Diagnosis for sjigoens disease

[Mystik]

Does anyone have sjigoens disease

And how did the Drs disease sijgoens ?

Did any one have a lip biopsy ?

[Mandypandy1969]

I had a lip biopsy which came back inconclusive. on steroids at moment as a trial to see if they help but no not really. I have been diagnosed with fibro after first lupus so I don't know what's going on with me. hey ho. x

[wsjkcj1]

My Rheumy did blood test and it was also confirmed auto immune with a tissue biopsy of a sore I had on my gums done by my dentist. My Dr. said those test and symptoms are how diagnosis are done for Sjogren's.

[Mystik in reply to wsjkcj1]

Thank u so

Much for the reply m

Worried about the lip biopsy having the lip cut n stitches 😕

[wsjkcj1 in reply to Mystik]

I've heard some people say they had a lip biopsy and I've heard others say it was their gums and I had sores on my upper gums so they clipped a small piece of that tissue. It was very small and didn't require any stitches or bothered me at all. I think it won't be a big deal. Have you talked about it with a dentist?

[Mystik in reply to wsjkcj1]

Thank will talk to the doctors today

[DJK99]

Hi Mystik

I had a lip biopsy (won't send the photos!) last September. No sugar coating here..... They took a large amount out of the inside of my lower lip area.I was numb for many months and a year later it's recently become all good again. It was quite painful for the first month to 6 weeks (eating was pretty tough) but as long as I took paracetamol and ibroprofen every 4 hrs it was bearable. However - "some people don't have any pain' I read.. I guess it depends how much they take out, I had a lot of stitches - bit like tapestry in there! It all grows back too... weird but true. After all that it was negative for Sjoegrens but I had saliadenitis and obviously the sicca of eyes and mouth that led them to think I had Sjoegrens - in fact the opthalmologist diagnosed me previous to the biopsy being order by my then rheumatologist as my eyes were in such a bad way. I'd gone to A& E eye hospital as my eye lids were sticking to my eyes at night and the drops I'd purchased very similar to the Hylo Forte ones I'm now prescribed wasn't working. It was so scary. Anyway, in February this year with my first appointment with the top Rheumatologist Consultant in the land round here, I was diagnosed with Lupus (SLE) and my Rheumatologist thinks I had it since a very young age. My ability to manage pain isn't very good these days - I'm no girly girl and always been strong so keep that in mind. So depends on your ability to withstand pain, your healing level etc and maybe your age I was 54 at the time... you might swim through it. I do hope so. It's worth having to get the diagnosis - and just remember to get in a ton of soups, porridge, ice cream and anything soft and simple to eat for a couple of weeks... yum! Oh and a ton of pain killers who will be your best friend. Oh and salt.... salt water mouth washes after every meal - amazing! Let me know how it goes and keep in touch if you like as I'm very happy to help. All the best, D x

[Cas70]

Hi - I have Sjogrens but had a scalp biopsy as I had a sore on my head for months. Result was Sjogrens and Lupus. It was painless- the luck of the draw with who does the biopsy - talk to your dentist and doctor. Worth the test. There is a Sjogrens Charity who are very helpful BSSA.

[777dove]

I had a lip biopsy with two or three stitches. It was painful for a couple of days and then it was fine. I think it is important to have a doctor who is very familiar with this procedure to perform it. My results were positive for SS. I take hydroxychloroquin (Plaquenil) 400mgs everyday and feel ALOT better. I do have to take ibuprofen for pain--back pain mostly.

[chrisj]

Hi Mystik - I had a lip biopsy a few years ago as the saliva test was inconclusive, the biopsy confirmed sjogrens. Its not so bad, the injection to freeze the inside of my mouth was the worst bit. It healed quite quickly and the stitches dissolved. A dental surgeon did mine. Its living with it that I struggle with...sigh