Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,210 members•28,555 posts

All posts for February 2021

Smitten Kittens

Hi! I just finished this hand embroidered towel I actually started it last year and then had an accident with our new puppy on Feb. 6. I broke the main neck...

Hi! I just finished this hand embroidered towel I actually started it last year ...

Pumpkin2009

•4 years ago

17 Replies

Nerve test

Hi my Lupie friends, Hope you're all keeping warm and well😁 I had another nerve conduct study yesterday it's been about 5 years since the last one. Can I ask...

Hi my Lupie friends, Hope you're all keeping warm and well😁 I had another nerve...

Muff20

•4 years ago

20 Replies

Hello my name is Vanessa and I am 23 years old living in the UK

Please take a moment to read my profile. I would love to hear about other peoples stories as I have been newly diagnosed with Lupus and I’m really looking to...

Please take a moment to read my profile. I would love to hear about other people...

Nessa173

•4 years ago

34 Replies

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Continuing side effects Pfizer jab

From what I can gather, most people are having minimal side effects from their vaccinations. Well, I had the Pfizer jab a fortnight ago and am still...

From what I can gather, most people are having minimal side effects from their v...

Neriah

•4 years ago

57 Replies

Help!

Hi everyone, I was diagnosed with Cutaneous lupus a few years ago and was on medication for a while but have been off it now for sometime as they advised my...

Hi everyone, I was diagnosed with Cutaneous lupus a few years ago and was on med...

Wood2021

•4 years ago

8 Replies

updates from last post, warning: long, sorry!

How is everyone doing today? It's quite a sunny day over here in CA and I'm waiting for one of the kids to finish their class for the day. They both got caught...

How is everyone doing today? It's quite a sunny day over here in CA and I'm wait...

JennaShi

•4 years ago

9 Replies

Only just joined and not sure if this has already been asked about vaccine group ?

I have lupus but I am lucky that it is well controlled with just hydroxychloroquine but also have autoimmune under active thyroid and sinus tachycardia. I have...

I have lupus but I am lucky that it is well controlled with just hydroxychloroqu...

Hugs1

•4 years ago

23 Replies

More cuteness 😍😍😍

A lady makes tiny teddy bears for her pet rat 😍😍😍😍

CecilyParsley

•4 years ago

23 Replies

Sorry I cannot help but share this cuteness 😍😍😍

Wishing you all a happy, relaxing weekend. Stay safe and warm xxx

CecilyParsley

•4 years ago

6 Replies

Does this look like a Lupus face rash..Help!

Hi All, Please could anyone tell me if my face rash/redness could be Lupus related? I have multiple medical issues, largely fluctuating, but whenever I have a...

Hi All, Please could anyone tell me if my face rash/redness could be Lupus relat...

Confused01

•4 years ago

3 Replies

Virtual Meet-Up for Parents of Children with Lupus - 6pm Thursday 11th March 2021

Do you have a child with lupus? LUPUS UK will be hosting its first virtual meeting for the parents and carers of children and young people...

Do you have a child with lupus? LUPUS UK will be hosting its first virtual mee...

Paul_Howard

Partner•4 years ago

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Update

Hi everyone here’s a little update on my heart episode. I returned home with a picc line and have had the district nurses coming in everyday to give me my...

Hi everyone here’s a little update on my heart episode. I returned home with a p...

Barb50

•4 years ago

3 Replies

Unexplained Mouth pain

Hi I have lupus and sjögrens syndrome and have had pain in my mouth located in my gums for more than 7 months now. My dentist first suspected that it was some...

Hi I have lupus and sjögrens syndrome and have had pain in my mouth located in m...

Kahina

•4 years ago

6 Replies

Why Do A lot of People not Know About Lupus Until It's to Late?

after I had learned I had lupus I started talking about it to people and it turns out not many people know about it. So I been thinking why don't people talk...

after I had learned I had lupus I started talking about it to people and it turn...

More-Knowledge-Rules

•4 years ago

5 Replies

Vaccine groups

Hi Can anyone tell me what group your in for the vaccine? apparently I'm in group 6, because of my age 54, but I have also been told to shield, I'm not on...

Hi Can anyone tell me what group your in for the vaccine? apparently I'm in grou...

Cal66

•4 years ago

10 Replies

Update

Just to give you an update I’ve Found a rheumatologist in Cardiff and booked appointment for March . Neurologist happy to refer so I won’t need to bother Gp...

Just to give you an update I’ve Found a rheumatologist in Cardiff and booked app...

Tiggywoos

•4 years ago

6 Replies

Covid Vaccine

I went for my Corvid vaccine today and could not have it because I have a few allergies (not Anaphylaxic) it would be unsafe for me to have Pfzer/BioNtech...

I went for my Corvid vaccine today and could not have it because I have a few al...

custardpot

•4 years ago

4 Replies

My partner the vaccine and lupus

Hi all my partner has just received her vaccine letter and is very anxious about the whole thing she has discoid lupus with APS ( anti phospholipid syndrome)...

Hi all my partner has just received her vaccine letter and is very anxious about...

Hidden

•4 years ago

2 Replies

Private Rheumatologist

Hi everyone hope you’re all managing to stay warm 🥶. Wondered if anyone could help with suggestions of a Rheumatologist who does private work in the South...

Hi everyone hope you’re all managing to stay warm 🥶. Wondered if anyone could ...

Tiggywoos

•4 years ago

2 Replies

Keep off weight gain when steroids increase tips?

Hi all, ive unfortunately had to go up to 20mg steroids today. I am really trying not to put on any more weight, I didn’t even have a chance to lose the weight...

Hi all, ive unfortunately had to go up to 20mg steroids today. I am really tryin...

Sandy1212

•4 years ago

11 Replies

Is it better to stop Hidroxizine medication before having the Covid vaccine and to restart medication after second dose of vaccine?

better to stop Hidroxizine before having the Covid vaccine?

Hidden

•4 years ago

1 Reply

Dialysis

Hi I would like to introduce myself I am a 45 yr old woman who’s been diagnosed with lupus in 2009 . I have been told only today my kidney function as dropped...

Hi I would like to introduce myself I am a 45 yr old woman who’s been diagnosed ...

Basilbonce

•4 years ago

17 Replies

Link to BBC interview on lupus that was aired last night

Hello, here is the link to the interview that was televised last night https://youtu.be/XqmyKWiEF4w Sorry he cut quite a lot so we didn't get it all in, but...

Hello, here is the link to the interview that was televised last night https://...

MelanieSloan

•4 years ago

24 Replies

2 - 3 Volunteers needed for BBC (online) piece on how COVID has affected lupus care and mental health

Following on from the recent media interest in the research studies on COVID and lupus care from MelanieSloan and Cambridge University, The BBC has been in...

Following on from the recent media interest in the research studies on COVID and...

Chanpreet_Walia

LUPUS UK•4 years ago

2 Replies

Is it normal for veins in neck to look like this?

When I turn my head there are these veins on right side that come out. This doesn’t happen in the left.

When I turn my head there are these veins on right side that come out. This does...

Dance212

•4 years ago

1 Reply

snow all day

for an old girl who isn't fond of the white stuff today there has been too much falling. any more tonight and it will reach her belly brrrrrrrr.

for an old girl who isn't fond of the white stuff today there has been too much ...

suzannah16

•4 years ago

2 Replies

Just because....

I saw this and it made me smile. Life is stressful and difficult at the moment for all of us so we need more joy. I hope this helps ❤️🐿

I saw this and it made me smile. Life is stressful and difficult at the moment f...

CecilyParsley

•4 years ago

16 Replies

BBC interview on lupus and care tonight at 630 on BBC look East (West).

interview out this evening now at 630. Will try and get copy on here tomorrow for those who can't access. Hope I have represented us OK. Certainly raised...

interview out this evening now at 630. Will try and get copy on here tomorrow fo...

MelanieSloan

•4 years ago

11 Replies

Broken teeth

Hi I'm really worried as over last 28 months had 3 teeth just break in half, I'm on the waiting list for NSH place but been waiting so long another one has...

Hi I'm really worried as over last 28 months had 3 teeth just break in half, I'm...

Freshgirl

•4 years ago

4 Replies

I'm Vaxxed!

Had to take matters into my own hands and contact the vaccination centre directly after my GP surgery denied all knowledge - but Yay, I am vaxxed! Such a...

Had to take matters into my own hands and contact the vaccination centre directl...

WinterSwimmer

•4 years ago

11 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2021

Smitten Kittens

Nerve test

Hello my name is Vanessa and I am 23 years old living in the UK

Continuing side effects Pfizer jab

Help!

updates from last post, warning: long, sorry!

Only just joined and not sure if this has already been asked about vaccine group ?

More cuteness 😍😍😍

Sorry I cannot help but share this cuteness 😍😍😍

Does this look like a Lupus face rash..Help!

Virtual Meet-Up for Parents of Children with Lupus - 6pm Thursday 11th March 2021

Update

Unexplained Mouth pain

Why Do A lot of People not Know About Lupus Until It's to Late?

Vaccine groups

Update

Covid Vaccine

My partner the vaccine and lupus

Private Rheumatologist

Keep off weight gain when steroids increase tips?

Is it better to stop Hidroxizine medication before having the Covid vaccine and to restart medication after second dose of vaccine?

Dialysis

Link to BBC interview on lupus that was aired last night

2 - 3 Volunteers needed for BBC (online) piece on how COVID has affected lupus care and mental health

Is it normal for veins in neck to look like this?

snow all day

Just because....

BBC interview on lupus and care tonight at 630 on BBC look East (West).

Broken teeth

I'm Vaxxed!

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