SLE - The Trigger - chronic infection

[eekt]

Hello Lupies! Anyone been able to figure out that a chronic infection triggered lupus onset? (Writing nursing a sore face that may be festering inside due to a tooth that erupted in my palate many moons ago...) 😬 xxx

[Fennella02]

An acute infection triggered mine - or was it the severe Penicillin reaction that preceded it?? No doubt you've had Penicillin too and it's a known trigger in susceptible individuals. Most of us will never know what the exact trigger was - I was told by hospital microbiologists that my complement levels were in my boots as I lay in ITU pre-diagnosis so my best guess would be that that was definitely the trigger.

I expect your mouth is very sore - hope it heals soon xx

[eekt in reply to Fennella02]

Thanks for replying - good to know!! I am hypersensitive to pharmaceuticals, but I've tabulated lupus manifestations against my freak canine (a lump in my palate in 1980 - I'm long in the tooth 🤣 ) and they correlate. Been bounced between med pros since 2015 (ENT surgeon, rheumatologist, many GPs, dentist, orthodontist) and have been passed back to ENT generalist for potential biopsies...which would be a bad thing if vasculitis is the culprit 🤷‍♂️.

Horrific way for you to get a diagnosis but I'm very glad they got there. Hope you're on an upward trend, be well xxx

[Dragonfly4]

The docs believe a bite in Australia 8 months before severe autoimmune response shut down my whole body and I was put in a stroke rehab centre as I couldn't move any part of my body. The bite was in 1988, been ill since 8 May 1989. The response came out of nowhere, one day I was tickety boo, then that was that, life changed.

[eekt in reply to Dragonfly4]

OH!.. That must have been absolutely terrifying, huge hugs XOX

A moment of fate: but we LOVE the LIFE we have, whatever is dished out to us. I use a camera to remember the things I can't 'see' during dark times..so my memories are always good ! Thanks for replying. Willing you well xxx