Rumi app today : Hi just a quick one I’ve had jelly... - LUPUS UK

LUPUS UK

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Rumi app today

Ianrussell69 profile image
4 Replies

Hi just a quick one I’ve had jelly legs for yrs but the last 6weeks I’ve also had jelly arms and cramp every day in different muscles oh my god got it in my groin two days ago I’m sweating just thinking about it any how hope to be put back on methatrexate today hopefully 8 month off Will be sufficient for infection to have gone as wound is now fully healed like I said to the surgeon when he said how do I feel I replied well I’m water tight again it got a bit of a Laff got rather a lot to discuss as I’m also hoping to get salidaphil for my rainods 🤞🤞🤞🤞then I’m back to the rumi on Friday with my daughter she’s 19 on Sunday and she’s in constant pain day and night just wish I could take it away for her but 🤞she will get uther Meds as at the moment it’s just pain relief

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Ianrussell69 profile image
Ianrussell69
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4 Replies
whisperit profile image
whisperit

Hope all goes well, Ianrussell, and especially (for your sake as well as hers) for your daughter too x

Ladyuponthelake profile image
Ladyuponthelake

I also have a 19 yr old daughter who is suffering at a much younger age than I did. Very difficult.... I'm with you🌹❤🌹

Ianrussell69 profile image
Ianrussell69 in reply to Ladyuponthelake

Thanks I know it’s selfish but me and the wife have had nothing but dad news for the last 3yrs just hope our luck changes and my daughter gets the pain under control

Ladyuponthelake profile image
Ladyuponthelake in reply to Ianrussell69

That's not selfish.... that's life, honesty, pain and suffering! Believe me I know the meaning of it all. This year is learning acceptance, not an easy task. I'll pray for you if that's alright with you and your wife.

Be as well as you can xx

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