Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,895 members • 28,225 posts

All posts for May 2018

Rashes and Vasculitis

Ah! An answer -- almost... Recently I had communicated with a few of you in different posts about sun reactions and rashes. I ended up getting another...

Ah! An answer -- almost... Recently I had communicated with a few of you in dif...

panda2

•6 years ago

4 Replies

SLE & frontal Lobe atrophy

My wife who was diagnosed with SLE in December 2017 had an MRI scan on her brain and it showed mild to moderate atrophy of the frontal lobes. She does suffer...

My wife who was diagnosed with SLE in December 2017 had an MRI scan on her brain...

jimbo1605

•6 years ago

3 Replies

Long wait is finally over

Today’s the day I’ve been waiting for months. My rheumatologist appointment after receiving the letter stating my Ana test came back strongly positive with an...

Today’s the day I’ve been waiting for months. My rheumatologist appointment afte...

lisa___s

•6 years ago

10 Replies

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Fed up

Hello, How long did it take people to get a diagnosis, Lupus is in my list of suspected things but no doctor is listening to me. I live in the UK so it is...

Hello, How long did it take people to get a diagnosis, Lupus is in my list of s...

Maddie21

•6 years ago

4 Replies

feeling bored

I have lupus, I can't work, I can't plan ahead and I generally feel too tired to do anything and when i'm not tired I hurt from the arthritis. After feeling...

I have lupus, I can't work, I can't plan ahead and I generally feel too tired to...

suzannah16

•6 years ago

4 Replies

Rumi app today

Hi just a quick one I’ve had jelly legs for yrs but the last 6weeks I’ve also had jelly arms and cramp every day in different muscles oh my god got it in my...

Hi just a quick one I’ve had jelly legs for yrs but the last 6weeks I’ve also ha...

Ianrussell69

•6 years ago

4 Replies

Shoulder pain and discoid rash on forearms

My mother had lupus I have now developed discoid rash on my arms and rash over one eyebrow. I have pains in my knees and last few months my shoulder . On...

My mother had lupus I have now developed discoid rash on my arms and rash over o...

Rosy1234

•6 years ago

6 Replies

PIP Assessment

After being awarded PIP until 2019, I got another form to complete and return last March. The assessment appointment letter arrived today (I really thought...

After being awarded PIP until 2019, I got another form to complete and return la...

Lupiknits

•6 years ago

9 Replies

Relationship breakdown

Me again... Feels like I can't catch a break! After a very happy 8 years together it seems my diagnosis has now destroyed my relationship with my once amazing...

Me again... Feels like I can't catch a break! After a very happy 8 years togeth...

eescvc

•6 years ago

20 Replies

Lupus and hair loss

Hello. I have lupus and it is progressively getting worse. I have now started to lose my hair and this feels like the final kick in the teeth. Is there...

Hello. I have lupus and it is progressively getting worse. I have now started to...

estpem

•6 years ago

10 Replies

What I Did on Sunday

Number One son is being relocated by his employers to Hong Kong. Very short notice but an exciting step up the career ladder. He visited last weekend and I...

Number One son is being relocated by his employers to Hong Kong. Very short noti...

Lupiknits

•6 years ago

8 Replies

Hospital looming

Had a rheumy review today. Not much to say, as we are waiting on a muscle biopsy and MRI scans next week. I got swabbed for MRSA as I will probably need to be...

Had a rheumy review today. Not much to say, as we are waiting on a muscle biopsy...

whisperit

•6 years ago

40 Replies

Drinking baking soda - it really IS a thing

Well now, I'm not one for "this one amazing trick will cure cancer!" and all that. But this one seems to have some scientific basis. Baking soda (sodium...

Well now, I'm not one for "this one amazing trick will cure cancer!" and all tha...

whisperit

•6 years ago

20 Replies

Systemic infections!!

Hi everyone I've been suffering badly since January although I've had raynauds and connective tissue disease for 6 years. I had nifedipine,lorsartan, hydroxy...

Hi everyone I've been suffering badly since January although I've had raynauds ...

Daisy78

•6 years ago

2 Replies

Pain day today

The last week at night I’ve had terrible pain in my knees , it seems to be moving through my body . When I wake up now pain is unbelievable in my arms,...

The last week at night I’ve had terrible pain in my knees , it seems to be movin...

LouLamb

•6 years ago

8 Replies

Llandudno Information day

I’m biased, thank you for a wonderful afternoon. Karen Newby and her North Wales team for the local organisation. The Romford team and Chris and Paul on site....

I’m biased, thank you for a wonderful afternoon. Karen Newby and her North Wales...

Kevin53

•6 years ago

1 Reply

Possible jaw flare 🙄

So I normally have and always have had my jaw problem on the left . On Thursday I felt the right side of my jaw aching and now it’s Saturday and it kills. It’s...

So I normally have and always have had my jaw problem on the left . On Thursday ...

LouLamb

•6 years ago

8 Replies

Someone please help.

My wife had a positive ana of 1:100 last month. Then a kidney biopsy was performed due to hematuria. The biopsy results says iga nephropath non active non...

My wife had a positive ana of 1:100 last month. Then a kidney biopsy was perform...

donnyray

•6 years ago

3 Replies

Feel useless!!

Just having a bad day!! Am at home with the kids as partner works Saturdays but by this time of the week I’m literally done in and like a zombie! I feel so...

Just having a bad day!! Am at home with the kids as partner works Saturdays but ...

Sara_A

•6 years ago

18 Replies

Venous furrowing(the groove sign)in scleroderma

Hi Just wondered if anyone has experienced this in the arms on elevation

Beau66

•6 years ago

5 Replies

Strange feeling as if nerves o...

Strange feeling as if nerves on edge all over body, particularly hands feet lower back head ?? Bit sore too. Anybody relate to this?

Strange feeling as if nerves on edge all over body, particularly hands feet lowe...

grannypat68

•6 years ago

3 Replies

Pain relief

Hi,I have quite bad muscle pain in my thigh since yesterday, what can I use to help the pain, I’m on methotrexate and hydroxycholoroquine sulphate. I am using...

Hi,I have quite bad muscle pain in my thigh since yesterday, what can I use to h...

Jhpc

•6 years ago

13 Replies

HELP WANTED PLEASE!

Hi everyone I need some advice. For about 18 months I have had a numb toe on my left foot and pain after walking for about 10 minutes on the ball of my foot....

Hi everyone I need some advice. For about 18 months I have had a numb toe on my...

Bakbre

•6 years ago

6 Replies

Nurse appointment

Had appointment this morning with the new rheumy nurse. I have asked to go to methoject again . I feel like 2 years on from when I first did them at 16 i have...

Had appointment this morning with the new rheumy nurse. I have asked to go to me...

LouLamb

•6 years ago

2 Replies

Pain

Hi guys I'm recently on my period and I suffer with heavy bleeding and pain so I'm on medication for it . Recently I've been experiencing really shaft pain in...

Hi guys I'm recently on my period and I suffer with heavy bleeding and pain so I...

Kimmyro

•6 years ago

2 Replies

Pain !!!!

Hi guys on my period and I have really bad period pains and heavy bleeding so I'm on tablets for it from my doctors. I've been experiencing really sharp pain...

Hi guys on my period and I have really bad period pains and heavy bleeding so I...

Kimmyro

•6 years ago

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Blood test

Hi all. Good morning, just wondering if any of you have had blood results of Connective Tissue Disease & what did your consultants say about the findings? My...

Hi all. Good morning, just wondering if any of you have had blood results of Co...

Angellealea1

•6 years ago

4 Replies

I keep missing work and feel really bad.

I was diagnosed in January, and since then I've had 6 days off due to flares or related illness. Before this illness I was NEVER ill, never missed work. I feel...

I was diagnosed in January, and since then I've had 6 days off due to flares or ...

eescvc

•6 years ago

27 Replies

No heat rash for the first time ever!! Was it Plaqunil?

Hi all, I was diagnosed a few months back and on plaqunil 200mg twice daily and it has changed my life (well so far anyway). I have energy where I had none,...

Hi all, I was diagnosed a few months back and on plaqunil 200mg twice daily and ...

Jacpat

•6 years ago

2 Replies

Please help me understand

I am very confused and worried. My babyboy (10 years) may or may not at this point have lupus. We received lab results back with a positive Ana ifa......

I am very confused and worried. My babyboy (10 years) may or may not at this ...

Dominobob

•6 years ago

4 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2018

Rashes and Vasculitis

SLE & frontal Lobe atrophy

Long wait is finally over

Fed up

feeling bored

Rumi app today

Shoulder pain and discoid rash on forearms

PIP Assessment

Relationship breakdown

Lupus and hair loss

What I Did on Sunday

Hospital looming

Drinking baking soda - it really IS a thing

Systemic infections!!

Pain day today

Llandudno Information day

Possible jaw flare 🙄

Someone please help.

Feel useless!!

Venous furrowing(the groove sign)in scleroderma

Strange feeling as if nerves o...

Pain relief

HELP WANTED PLEASE!

Nurse appointment

Pain

Pain !!!!

Blood test

I keep missing work and feel really bad.

No heat rash for the first time ever!! Was it Plaqunil?

Please help me understand

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