Appointment at hospital : Saw the rheumatologist... - LUPUS UK

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Appointment at hospital

LouLamb profile image
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Saw the rheumatologist about a hour ago. It didn’t go as bad as I had thought .

Firstly they had moved the clinic AGAIN and hasn’t bothered to tell me in a letter 🙄

I saw the nice one again, I had my list and was honest .

I am going to try methotrexate again , 5 for one day then 1-2 folic acid depending on how I feel with side effects. I have asked her for a referral to physio to help strength and keep the movements I have.

I told her how I weren’t having blood test and that and she has given me the forms and I’m waiting for a letter in the post for appointment with the nurse in about 2 months time to see how I am getting on with the tablets .

She had explained to me that my lupus is current inactive , I was very confused as I didn’t understand what that meant ! It’s a good thing so the only problem I am having at the moment is the arthritis pains .

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LouLamb
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Bebe76 profile image
Bebe76

I'm glad your appointment went well. A referral for physiotherapy is a good idea. They will be able to give you exercises that are easy on the joints. I have been going to physio for a while now due to back pain, but I have realized that my overall weakness (due to inactivity and lupus flares) has contributed to my back problems, and since re-gaining some strength I have less fatigue and pain from doing day-to-day things. The hard part is remembering to do the exercises!

I hope the methotrexate works for you!

LouLamb profile image
LouLamb in reply toBebe76

Thank you .

I’m going to try the methotrexate tonight with my custard pot 😵

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