Hello to all! I'm new to this community. I first posted in the PMR forums, and was told I might find an answer if I post here in the Lupus forums.
I was wondering what tests you were given that led to a diagnosis of Lupus. Here's my story:
I am a 69 year old Grandmother, living in the USA. In 2016 I was diagnosed with PMR, Raynaud's, Gout, Bursitis. I've been on Prednisone, as well as 3 different BP medications. The problem is, since last year, my feet have been become very painful. Bottoms turn bright red, painful to walk, bruising, fluid retention so bad I can hardly wear shoes. Also, my hands are feeling sticky at times, and extremely itchy, which only gets relieved with ice water.
My doctor said I have "something else, besides PMR, going on" and referred me to a Rheumotologist.. After a 5 month wait, I had my first appointment. They said it "sounded like" erythromelalgia. They ordered about 30 labs. They tested for everything, including Lupus. In the end, they told me I do not have Lupus, based on the blood work, but my ANA is extremely high. No diagnosis as of yet. I have a follow-up appointment in a month.
So, I was wondering if anyone had any symptoms similar to what I have before being diagnosed with Lupus. And, was your diagnosis based on blood work? Thank you for any input you can give me.