Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for March 2018

Is this a Malar rash?

I get this rash usually after a shower. Is it a normal trigger for a malar rash (a shower) and does this look like one? Or is it just a red face. (I have a lot...

I get this rash usually after a shower. Is it a normal trigger for a malar rash ...

alice2800

•6 years ago

11 Replies

Help blowing up.lupus friends any advice would be great.

Hi woke up n my legs looked five sits bigger n feel like logs,can someone plz tell me why they r swelling so bad.

Hi woke up n my legs looked five sits bigger n feel like logs,can someone plz te...

Tamster14

•6 years ago

4 Replies

Push for further tests

Hello. I am as of yet undiognised but this is being looked into via my GP. I have my six month check up with the Renal department this week who I am under due...

Hello. I am as of yet undiognised but this is being looked into via my GP. I hav...

JNSD1984

•6 years ago

9 Replies

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New symptom

Hi All Anyone out there who has had swollen feet and lower legs from nowhere? I can hardly hobble and they are so painful. I’m awaiting small nerve neuropathy...

Hi All Anyone out there who has had swollen feet and lower legs from nowhere? I ...

MsAndyIvy

•6 years ago

18 Replies

day 1 started

Have started my methotrexate today 5 tablets once a week. Will have a folic acid tomorrow . Hopefully wouldn’t get sickness like I did last time !

Have started my methotrexate today 5 tablets once a week. Will have a folic acid...

LouLamb

•6 years ago

14 Replies

Ignored letter from GP for second autoantibody test as first one said satisfactory.

Hi all, I had my results back from the autoantibody tests regarding possible SLE. They were satisfactory which as far as I was concerned meant normal/good so I...

Hi all, I had my results back from the autoantibody tests regarding possible SLE...

mumsyme

•6 years ago

5 Replies

Is anyone convinced that turmeric has helped their joint and muscle aches?

If anyone has found that turmeric has reduced their pain (or not!) I'd love to know-as well as how you take it.

If anyone has found that turmeric has reduced their pain (or not!) I'd love to k...

Joanna098

•6 years ago

8 Replies

Can anyone recommend shoe brands or supports to help reduce leg aches from standing?

Standing, even for a short time, really aches my knees and calves. Does anyone have the same problem or can recommend certain supportive shoes/slippers or...

Standing, even for a short time, really aches my knees and calves. Does anyone ...

Joanna098

•6 years ago

12 Replies

Lump on my eye

Hi I had this lump on my eye for a while but it is getting worse. I have seen a eye Dr in addenbrookes hospital and she can't explain what the lump is. I...

Hi I had this lump on my eye for a while but it is getting worse. I have seen a ...

Tulipano

•6 years ago

3 Replies

Vkh is autoimmune disease suffering since last 4 years lost right eyesight

Hello all, I lost my right eyes due to VKH is anautoimmune disease. Taking Mmf tablets 500 mg two times. Can anyone help me in this condition.? Please share...

Hello all, I lost my right eyes due to VKH is anautoimmune disease. Taking Mmf ...

Rajkumar_India

•6 years ago

2 Replies

Fast heart rate(tachycardia) advice

Hello everyone I am having problems with tachycardia giving me dizziness, shortness of breath ,palpitations, nausea, chest pain and tightness and feeling...

Hello everyone I am having problems with tachycardia giving me dizziness, shortn...

misty14

•6 years ago

27 Replies

Loneliness

My husband passed over 4 years ago , my son left home , I’m not a social butterfly , an introvert and shy person by nature , I’m 49 yrs old and I’m feeling...

My husband passed over 4 years ago , my son left home , I’m not a social butterf...

Hidden

•6 years ago

11 Replies

What’s up with my toe?

So I realised I had a this brown/green mark underneath my nail? Not sure how or what it is. Searched up many different conditions but can’t point out which...

So I realised I had a this brown/green mark underneath my nail? Not sure how or ...

Paleaspaper

•6 years ago

5 Replies

Heart and breathing?

My daughter has been complaining of feeling like she has a slow heart rate, along with stressed breathing. Does anyone have any experience with this condition?...

My daughter has been complaining of feeling like she has a slow heart rate, alon...

Natura

•6 years ago

4 Replies

Rhubarb gin and advice please

Need advice. Not about the rhubarb gin- as delicious as it’ tastes tonight I’ll be feeling it on Thursday. But sometimes you have to live in the gin fuddled...

Need advice. Not about the rhubarb gin- as delicious as it’ tastes tonight I’ll ...

MsAndyIvy

•6 years ago

5 Replies

Rheumy saw 3 heads

Hello friends! I need some input. I have more recently been feeling a flare with lots of fatigue, heavy legs and just an overall lack of bounce. I have no...

Hello friends! I need some input. I have more recently been feeling a flare wi...

shareasmile

•6 years ago

38 Replies

Tmj symptoms

Apart from using the mouth guard at night time what else can I do to make my jaw better? Should I contact my dentist? My jaw is very painful and affects my ear...

Apart from using the mouth guard at night time what else can I do to make my jaw...

Tulipano

•6 years ago

13 Replies

Muscles

I’m having a really difficult with my muscles. They feel heavy and are quit sore. I’m struggling to do things and can hardly walk. I have amitrypline which has...

I’m having a really difficult with my muscles. They feel heavy and are quit sore...

Tinkerjack1912

•6 years ago

11 Replies

Hydrocortisone and white cell count

Hi, I have been on hydrocortisone for about 5 months now perhaps, everything was going ok until the other day I got phone call saying my wbc was low. I’m not...

Hi, I have been on hydrocortisone for about 5 months now perhaps, everything wa...

imzi

•6 years ago

1 Reply

Undiagnosed

Hi everyone. I'm new here. I'm waiting to see rheumatologist. I had blood tests in December and my c3 was low which indicates lupus or rheumatoid arthritis....

Hi everyone. I'm new here. I'm waiting to see rheumatologist. I had blood tes...

Keiraleigh07

•6 years ago

7 Replies

Science news - tracking down viruses

Tantalising news snippet in "Nature" this week. It describes a new technique for sequencing viruses that, it is speculated, may lead to elucidating links...

Tantalising news snippet in "Nature" this week. It describes a new technique for...

whisperit

•6 years ago

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North Wales Lupus Information Day - 12th May 2018

The North Wales Lupus Information Day will take place on Saturday 12th May 2018 at The Imperial Hotel Conference Centre, The Promenade, Vaughan St, Llandudno...

The North Wales Lupus Information Day will take place on Saturday 12th May 2018 ...

Paul_Howard

Partner•6 years ago

10 Replies

Appointment at hospital

Saw the rheumatologist about a hour ago. It didn’t go as bad as I had thought . Firstly they had moved the clinic AGAIN and hasn’t bothered to tell me in a...

Saw the rheumatologist about a hour ago. It didn’t go as bad as I had thought . ...

LouLamb

•6 years ago

2 Replies

Contact lenses

Since my lupus got worse I can't wear contact lenses for long or everyday. I had an inflammation behind the optic nerve and has left a scar. What you think...

Since my lupus got worse I can't wear contact lenses for long or everyday. I had...

Tulipano

•6 years ago

3 Replies

SLE Chillblains

Another joyous flair side effect I’m experiencing! I’m currently on Methotrexate, Hydroxychloroquine and Prednisone but wondered if anyone has any experience...

Another joyous flair side effect I’m experiencing! I’m currently on Methotrexate...

Sin123

•6 years ago

7 Replies

What a terrible night ! Terrible 2 weeks actually. Support or a kind word from a fellow sufferer would would be lovely. 🌸

Sorry it’s an essay ! 🙄 I don’t ever complain but I’m feeling low. Im in so much pain with my joints ! Have physio taped literally each one last night. I’m...

Sorry it’s an essay ! 🙄 I don’t ever complain but I’m feeling low. Im in so m...

Mellisa1066

•6 years ago

32 Replies

Peripheral neuropathy

Hi, any one suffers from this condition? If so what’s your treatment? Thank you 😊

Hi, any one suffers from this condition? If so what’s your treatment? Thank you...

Hidden

•6 years ago

9 Replies

Whats your area like for non clinical advice?

Apart from 30 years in nursing care, I now have experience on the other side of the bench. This has included my own condition Lupus and other autoimmune...

Apart from 30 years in nursing care, I now have experience on the other side of ...

johare

•6 years ago

9 Replies

Thick Fog and Sore Hands

Why is it so hard to focus? It’s not that I have blurry vision but I feel like I have to blink twice to see what I’m really looking at. My brain is mush and I...

Why is it so hard to focus? It’s not that I have blurry vision but I feel like I...

Macsimum_de

•6 years ago

8 Replies

2017 and difficulty when my rheumatologist retired 🤦‍♀️

My rheumatologist of 8 years retired and I was assigned to a new rheumatologist who I saw last May. My lupus primarily expresses itself as joint pain which...

My rheumatologist of 8 years retired and I was assigned to a new rheumatologist ...

Mimi1900

•6 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2018

Is this a Malar rash?

Help blowing up.lupus friends any advice would be great.

Push for further tests

New symptom

day 1 started

Ignored letter from GP for second autoantibody test as first one said satisfactory.

Is anyone convinced that turmeric has helped their joint and muscle aches?

Can anyone recommend shoe brands or supports to help reduce leg aches from standing?

Lump on my eye

Vkh is autoimmune disease suffering since last 4 years lost right eyesight

Fast heart rate(tachycardia) advice

Loneliness

What’s up with my toe?

Heart and breathing?

Rhubarb gin and advice please

Rheumy saw 3 heads

Tmj symptoms

Muscles

Hydrocortisone and white cell count

Undiagnosed

Science news - tracking down viruses

North Wales Lupus Information Day - 12th May 2018

Appointment at hospital

Contact lenses

SLE Chillblains

What a terrible night ! Terrible 2 weeks actually. Support or a kind word from a fellow sufferer would would be lovely. 🌸

Peripheral neuropathy

Whats your area like for non clinical advice?

Thick Fog and Sore Hands

2017 and difficulty when my rheumatologist retired 🤦‍♀️

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