Clacton : Have driven down to Clacton today with my... - LUPUS UK

LUPUS UK

31,602 members28,008 posts

Clacton

LouLamb profile image
18 Replies

Have driven down to Clacton today with my mum. My brother has got a caravan with our cousins and we’ve joined him. I was going to come home Wednesday evening. I considering skipping my methoject this week to maybe stay till Friday . I haven’t brought one with me .

What do you think about skipping one ?

Written by
LouLamb profile image
LouLamb
To view profiles and participate in discussions please or .
18 Replies
AndrewT profile image
AndrewT

I really don't know Loulamb, I don't know about this drug or much about your Condition either. Two questions though, why didn't you bring it, when it was Prescribed, and have you done this before? If you have 'Skipped', a dose, before why are you asking, if not I personally wouldn't advise it. Can not, one of your friends/family bring one down for you?

Sorry if this is not, the answer, you were expecting (hoping for) but, my advice, is not to do this. Surely your Health, and Wellbeing, come first, don't they?

AndrewT

LouLamb profile image
LouLamb in reply to AndrewT

I didn’t bring one because I had planned to come home Wednesday evening. So I didn’t need one, now I’m here I think I might like to stay a bit longer.

I’ve been doing them for 7 weeks and haven’t skipped one yet .

AndrewT profile image
AndrewT in reply to LouLamb

Sorry to say this, but I'm still, 'Uneasy' about this....Just a feeling, sorry.

LouLamb profile image
LouLamb in reply to AndrewT

Uneasy about skipping ?

That’s why I was asking for other people’s experience. If they’ve ever skipped or not ? I would be coming home Friday so I could just change my day to Friday?

I do like a Thursday as injection day though as it works better for me.

I just want others opinion .

flap7 profile image
flap7

Hi Lou, glad to hear that you're getting to enjoy a little break 😎 The guidance available online from the UKMI pharmacists re a missed dose of Methotrexate (once weekly) seems to be that you can have your dose within two days of the due date. As a one-off, with some proper advice from a medic, it may be okay. If there's a pharmacy nearby in Clacton, go and speak to the pharmacist for up to date advice and then you can make your decision. Our medications are so important to our wellbeing but being able to live our lives with some flexibility and freedom is important too! xxx

LouLamb profile image
LouLamb in reply to flap7

Thanks for the advice.

I might try and get a call from rheumy nurse or gp and just enquiry .

Kevin53 profile image
Kevin53

Speak to local pharmacy or ring nurse then enjoy holiday. Best wishes Kevin

LouLamb profile image
LouLamb in reply to Kevin53

Thanks . Think I’m just going to come home Thursday less hassle

Kevin53 profile image
Kevin53 in reply to LouLamb

Good plan

LouLamb profile image
LouLamb in reply to Kevin53

Think ahead next year . Next year might not even be on it !

InezJ profile image
InezJ

Hi Loulanb,

I was 2days late with my Methrotrexate. It made me feel really bad . Also I was able to get it from a chain pharmacy that already had all my information.. You also can call your Rhemy to call one vial just for this one time to the nearest pharmacy. I had to do it on two occasions once while on vacation and another when I went into a bad flare. I hope it works out...As you can see it’s almost 5 am have literally been awake for over 24 hours. Its ok I had longer days before. This is my first year with SLE, Sjogren, RA and Fibro

LouLamb profile image
LouLamb in reply to InezJ

I’ve decided to just come home on Thursday morning instead of Wednesday afternoon it’s less hassle. Knowing myself if I skip one I’ll forever be skipping .

PMRpro profile image
PMRpro

No reason why you shouldn't just shift your day. I tried methotrexate recently and told the rheumy before I started that I would miss 2 weeks altogether because I was going to Korea and he was fine about it. You should also miss mtx if you have an infection. so shifting your day isn't going to hurt you.

LouLamb profile image
LouLamb in reply to PMRpro

Thanks .

I prefer the Thursday because it works better for as I have a friend that helps me. So if I change day it will mess it all up . I’ve decided to come home on Thursday now anyway .

I have just booked for next year though for the Monday - Monday .

Who knows next year I might be on different meds anyway

Wendy39 profile image
Wendy39

Glad you've had some helpful answers Lou and I hope you have enjoyed your much deserved break with your family. Can't believe it's half way through the summer holidays already. Take care. Wendy xx

LouLamb profile image
LouLamb in reply to Wendy39

Thank you . Neither can I . I have to find things to occupy myself though otherwise I become quite depressed.

I spent the first 2 weeks doing play scheme.

Week at home and in pain and then a few days here . Not much planned for the last 2 weeks. Might baby sit a cousin for 2 nights and a couple of meals out with a few work friends .

Wendy39 profile image
Wendy39 in reply to LouLamb

Sounds perfect. Term time is hectic enough without the added fatigue of lupus etc. I take my hat off to you. xx

LouLamb profile image
LouLamb in reply to Wendy39

I’ve not been thinking about September very much. I’m in a new class with more able children less hoisting more manual transfers . I’ve had a personal risk assessment done but the head didn’t like it. So I’ve got to see occupation health when the term starts at some point x

You may also like...

Anyone have a new perspective on prednisone “ok” dose?

you. Here where I live in the States we actually skipped winter and rolling through Spring into...

Covid, antivirals & methotrexate help please

thought you lot would have more of an idea. I've skipped one, two and three weeks before for...

Thank you one and all, Mandy. Xx

bucket list.......so one more done, now I can add another one..... Again my thanks one and all. May...

Raynauds Disease, Lupus

Winter, winter wish I could skip this season - am sure not the only one who feels this way. I write

Today diagnosed I see myself dying in a year

systemic. I am freaking out as I am giving my self one more year to life. My symptoms are the...