Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,146 members • 28,486 posts

All posts for August 2018

How do I know whether my symptoms are lupus related?

New to this site and looking forward to some guidance and support with my diagnosis... I'll briefly outline my journey thus far... After a routine MRI scan in...

New to this site and looking forward to some guidance and support with my diagno...

Hidden

•6 years ago

6 Replies

Clacton

Have driven down to Clacton today with my mum. My brother has got a caravan with our cousins and we’ve joined him. I was going to come home Wednesday evening....

Have driven down to Clacton today with my mum. My brother has got a caravan with...

LouLamb

•6 years ago

18 Replies

Osteoporosis and height

Hi everyone. Earlier in the year I was found to be having osteoporosis (at 18 years old...). I used to be 159cm but went down to 156 then 152. Anyone has a...

Hi everyone. Earlier in the year I was found to be having osteoporosis (at 18 ...

ellejay46

•6 years ago

4 Replies

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Possible food poisoning when on rituximab

Hello all, ive had a bad night, diarrhoea, painful guts , bit dizzy and cold . Im thinking food poisoning or gastric flu . My worry is should I call the...

Hello all, ive had a bad night, diarrhoea, painful guts , bit dizzy and cold . I...

weathervane

•6 years ago

24 Replies

Diagnosis for sjigoens disease

Does anyone have sjigoens disease And how did the Drs disease sijgoens ? Did any one have a lip biopsy ?

Does anyone have sjigoens disease And how did the Drs disease sijgoens ? Did...

Mystik

•6 years ago

9 Replies

Numerous diagnosis

Wonder if anyone else has had so many diagnosis? 12 years ago diagnosed with rheumatoid arthritis. About 4 years ago found was incorrect diagnosis. Then...

Wonder if anyone else has had so many diagnosis? 12 years ago diagnosed with rh...

Amber560

•6 years ago

7 Replies

Hi

Just wondering if anybody has tried contact lenses . I have Sjögren x

barbdockeray

•6 years ago

6 Replies

Hi folks

It’s been a while since I posted a message but just wondering if anybody else with lupus is struggling financially. I pay monthly for my prescriptions which is...

It’s been a while since I posted a message but just wondering if anybody else wi...

barbdockeray

•6 years ago

4 Replies

Kids

Good morning I was diagnosed with lupus since 2004. I have two children my daughter is waiting to find out if she has Autism, I think my son could also have...

Good morning I was diagnosed with lupus since 2004. I have two children my daug...

djsema

•6 years ago

14 Replies

TAKE CARE OF YOURSELF!.....

I’M TRADING MY LUPUS! I’M TRADING MY PAINS! GOOD MORNING LUPIES.......WISHING YOU A PAINLESS MONNDAY. DON’T FORGET TO TAKE YOUR PILLS.

I’M TRADING MY LUPUS! I’M TRADING MY PAINS! GOOD MORNING LUPIES.......WISHING YO...

BUMMY1

•6 years ago

1 Reply

Hyper mobility and Lupus

Hi everyone j have been a member of Lupus Uk since 1994 when I was diagnosed withLupus. I have recently diagnosed with hyper mobility syndrome due to...

Hi everyone j have been a member of Lupus Uk since 1994 when I was diagnosed wit...

Greengems

•6 years ago

7 Replies

Lyme's Disease

I have just been reading about Lyme's disease and the controversy about whether it could become a chronic disease if not diagnosed early. A lot of the symptoms...

I have just been reading about Lyme's disease and the controversy about whether ...

bones-bones

•6 years ago

1 Reply

Is your cognitive behaviour affected during the fatigue stage ?

So I go from an upbeat person, who laughs and smiles and faces the day ahead, to a person that does not reflect the real me. I sleep, and when I’m awake I...

So I go from an upbeat person, who laughs and smiles and faces the day ahead, to...

Lisalou19

•6 years ago

24 Replies

Positive ANA and history of tests.

Hello, I want to provide a clear history of facts. Last December, I experienced joint pain, my hands were burning for no reason, and my joints were cracking. I...

Hello, I want to provide a clear history of facts. Last December, I experienced ...

darkknightlt

•6 years ago

8 Replies

SLE - The Trigger - chronic infection

Hello Lupies! Anyone been able to figure out that a chronic infection triggered lupus onset? (Writing nursing a sore face that may be festering inside due to a...

Hello Lupies! Anyone been able to figure out that a chronic infection triggered ...

eekt

•6 years ago

4 Replies

Lupus in my future?

ANA of 1:1280 (homogenous and speckled) and Anti ds DNA of 65 IU. Docs/lab saying the 65 indicates a negative for the anti ds DNA test, that it has to be over...

ANA of 1:1280 (homogenous and speckled) and Anti ds DNA of 65 IU. Docs/lab sayi...

trost

•6 years ago

23 Replies

Looking for advice

Hi there this is my first time posting on this forum as far as I am aware I do not have lupus but i am having some health problems and was just wondering if...

Hi there this is my first time posting on this forum as far as I am aware I do n...

Amos23

•6 years ago

6 Replies

Lupus

Sorry i meant 1 and a half stone iv put on

Jeffscott69

•6 years ago

1 Reply

I have put 9n a stone and half since starting hydroxychloroquine🤔,anyone else gained weight,i want to stop taken it but i will see reumy

Lupus and medication

Jeffscott69

•6 years ago

24 Replies

WHAT LED TO YOUR LUPUS DIAGNOSIS?

Hello to all! I'm new to this community. I first posted in the PMR forums, and was told I might find an answer if I post here in the Lupus forums. I was...

Hello to all! I'm new to this community. I first posted in the PMR forums, and w...

tmar4949

•6 years ago

17 Replies

Hydroxyqulororoquinine rash!?

Hello! I wonder if anyone has experienced a sudden eczemaic rash/ blotches on their forearms whilst taking this drug? I have RA and OA and was prescribed...

Hello! I wonder if anyone has experienced a sudden eczemaic rash/ blotches on th...

Izzy123gym

•6 years ago

17 Replies

How many of you have reduced your working hours due to Lupus? Any advice regarding medication to ask for alongside Hydroxychloroquine?

Hi all, I was just wondering how many of you out there have needed to cut your working hours due to your Lupus symptoms? I worked full time as a nurse prior...

Hi all, I was just wondering how many of you out there have needed to cut your w...

Serser

•6 years ago

41 Replies

Lip fillers

Has anyone had lip fillers done who has lupus? I would love them done but was diagnosed with lupus 2 years ago but I’m wondering if I actually have this ? I...

Has anyone had lip fillers done who has lupus? I would love them done but was d...

Naomi72

•6 years ago

2 Replies

PIP Lupus Depression - who can help me fill out the form?

Hello there, I was hoping to fill out the wretched PIP form myself, but due to the heatwave I just wasn't able to cope. I want to find someone to fill it out...

Hello there, I was hoping to fill out the wretched PIP form myself, but due to t...

LilyMistri2

•6 years ago

8 Replies

Does anyone else have a problem with skin tags? I have numerous on my neck, shoulders, and chest where muscle pain and inflammation occur.

SLE lupus

Annienjoe

•6 years ago

11 Replies

Green tea with SLE

Hi there I have recently started drinking green tea only once a day in evening. Today I feel like I'm going to have an anxiety attack weird sensations. Has...

Hi there I have recently started drinking green tea only once a day in evening. ...

Hidden

•6 years ago

17 Replies

SLE - sweating - autonomic dysfunction

Read some posts (thanks everyone! - this forum is so helpful) on sweating and this: https://www.healthline.com/health/autonomic-dysfunction so I guess my...

Read some posts (thanks everyone! - this forum is so helpful) on sweating and th...

eekt

•6 years ago

18 Replies

Hello everyone

Hi everyone. My name’s Lilly, I’ve just been diagnosed yesterday with Lupus, the systematic one. I still don’t know the right terms yet and English is not my...

Hi everyone. My name’s Lilly, I’ve just been diagnosed yesterday with Lupus, the...

Lilix

•6 years ago

7 Replies

Azathiaprine success stories

Hi all I am due to start azathiaprine (assuming my bloods come back okay). I was originally encouraged by this. Every day is a battle for me and I often feel...

Hi all I am due to start azathiaprine (assuming my bloods come back okay). I was...

Jessie_2014

•6 years ago

4 Replies

Today diagnosed I see myself dying in a year

I ama Saranda and I have been recently diagnosed with Lupus erythematosus systemic. I am freaking out as I am giving my self one more year to life. My symptoms...

I ama Saranda and I have been recently diagnosed with Lupus erythematosus system...

Saranda

•6 years ago

24 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2018

How do I know whether my symptoms are lupus related?

Clacton

Osteoporosis and height

Possible food poisoning when on rituximab

Diagnosis for sjigoens disease

Numerous diagnosis

Hi

Hi folks

Kids

TAKE CARE OF YOURSELF!.....

Hyper mobility and Lupus

Lyme's Disease

Is your cognitive behaviour affected during the fatigue stage ?

Positive ANA and history of tests.

SLE - The Trigger - chronic infection

Lupus in my future?

Looking for advice

Lupus

I have put 9n a stone and half since starting hydroxychloroquine🤔,anyone else gained weight,i want to stop taken it but i will see reumy

WHAT LED TO YOUR LUPUS DIAGNOSIS?

Hydroxyqulororoquinine rash!?

How many of you have reduced your working hours due to Lupus? Any advice regarding medication to ask for alongside Hydroxychloroquine?

Lip fillers

PIP Lupus Depression - who can help me fill out the form?

Does anyone else have a problem with skin tags? I have numerous on my neck, shoulders, and chest where muscle pain and inflammation occur.

Green tea with SLE

SLE - sweating - autonomic dysfunction

Hello everyone

Azathiaprine success stories

Today diagnosed I see myself dying in a year

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