Hi just a quick one I’ve had jelly legs for yrs but the last 6weeks I’ve also had jelly arms and cramp every day in different muscles oh my god got it in my groin two days ago I’m sweating just thinking about it any how hope to be put back on methatrexate today hopefully 8 month off Will be sufficient for infection to have gone as wound is now fully healed like I said to the surgeon when he said how do I feel I replied well I’m water tight again it got a bit of a Laff got rather a lot to discuss as I’m also hoping to get salidaphil for my rainods 🤞🤞🤞🤞then I’m back to the rumi on Friday with my daughter she’s 19 on Sunday and she’s in constant pain day and night just wish I could take it away for her but 🤞she will get uther Meds as at the moment it’s just pain relief
Rumi app today : Hi just a quick one I’ve had jelly... - LUPUS UK
Rumi app today
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Ianrussell69
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4 Replies
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Hope all goes well, Ianrussell, and especially (for your sake as well as hers) for your daughter too x
I also have a 19 yr old daughter who is suffering at a much younger age than I did. Very difficult.... I'm with you🌹❤🌹
Thanks I know it’s selfish but me and the wife have had nothing but dad news for the last 3yrs just hope our luck changes and my daughter gets the pain under control
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