomorrow in readiness for starting University in March. She is on MMF & Hydroxochloroquin. Her last vaccine -...

My daughter is due to get the Men ACWY vaccine tomorrow in readiness for startin...

Jennifer69

•4 years ago

7 Replies

Covid vaccine

Somebody may have already said this. But if you self test your INR it’s probably best if you check it just before you have your vaccine done. I had to go home...

Somebody may have already said this. But if you self test your INR it’s probably...

Jolevans

•4 years ago

1 Reply

I am looking for any women that have experience with IVF particularly following issues with fertility following chemotherapy.

So I recently went to have the Covid vaccine - yay! However my partner and I have been trying to conceive for the last 14 months with no success. I have a...

So I recently went to have the Covid vaccine - yay! However my partner and I hav...

Eve30

•4 years ago

Be the first to reply

Those on immunosuppresants and Covid 19 vaccine

Hi everyone. I live with Lupus SLE and some related health conditions. I take immunosuppresant - Mycophenlate and have been offered a vaccine. Have anyone...

Hi everyone. I live with Lupus SLE and some related health conditions. I tak...

magSLE

•4 years ago

82 Replies

What is your preferred remedy for constipation? 🤔 🤔 🤔

I have suffered with the dreaded constipation almost all my life. I am currently prescribed Docusate Sodium capsules. Unfortunately they are not working any...

I have suffered with the dreaded constipation almost all my life. I am currently...

Bronn

•4 years ago

35 Replies

BBC interview on lupus and the pandemic at 630 tonight on BBC look East and another interview at 7am on radio Cambridgeshire tomorrow (Tues)

Thanks for all the suggestions about what to include in the BBC interview. I included them all BUT it was a 20 minute interview that he's cutting down to 3...

Thanks for all the suggestions about what to include in the BBC interview. I inc...

MelanieSloan

•4 years ago

13 Replies

300mg Hydroxychloroquine Tablets on NHS?

Dear All I have been trying to get 300mg Hydroxy tablets for my wife for months now. I asked the specialist nurses several times during October & November...

Dear All I have been trying to get 300mg Hydroxy tablets for my wife for mont...

BeeManShrop

•4 years ago

26 Replies

Is there an age limit to LUPUS?

i wonder if anyone has been told that you cannot have Lupus past the age of the menopause? last year, i was struggling so much i went to see a so called Lupus...

i wonder if anyone has been told that you cannot have Lupus past the age of the ...

yellowmarie

•4 years ago

47 Replies

New to the Community

Hello from a bright, cold, snowy day in Michigan! Just found the site last week & it's great to see so much good info & such a sharing, caring Community. I...

Hello from a bright, cold, snowy day in Michigan! Just found the site last week ...

MotorCityGirl

•4 years ago

12 Replies

Covid-19 injection

Has anyone had the second maderma vaccine and if so any side effects?

Loopydroopy

•4 years ago

1 Reply

Really helped me. Someone on here, maybe Cecily parsley? Said she'd read all of the books. Thank you.

Why didn't I read this earlier?!

BonnyB

•4 years ago

16 Replies

Lupus question

How do you know you have lupus?

Tori331

•4 years ago

1 Reply

Hi, I'm new here. I'm a 68 year old female recently diagnosed with SLE.

I have read quite a selection of posts this morning and frankly it has made me rather scared of what is to come. Everyone seems so much more poorly than me!...

I have read quite a selection of posts this morning and frankly it has made me ...

bhomsie

•4 years ago

9 Replies

Happy with vaccine but need help with pain meds

Good morning all, I hope that you are all well today. I had my vaccine on Thursday, the Oxford one. I felt very nauseous until today and my arm is still very...

Good morning all, I hope that you are all well today. I had my vaccine on Thursd...

Mala23

•4 years ago

8 Replies

D Dimer test

Anyone find there D Dimer test is elevated when having a Lupus flare?

Michellear

•4 years ago

15 Replies

What foods or diets have worked for you?

Hello, My partner has Lupus. We have tried several diets, and we have found that her symptoms and side effects are lessened depending on what we eat and...

Hello, My partner has Lupus. We have tried several diets, and we have found tha...

BlueDandruff

•4 years ago

1 Reply

Two cuties ( part three)

Hello everyone Just thought id share this lovely picture of a young lass with her pet sheep called Hugo ,her best friend. Hugo was rescued by mum. Very cute i...

Hello everyone Just thought id share this lovely picture of a young lass with he...

misty14

•4 years ago

25 Replies

Lupus

Hi. Is anyone here with lupus who has had covid vaccine? what side effects did you have? Thanks

Hi. Is anyone here with lupus who has had covid vaccine? what side effects did ...

Ionika

•4 years ago

26 Replies

Update on vacine

Had oxford vacine on Wednesday at 5pm but 8pm felt very unwell i came over very achy and dizzy i had to just go to be but thankfully after 48hrs I felt a lot...

Had oxford vacine on Wednesday at 5pm but 8pm felt very unwell i came over very ...

rlupus

•4 years ago

15 Replies

Oxford Vaccine Side Effects w Lupus

I am grateful to have received my first jab of the COVID vaccine on 2 Feb. As I have had an allergic reaction to Rituximab and some other drug allergies my...

I am grateful to have received my first jab of the COVID vaccine on 2 Feb. As I ...

ShannonB

•4 years ago

64 Replies

Results

It's confusing getting half a diagnosis.what does Ro-ve mean?

Kels1974

•4 years ago

43 Replies

Long Covid overlap- we need individualised rehabilitation - and long covid may be a way of highlighting need - as large numbers affected

Some open access papers https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(20)32705-7/fulltext?dgcid=raven_jbs_etoc_email...

Some open access papers https://www.thelancet.com/journals/lancet/article/PIIS0...

Milliecox

•4 years ago

3 Replies

Wishing you all a very happy, relaxed weekend

We are in lockdown, it is raining but Spring will come. I hope this happy image will cheer you up. Sending love and Cwtches to you all ❤️❤️❤️🦔🦔🦔

We are in lockdown, it is raining but Spring will come. I hope this happy image ...

CecilyParsley

•4 years ago

44 Replies

Covid Vaccine and Clinically Vulnerable

Morning All My wife and myself had our jabs yesterday. As stated by others it was well organised, spotlessly clean and everyone was welcoming and helpful....

Morning All My wife and myself had our jabs yesterday. As stated by others it ...

BeeManShrop

•4 years ago

44 Replies

Phone appointment with Rheumatologist

Had my appointment , was quite anxious , has a lot to discuss . Joints , swellings , medication , jerking, stomach pains , balance etc etc ... Appointment was...

Had my appointment , was quite anxious , has a lot to discuss . Joints , swellin...

Willow1414

•4 years ago

9 Replies

Has anyone asked to be referred to a different consultant?

If so, how?

F1zz

•4 years ago

5 Replies

Random one for Wednesday

can anyone shed any light on why “bicarbonate” blood levels would be slightly raised ? Thank you 🙏

can anyone shed any light on why “bicarbonate” blood levels would be slightly ...

Tiggywoos

•4 years ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2021

Veins

Methotrexate side effect?

Feel gutted

Vaccine advice

Covid vaccine

I am looking for any women that have experience with IVF particularly following issues with fertility following chemotherapy.

Those on immunosuppresants and Covid 19 vaccine

What is your preferred remedy for constipation? 🤔 🤔 🤔

BBC interview on lupus and the pandemic at 630 tonight on BBC look East and another interview at 7am on radio Cambridgeshire tomorrow (Tues)

300mg Hydroxychloroquine Tablets on NHS?

Is there an age limit to LUPUS?

New to the Community

Covid-19 injection

Really helped me. Someone on here, maybe Cecily parsley? Said she'd read all of the books. Thank you.

Lupus question

Hi, I'm new here. I'm a 68 year old female recently diagnosed with SLE.

Happy with vaccine but need help with pain meds

D Dimer test

What foods or diets have worked for you?

Two cuties ( part three)

Lupus

Update on vacine

Oxford Vaccine Side Effects w Lupus

Results

Long Covid overlap- we need individualised rehabilitation - and long covid may be a way of highlighting need - as large numbers affected

Wishing you all a very happy, relaxed weekend

Covid Vaccine and Clinically Vulnerable

Phone appointment with Rheumatologist

Has anyone asked to be referred to a different consultant?

Random one for Wednesday

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